Analyse réflexive du partenariat en santé à partir de mon expérience de patiente partenaire : Constats, réflexions et recommandations

Abstract

International audience ; In Switzerland, the context is relatively favorable to patient engagement, which encouraged me to get involved in the health care system. Since 2019, I have been able to experience partnership with various actors, different institutional structures, and at several levels. Despite a positive environment for the deployment of patient partnership, thanks to political, institutional, and financial incentives, the implementation of the new paradigm is facing many obstacles. Obstacles that I faced in my journey as a patient-partner. The following analysis is conducted based on my last three years of engagement as a patient partner in the health system. The following points are raised and developed in the article:•The reasons that induce an asymetry in the commitment to the partnership between patient partners and health professionals.•The role that the patient-partner could have in improving organizational management and reducing silo functioning.•The current difficulty in overcoming epistemic injustices. The lack of recognition of the patient's experiential knowledge gained from living with a disease not only impacts the care relationship but also the effectiveness of teamwork. •The place of diploma courses in the recognition of patient involvement•Organizational ethics to foster an empowering environment.We will conclude with the place given to the relationship, which is and remains primary care. ; En Suisse, le contexte relativement favorable à l'engagement patient, m'a poussé à vouloir m'investir dans le partenariat en santé. Depuis 2019, j'ai pu expérimenter le partenariat avec divers acteurs, différentes structures institutionnelles et à plusieurs niveaux. Malgré un environnement propice au déploiement du partenariat, qui s'est traduit par des incitations politiques, institutionnelles et financières, la mise en pratique du nouveau paradigme qui touche le système de santé, se heurte à de nombreux freins. Freins auxquels je me suis confrontée dans mon propre parcours de ...