Suchergebnisse

Reframing risk : working with caregivers of children with disabilities to promote risk-taking in play /Patricia Grady-Dominguez, Kristina Ihrig, Shelly J. Lane, Jennifer Aberle, Kassia Beetham, Jo Ragen, Grace Spencer, Julia Sterman, Paul Tranter, Shirley Wyver, and Anita Bundy --Augmented naturalistic developmental behavioral intervention for toddlers with autism spectrum disorder : a community pilot study /Deanna M. Swain, Jamie Winter, Claire B. Klein, Amy Lemelman, Jennifer Giordano, Nicole N. Jablon, Kaori Nakamura, and So Hyun Kim --Fathers, children, play and playfulness /Shelly J. Lane and Jennifer St. George --Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome /Natalie G. Brei, Ana-Maria Raicu, Han Joo Lee, and Bonita P. Klein-Tasman --The effect of parent personality on the acquisition and use of mindfulness skills during an MBSR intervention /Catherine M. Sanner, Hadley A. McGregor, Amanda E. Preston, and Cameron L. Neece --A public health approach to family supports : empowering families of children with autism through the ECHO model /Eric J. Moody, Haley A. Sturges, Sarah Zlatkovic, Ethan Dahl, Sandra Root-Elledge, and Canyon Hardesty.

Community engagement research (CER) is an evidence-based approach to developing, studying, and evaluating the impact of academiccommunity partnerships focused on a common public health goal. In this case example, we will describe the process, barriers, and outcomes of a CER project that was focused on connecting pediatric specialists from a university-affiliated Children's Hospital with physicians in community-based pediatric practice treating children and youth with complex developmental disabilities. The common public health goal in this case was the commitment to the concept of a "medical home," or the provision of high-quality medical care within one's own community. Many families of children with disabilities live far from specialty medical centers and have difficulty accessing community-based practitioners that feel competent to manage all aspects of their care. Waiting lists to see developmental specialists are also very long, and delays in care can lead to adverse health outcomes for vulnerable patients. Building capacity of local doctors through ongoing consultations with specialists is an important part of establishing and maintaining medical homes for children and youth with disabilities. In this case example, we will describe our team's efforts to partner with primary care providers in rural and underserved communities in Colorado and explore the potential feasibility and impact of an interactive case consultation service delivered via telehealth (e.g., videoconferencing). We will discuss the CER strategies we employed, the barriers we faced, and the outcomes we observed from this 3-year project.

Background  Research suggests that children with Down syndrome may be at increased risk of having an autism spectrum disorder; however, previous studies have not utilized comprehensive, state‐of‐the‐art diagnostic tools to address the question of comorbid autism and Down syndrome.Method  Comprehensive evaluations for autism were conducted in 20 2‐year‐old children with Down syndrome. The Autism Diagnostic Observation Schedule‐Generic (ADOS‐G) and the Autism Diagnostic Interview–Revised (ADI‐R) were administered by experienced clinicians, who then determined if the child presented with significant symptoms of autism. Eighteen children participated in a follow‐up evaluation at age 4 years.Results  Three children (15%) met criteria for an autism spectrum disorder at both time points, and two (10%) for autistic disorder. Case descriptions are provided. Several children presented with difficulties in communication and play, but did not show problems in core social relatedness. The ADOS‐G, if used alone, over‐identifies autism in toddlers with Down syndrome.Conclusions  Clinical judgement is critical in diagnosing autism in Down syndrome. Young children may show some signs of autism (particularly in the area of communication) and not have the disorder. Children who have comorbid Down syndrome and autism are particularly challenged, relative to their peers without autism.