End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

Abstract

Intro -- Foreword -- Reference -- Preface -- About This Book -- Praise for End of Life and People with Intellectual and Developmental Disability -- Contents -- Notes on Contributors -- List of Figures -- List of Tables -- 1 Current and New Developments in Death, Dying and End-of-Life Care Policies and Practices -- Introduction -- Death, Dying and Place of Death in the Twenty-First Century -- What Is Palliative Care? -- Palliative Care in the Community -- Public Health Approaches to End-of-Life Care -- Advance Care Planning -- End-of-Life Decision-Making -- Assisted Dying and Palliative Sedation -- Conclusion -- References -- 2 Experience of End-of-Life Issues by People with Intellectual Disability -- Introduction -- The Experiences of People with Intellectual Disability -- What People with Intellectual Disability Say, Feel and Do About End-of-Life Issues -- Exclusion from End-of-Life Discussions and Activities -- The Death of Others -- Your Own Death -- Disclosure and Non-disclosure -- Reasons for Non-disclosure -- Dealing with Disclosure Issues -- Staff Readiness to Provide Support -- Active Participation in End-of-Life Research -- What People with Intellectual Disability Understand About End of Life? -- How Do People with Intellectual Disability Respond Emotionally to Discussing End of Life? -- Measurement Instruments Designed or Adapted Specifically for People with Intellectual Disability -- Commentary -- Reflection -- Reflection Questions -- Resources -- Self-Report Instruments -- References -- 3 Suicide and Autism: A Lifespan Perspective -- Autism -- Risk and Prevalence of Suicide Behaviour in Autism -- Intellectual Disability/intellectual Developmental Disorder and Suicide Risk -- Correlates, Risk and Protective Factors -- Dimensional Constructs -- Risk Assessment and Instruments -- Prevention and Service Access.