Patient Engagement in Health Education and Research ; Engagement des patients dans la formation et la recherche en santé

Abstract

Since the liberation, the French health care system has completely evolved. A profound cultural change is currently taking place, with the development of health democracy, the determination of health pathways, the reorganization of territorialization with the GHT (Groupements Hospitaliers de Territoire), the CPTS (Communautés Professionnelles Territoriaux de Santé), and personalized medicine, the Law on the modernization of our health system, the four main priorities for the national health strategy, the concept of transition affecting five major areas structuring not only the evolution of the health status of populations but also the methods of individual and collective response to the needs of these populations, ma santé 2022 : the place that the patient, as a user of the healthcare system, must take with regard to the expectations and needs of the actors concerned in the health and social fields remains to be defined.Medicine, surgical techniques, treatments and care are constantly evolving. The legislative environment is adapting to the pace of these advances, providing a framework for all these systems and enacting rules of application. In the same dynamic, patients are making progress; they decide to go against the flow of things and refuse to let themselves be overwhelmed by their illnesses, their treatments and their consequences. The notion of : The notion of "living with" is becoming more and more precise and commits, on the one hand, caregivers to re-evaluate their professional practices and postures and, on the other hand, patients to commit themselves to a willingness to participate, to act and to be able to make informed choices.A paradigm shift through collaboration is now taking shape. Numerous questions arise around: the role, missions and place of the patient-user: who is he or she, what is his or her etymology, history, how is he or she defined? Can it evolve and to what level? How, by what means, by what training and with which actors. Can it participate in the initial and continuing training ...