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The Clinical Pocket Guide to Advanced Practice Palliative Nursing is a companion guide to Advanced Practice Palliative Nursing, the first text devoted to advanced practice nursing care of the seriously ill and dying. Each chapter presents point-of-care guidance on palliative care issues for quick reference in daily practice. Containing clinical pearls developed from the textbook and practical tools on key points in palliative care, this guide is an ideal resource for practicing APNs.

Cover -- Series -- Oxford American Handbook of Hospice and Palliative Medicine and Supportive Care -- Copyright -- Contents -- Contributors -- 1 Definitions and Key Elements in Palliative and Supportive Care -- 2 Symptom Assessment -- 3 Clinical Decision-​Making -- 4 Pain Assessment and Management -- 5 Fatigue -- 6 Cachexia -- 7 Dehydration -- 8 Anxiety and Depression -- 9 Sleep Disturbance -- 10 Chronic Nausea and Vomiting -- 11 Constipation and Bowel Obstruction -- 12 Delirium -- 13 Clinical Issues Related to Palliative Sedation -- 14 Breathlessness -- 15 Emergencies in Palliative Care

In Deutschland leben derzeit rund 82 Millionen Menschen. Dabei liegt die Sterblichkeitsrate bei etwa einem Prozent der Bevölkerung pro Jahr, was ca. 800 000 Todesfälle jährlich bedeutet. Einige dieser Menschen werden auf ihrem Weg zum Tod von professionellen Helfern gepflegt, unterstützt und begleitet. Die Soziale Arbeit erbringt einen Teil dieser Leistungen. Die vorliegende Arbeit hat zum Ziel sowohl Hospizarbeit breitbandig darzustellen, als auch die Rolle der Sozialen Arbeit darin zu erörtern.

Intro -- Danksagung -- Inhalt -- 1 Einleitung -- 2 Problemaufriss und Forschungsstand -- 2.1 Zur historischen Kontinuität der Hospizidee -- 2.1.1 Xenodochium, Hospital und Hospizidee: Zur Metapher der Gastfreundschaft und Herberge für Reisende -- 2.1.2 Die ,Cura infirmorum' der Benediktsregel: Die Pflege für kranke und sterbende Ordensbrüder -- 2.1.3 Erstes Hospiz mit palliativmedizinischer Praxis - Die Nürnberger ,Hundertsuppe' -- 2.1.4 Ein Zeugnis der ersten Palliativpflege-Praxis: "De cura, quam moribundis debent, qui aegrotis sunt a ministerio" -- 2.1.5 ,Ars moriendi'-Schriften -- 2.1.6 Zur Sorgepraxis der Diakonissen -- 2.1.7 Zwischenfazit -- 2.2 Entwicklung der modernen Hospizarbeit und Palliative Care -- 2.2.1 Zur Entstehung von Hospice (Palliative) Care in England -- 2.2.2 Zur Entstehung von Hospizarbeit und Palliative Care in Deutschland -- 2.3 Zur Bedeutung des Ehrenamtes in Hospizarbeit und Palliative Care -- 2.3.1 Ehrenamt und Zivilgesellschaft -- 2.3.2 Die Rolle der ,Ehrenamtlichkeit' in Hospizarbeit und Palliative Care -- 2.4 Haupt- und Ehrenamt in Hospizarbeit und Palliative Care -- 2.4.1 Aktuelle Studien zur Zusammenarbeit von Haupt- und Ehrenamt in Hospizarbeit und Palliative Care -- 2.4.2 Erstqualifizierung: Qualitätsanforderungen an Ehrenamtliche -- 2.4.3 Lernziele und Kernkompetenzen in den Curricula der Weiterbildung für Hauptamtliche -- 3 Methodisches Vorgehen -- 3.1 Forschungsfrage und Erkenntnisinteresse -- 3.2 Methodologische Einordnung des qualitativen Forschungsparadigmas -- 3.3 Sampling, Rekrutierung und Beschreibung des Samples -- 3.4 Datenerhebung -- 3.4.1 Expert_inneninterviews -- 3.4.2 Problemzentrierte Interviews -- 3.4.3 Überlegungen zur Forschungsethik -- 3.5 Auswertung -- 4 Darstellung der empirischen Ergebnisse -- 4.1 Die Bedeutung des Ehrenamtes in Hospizarbeit und Palliative Care.

Intro -- Dank -- Geleitwort -- Inhaltsverzeichnis -- Verzeichnisse -- Abkürzungsverzeichnis -- Transkriptionsregeln -- Abstract -- 1 Einleitung -- 2 Spiritualität -- 2.1 Spiritualität und die Vielfalt der Definitionen -- 2.2 Der Begriff "Spiritualität" in der Lebenswelt der Studienteilnehmer*innen -- 2.3 Die religiöse und spirituelle Verortung der Studienteilnehmer*innen -- 2.4 Geschichte und die Kennzeichen eines Begriffs -- 2.4.1 Etymologie und Traditionen -- 2.4.2 Dimensionen von Spiritualität -- 2.4.3 Spirituelle Sorge um Menschen mit Demenz erforschen. Grundlegendes und aktueller Forschungsstand -- 2.4.4 Spiritualität als unklare Dimension in Palliative Care -- 2.5 Spiritual Care. Ein "Container" für Spiritualität im Gesundheitswesen? -- 2.6 Spiritualität, Spiritual Care und Demenz -- 2.6.1 Transzendenz und Demenz -- 2.6.2 Spiritual Care und Demenz -- 2.6.3 Spirituelle Sorge und die Abhängigkeit von Menschen mit Demenz -- 2.7 Spirituelle Sorge als Beitrag zu einer Care-Ethik -- 2.7.1 Care-Ethik -- 2.7.2 Die Sorge ist weiblich. Care-Ethik und Gender -- 2.7.3 Die Resonanztheorie von Hartmut Rosa. Resonanz als Sorgequalität -- 3 Demenz in qualitativer Forschung im Pflegeheim -- 3.1 Was ist Demenz? -- 3.2 Etymologie und sprachliche Entscheidungen -- 3.2.1 Sprache und ethische Relevanzen -- Exkurs: Demenz als Stigma -- 3.2.2 Sprache: Ein wandelbares Phänomen -- 3.3 Medikalisierung des Alterns und des Phänomens Demenz -- 3.3.1 Geschichte eines Begriffs -- 3.3.2 Das Alter als medikalisierte Lebensphase -- 3.3.3 Medikalisierung eines Phänomens: die Konstruktion von "Demenz als Krankheit" -- 3.3.4 Das Pflegeheim als letzter Lebensort von Menschen mit Demenz. Sterben in einer totalen Institution? -- 3.3.5 Implikationen von Gewalt -- 3.4 Demenzkonstruktionen: Frames und Counter-Frames -- 3.5 Demenzkonstruktionen - ausgewählte Konzepte des Diskurses.

This rich collection of accounts explores the personal and professional experiences of palliative care workers. Contributors from a variety of disciplines associated with care at the end of life - among them social workers, a nurse, a doctor, a counselling psychologist, an academic researcher, a psychotherapist and a creative writing therapist - explain how and why they came to work in palliative care, what they bring to the work and the ways in which it has enriched their own lives. Including descriptive examples of their work with clients and families, they discuss the spiritual needs of pat

Cover -- Title Page -- Copyright Page -- Contents -- Dedication -- Foreword -- Preface -- About the editor -- List of contributors -- Part 1: Finding a voice -- 1 John's song -- 2 Margarita's story -- 3 A guide to living with cancer according to PG Wodehouse -- 4 Arts in palliative care: the Prince and Princess of Wales Hospice -- 5 Connecting I and you: working with the breath as a tool to enable people to find their stories in safety -- 6 We laughed -- Part 2: Developing support -- 7 User involvement and creativity -- 8 No - you don't know how we feel -- 9 The support group at my shoulder -- 10 The women's group -- Part 3: Advancing involvement -- 11 Becoming involved in research: a service user research advisory group -- 12 Users as educators: how hospice patients can help in the training of health professionals -- 13 The Tuesday group: a project in the art of dying -- 14 Voicing change: online not in line -- Part 4: Models of good practice from direct experience -- 15 Poems for World Day -- 16 Case study of service user forums at Dove House Hospice -- 17 Listen to what we say -- References and bibliography

In our society, the overwhelming majority of people die in later life. They typically die slowly of chronic diseases, with multiple co-existing problems over long periods of time. They spend the majority of their final years at home, but many will die in hospitals or care homes. This book explores the possibilities for improving the care of older people dying in residential care and nursing homes. It argues that there are aspects of palliative care that, giventhe right circumstances, are transferable to dying people in settings that are not domestic or hospice based.End of Life in Care Homes describes what happens in nursing and residential care homes when a resident is dying, how carers cope, and the practical, health and emotional challenges that carers face on top of their day-to-day work. Based on detailed research from both the UK and US, the book shows how the situation can be improved.

Cover -- Title Page -- Copyright Page -- Contents -- Foreword -- About the Authors -- Acknowledgements -- Part 1 Getting Started -- Unit 1.1 Gaining Perspectives -- Part 2 Understanding the Caregiver's Self -- Unit 2.1 Reflecting on Death -- Unit 2.2 Mindfulness -- Unit 2.3 Self-Knowledge -- Unit 2.4 Spiritual Knowledge -- Unit 2.5 The Whole Self: Body-Mind-Spirit -- Unit 2.6 Facing Death -- Part 3 Understanding Ourselves in Service of the Dying Person -- Unit 3.1 Social and Cultural Influences -- Unit 3.2 Spiritual and Religious Influences -- Unit 3.3 The Nature of Loss and Suffering -- Part 4 Ways of Helping the Dying Person -- Unit 4.1 Fundamentals of Communication -- Unit 4.2 Compassionate Presence, Mindful Listening, and Effective Responding -- Unit 4.3 Fears and Assumptions about Death -- Unit 4.4 Narratives of Suffering -- Unit 4.5 Expressive Activities That Aid in Relieving Suffering -- Part 5 Honoring the Caregiver -- Unit 5.1 Nurture and Honor Yourself!

Background: The Palliative Care Consult Service (PCCS) programme was among the first initiations in Hungary to provide palliative care for patients admitted to hospital. The PCCS team provides palliative care for mainly cancer patients and their family members and manages the patient pathway after being discharged from the hospital. The service started in 2014 with 300-400 patient visits per year. The aim of this study is to give a comprehensive overview of the PCCS programme guided by a conceptual framework designed by SELFIE ('Sustainable intEgrated chronic care modeLs for multi-morbidity: delivery, FInancing, and performancE'), a Horizon2020 funded EU project and to identify the facilitators and barriers to its wider implementation. Methods: PCCS has been selected by the SELFIE consortium for in-depth evaluation as one of the Hungarian integrated care models for persons with multi-morbidity. The qualitative analysis of the PCCS programme was based on available documents of the care provider and interviews with different stakeholders related to the programme. Results: The integrated, multidisciplinary and patient-centred approach was well-received among the patients, family members and clinical departments, as verified by the increasing number of requests for consultations. As a result of the patient pathway management across providers (e.g. from inpatient care to homecare) a higher level of coordination could be achieved in the continuity of care for seriously-ill patients. The regulatory framework has only partially been established, policies to integrate care across organizations and sectors and adequate financial mechanism to support the enhancement and sustainability of the PCCS are still missing. Conclusions: The service integration of palliative care could be implemented successfully in an academic hospital in Hungary. However, the continuation and enhancement of the programme will require further evidence on the performance of the integrated model of palliative care and a more systematic approach particularly regarding the evaluation, financing and implementation process.

Palliative Care serves as an innovative, practical resource to help equip health social workers with theoretical and clinical tools to integrate palliative care principles into practice with individuals, families, teams, and institutions. In honoring the coherence of palliative care and social work, authors re-awaken the potential of thousands of health social workers to lead and inform the Institute of Medicine's mandate for high-quality, humane, patient-centered, family-focused care

Cover -- Half Title -- Title Page -- Copyright Page -- Contents -- Foreword -- Preface -- About the editors -- List of contributors -- Acknowledgements -- Introducing our discourse -- Section 1: A global overview Section introduction -- 1 Paediatric palliative care as a basic human right -- 2 The International Children's Palliative Care Network (ICPCN): a global overview -- 3 Organisation of care in the UK -- 4 Organisation of care in Romania -- 5 Organisation of care in Uganda -- 6 Organisation of care in South Africa -- Section 2: Focusing on families: hearing the evidence Section introduction -- 7 A research perspective: narrative research -- 8 Part 1: 'Where's my sitcom?' The young adult's voice -- Part 2: Commentary on the young adult's story -- 9 Part 1: The parent's voice -- Part 2: Jamie's continuing care domains -- Part 3: Commentary on the parent's story: the key to integrating services -- 10 Part 1: A child's life path -- Part 2: A philosophical perspective on a father's tale -- 11 Hearing the voices of parents and carers -- 12 Hearing the voices of siblings -- 13 Transitions within the family -- Section 3: Minimising crisis points in paediatric palliative care Section introduction -- 14 Pathways in palliative care -- 15 Use of clinical practice guidelines and critical pathways -- 16 Minimising crisis points in paediatric palliative care: the ACT care pathways in action -- Section 4: Supporting transitions Section introduction -- 17 Transitions within acute care settings: the chaplain's perspective -- 18 Transitions at the beginning of life: psychological support -- 19 Managing transitions to hospice care: the hospice consultant's perspective -- 20 Supporting transitions: effective palliative care teams -- Section 5: Evidence/knowledge transfer into practice Section introduction