Book(electronic)1994

Justice and the human genome project

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Abstract

The essays gathered in this volume were among those presented at a conference titled "Justice and the Human Genome" held in Chicago in early November 1991. The goal of that conference, sponsored by the U.S. Department of Energy and the University of Illinois at Chicago, was to consider questions of justice as they are and will be raised by the human genome project, that ambitious multinational effort to map and sequence the entire human genome. To achieve its goal of identifying and elucidating the challenges of justice inherent in genomic research and its social applications, the conference drew together in one forum members from academia, medicine, and industry in order to sketch out central questions that will follow the emergence of genomic profiling capabilities