Experience of choice and control for service users and families of direct payments in residential care trailblazers

Abstract

Context: Direct payments (DP) – cash for care – have been promoted in England as a mechanism to enhance the choice and control of service users living in community settings who are eligible for state-funded care. In 2011, the government decided to pilot DPs in residential care in a few areas and to commission an evaluation of the pilot programme. Objective: To explore the experiences of care home residents and their families offered a DP, in terms of choice of and control over their care and of their consumer power in local care home markets. Methods: We held 34 semi-structured interviews with care home residents and family members as part of the evaluation. Interviews were analysed using the "Antagonisms of Choice" framework to study the frictions caused by promoting self-directed care via private market mechanisms within publicly funded systems. Findings: Findings suggest unequal access to DPs according to residents' access to family networks, level of cognitive function and underlying physical health. Some participants expressed concern about the effects of DPs on quality of care home services. Several family members using DPs perceived enhanced power in relation to the care providers; others saw no benefit from DPs. Limitations: Uptake of DPs was lower than expected, potentially limiting the generalisability of these findings.