"There is a widely held notion that death is not particularly visible in our culture; death is something we do not talk about. The premise for Døden i livet has been to challenge this preconception from a variety of perspectives and disciplines.
The authors argue that death is present in our lives in many ways. We see it and experience it in our physical surroundings, for example in the various arrangements we make to remind ourselves of the dead. We hear or read about it in speeches, poems, music lyrics, psalms, obituaries, biographies, picture books, novels and newspapers. We talk about death in conversations with each other, in characterizing the dead and in clinical language about illness and death. We reveal our understanding of death through visual forms such as newspaper images, illustrations in books and in the imagery and metaphors we employ when we describe it.
Døden i livet is a mult-disciplinary, scientific anthology consisting of 12 peer-reviewed chapters geared towards scholars and students interested in broader appreciation of how death is present in our culture. The chapters are written by researchers working in such diverse fields as health, pedagogics, idea history, religion, literature studies, linguistics and rhetoric."
Background: Psychosocial interventions for persons with dementia and their primary family carers are promising approaches to reducing the challenges associated with care, but, obtaining significant outcomes may be difficult. Even though carers in general are satisfied with such interventions, few studies have evaluated the interventions by means of qualitative methods. Aim: The objective of the study reported here was to investigate family carers’ experiences of a multicomponent psychosocial intervention program, and also to offer advice on how to develop the intervention program. Methods: Content analyses were taken from individual qualitative interviews conducted in 2012 with 20 carers (aged 50–82 years) who participated in a psychosocial intervention program that included education, individual and family counseling, and parallel group sessions for carers and persons with dementia. Results: Two main categories emerged: 1) benefits of the intervention program, which sets out the informants’ experiences for the benefits of participation, described in the subcategories “importance of content and group organization” and “importance of social support”; and 2) missing content in the intervention program, which details the informants’ suggestions for future interventions, contained in the subcategories “need for extended content” and “need for new group organization”. Conclusion: The carers found the interventions useful. The importance of even earlier and more flexible interventions for the family carers, the extended family, and the persons with dementia was underscored.
Bakgrunn: ”Demens i familien” er en intervensjonsstudie hvor psykoedukativ metode ble benyttet for å redusere stress hos pårørende, og for å redusere psykiatriske tilleggssymptomer hos personer med demens. Studien pågikk i Norge fra 2001-2004. Denne MPH- oppgaven er en delstudie av”Demens i familien”. Mål: Undersøke om pårørende opplevde at de hadde hatt nytte av den psykoedukative intervensjonen, og om effekten ble opprettholdt over tid, dette ble målt med et evalueringsskjema. Delmål var å beskrive pårørendes vurdering av eget stress, egen byrde og egen opplevelse av helse, samt sammenligne om det forelå noen forskjell mellom de som hadde fått en kortvarig intervensjon og en kontrollgruppe som hadde fått vanlig behandling. Metode: Evalueringsskjema med 8 spørsmål og en rubrikk for kommentarer var utarbeidet. Skjemaet ble fylt ut av pårørende etter intervensjonen og 7,5 måneder senere (n=45). Spørreskjemaer sommåler stress (RSS), byrde (NPI- byrde) og opplevelse av egen helse (GHQ-30), ble målt hos pårørende, ved baseline, etter intervensjonen og 7,5 måneder senere. Andre fra intervensjonsgruppen (n=47) og kontrollgruppen (n=86), skåret på de samme spørreskjemaene. Grad av demens (MMS), varighet av sykdom, pårørendes alder og kjønn forelå på alle. Resultater: Skårene fra spørreskjemaene RSS, NPI- byrde og GHQ-30 viste ingen signifikant forskjell etter intervensjonen i gruppene eller mellom gruppene. Forskjeller i varighet av sykdommen, pårørendes kjønn og alder var små. Alle opplevde nytte av intervensjonen også over tid. I den åpne rubrikken var det kommentarer fra 36 personer. Konklusjon: Spørreskjemaene viste at pårørende var stresset, belastet og at dette gikk ut overhelsen. Psykoedukative intervensjonsgrupper var nyttige, og pårørende ønsket differensierte grupper med oppfølgingsmøter og egne grupper for personer med demens ; Background:”Dementia in the family” is an intervention study where psycho-educative method has been applied aiming to reduce stress for the relatives and reduce psychiatric behavioural symptoms to persons with dementia, carried out in Norway between 2001-2004. The evaluation described below is part is part of “Dementia in the family”study. Aim: Investigate the relative’s perception of the usefulness of the intervention, and if the effect remained. This was assessed with an evaluation questionnaire. An additional aim was to see how relatives assessed their own stress, burden and general health, and if there were any difference between those who received a short intervention and the control group, which received treatment as usual. Method: Aquestionnaire with 8 questions and a section for comments was developed and filled in by the relatives after the intervention and 7,5 months later (n=45). Tests measuring relatives stress (RSS), burden (NPI- burden) and experience of general health (GHQ- 30) was performed at baseline, after the intervention and 7,5 month later. Others in the intervention group (n=47) and control group (n=86) scored the same tests. Level of dementia was measured (MMSE), duration of illness, relative’s gender, relation and age was stated for all participants. Results: The scores from tests showed no significant differences in any of the groups or between the groups. There were small variations in the MMSE score, duration of illness, relative’s gender and age. The questionnaire showed that every relative found the intervention useful and the effect remained. 36 persons filled in on the comments. Conclusion:Results indicated that the relative’s were stressed, burdened and their general health was suffering. It was concluded that the psycho-educative intervention groups were useful, and that the relatives wanted differentiated groups, follow-up meetings and special groups for the persons with dementia. ; ISBN 91-7997-144-x