Suchergebnisse

Considers how family and professional carers can work together more effectively in order to provide the highest quality of care to people who need support in order to remain in their own homes. Adopting a temporal perspective, this book looks at key transitions in caregiving and is useful for health care students and professionals

Government policy in Sweden, as in other developed countries, pays increasing attention as to how best to support the family carers of older people. New and innovative means of support, such as information and communication technology, are emerging. This paper explores the perceived benefits of, and barriers to, information technology as a means of supporting family carers of older people. Following a brief overview of the care-giving literature, with particular reference to the Swedish context, interview and questionnaire data collected from 34 families who took part in the Swedish ACTION project are used to explore the role of user-friendly information and communication technology to inform and enable family carers of older people to exercise choice, to care more effectively and to work in partnership with professionals. Interview data from two groups of professionals that utilised ACTION are also examined to throw light on its potential benefits for both carers and professionals. Consideration is given to the barriers to using information technology, and to identifying those carers most likely to benefit. Areas for further development are the need for practitioners' education and a wider range of programmes to address carers' diverse needs. Clearly, lessons learned from the Swedish project have wider relevance, given that new forms of support are being developed in most technically advanced countries.

Considers issues, challenges and rewards of user participation research. This text draws on the experience of doing research and working with users. It includes voices and contributions of users in reporting research. It is suitable for students, researchers, and practitioners wishing to undertake participative research involving service users

This article draws on a four-year evaluation that assessed the delivery of support services by 15 British hospices and social agencies to family carers of terminally ill people. It aims to examine the politics of evaluation research. Three main arguments are posited: first, that evaluation research is distinguishable from 'quick and dirty' evaluations, which are insufficiently resourced and not implemented properly; second, what constitutes a contribution to knowledge and particularly what constitutes 'new' knowledge is inherently political; third, drawing on dramaturgy theory, the article presents findings from the study that illustrate how service providers draw selectively in various ways on knowledge, to present their work favourably to their audiences. Finally, the article concludes that such knowledge manipulation raises questions about whose voices are heard within organizations, and the politics involved in the writing of grant applications, in the processes of tendering for the funding of local services.

Using constructivist grounded theory, this study explored how family groups respond to Alzheimer's disease in its early stages. Seven family units ( N = 22) participated in a series of 26 longitudinal interviews and 14 other family caregivers took part in three focus groups at a later stage for refinement and verification of the findings. Data analysis revealed four types of family dynamics: close dynamics at the start that were maintained throughout the experience, close dynamics at the start which became conflicting, conflicting dynamics at the start which remained problematic, and conflicting dynamic at the start which became closer over time. Factors such as prior relationships and family history, motivation to care, family organization, communication, and the family vision for future shaped the development of these dynamics. This theory of family dynamics in Alzheimer's disease has the potential to inform the development of more adequate early interventions for families living with the illness.

With the proportion of people between young adulthood and the third age growing in relation to children and young people in western industrialised societies, there is an increasing need for a comprehensive look at the past, present and future of adult lives. These adult lives are defined by the experience of history, are structurally specific, and draw upon different interpersonal, lifestyle and cultural resources and it is important to recognise the impact of the past and the present on future adult lives. 'Adult Lives', co-published by The Policy Press and the Open University, is a diverse collection of readings, rich in resources, from all stages of life. These readings contribute to a shared life course perspective to understand how those living and working together in an ageing society relate to each other. The originality and appeal of this Reader lies in its holistic approach to understanding ageing in adulthood through biography and auto-biography that is applicable to all, including those developing policy and in practice, and will make essential reading for those who wishing to contextualise ageing, understand how lives can be transformed through policy and practice, and consider the lived experience