Suchergebnisse

The multidisciplinary book assesses the legal and economic uncertainties surrounding the collection, storage, provision and economic development of biological samples (tumors, tissues, cells) and associated personal data related to oncology. Public, partly public and private sector actors in the field of cancer care and research hold collections supported by significant public and social funding. Under certain conditions, particularly in the context of networking (sometimes promoted by public authorities), these collections can also represent major economic assets and scientific resources. However, this involves a number of issues and institutional constraints: legal: the will of the source person; non-pecuniary damage; freedom to establish collections; competence in deciding on their use; legal frameworks for their distribution; desire for return on investment for public institutions, notably in terms of industrial and intellectual property. Economic: cost of establishing and running biological resource centres; destroying resources; emerging markets; profit sharing. public health policy choices: prioritisation of therapeutic measures over research (fundamental or clinical trials); conservation of resources; promotion of scientific (and not commercial) value of collections. The establishment, heritage recognition ("patrimonialisation"), development and sharing of these resources thus merit our calling into question present practices and their evolution, as well as the leverage available to public authorities (incentives, legislation, regulation) in a context where norms emerge from professional practice to become widely used in collaborative networks. Filling a gap in the current literature on law and economics, which pays little heed to these specific considerations, this book explores these considerations to bring to light the economic implications of ethical choices and governance issues in the health sector (structural organisation of local, national and European actors in oncology). It is intended for researchers in fields such as law, economics and biomedical sciences, as well as for public policymakers

"I know that everyone is opposed to the idea of censorship of literary works. As for me, I believe that censorship can be justified, if it is exercised with probity and does not serve to cover up personal, racial or political persecution." Thus pleaded Borges, with his taste, very paradoxical here, for provocation. The legitimization of a censorship which is "necessary" for society? This is perhaps also reflected by contemporary French law.

La naissance éventuelle d'un « réflexe constitutionnel » plusieurs mois après la mise en œuvre de la question prioritaire de constitutionnalité permet d'apprécier en profondeur l'impact de la QPC sur notre système juridique. Le « bing bang juridictionnel » mérite d'être mesuré de manière concrète à partir de l'incidence de cette nouvelle procédure sur les pratiques du droit des différents acteurs concernés, de l'avocat au magistrat, du professeur de droit privé au professeur de droit public.Dans quelle mesure ces différents acteurs ont-ils intégré la dimension constitutionnelle dans leur cha