Suchergebnisse

Palliativmedizin und Hospizarbeit haben sich in den vergangenen Jahren in vielfältiger Weise entwickelt. Das hat auch dazu geführt, dass Sterben, Tod und Trauer in der Gesellschaft intensiver wahrgenommen und diskutiert werden. In der Begegnung und Begleitung von schwerkranken und sterbenden Menschen einschließlich ihres Umfelds sind Themen wie Schmerz, körperliche Symptome, psychosoziale Probleme, Erfahrungen von Leid, Abschied, Tod und Trauer allgegenwärtig. Eine wesentliche Aufgabe der im palliativen und hospizlichen Bereich Tätigen ist der Umgang mit Trauer. Das Handbuch klärt auf über die Möglichkeiten und Grenzen von Trauerbegegnung und Trauerbegleitung und gibt Antworten auf die zahlreichen Fragen zum Phänomen Trauer. Neben der Vermittlung theoretischen Grundwissens zum Verständnis von Trauer werden praktische Wege und Strategien zum Umgang mit Trauer gezeigt wie auch immer wieder auftauchende Fragen von Schuld, Verzweiflung, Sinnsuche und Sehnsucht besprochen.

The International Association for Hospice and Palliative Care developed a consensus-based definition of palliative care (PC) that focuses on the relief of serious health-related suffering, a concept put forward by the Lancet Commission Global Access to Palliative Care and Pain Relief. The main objective of this article is to present the research behind the new definition. The three-phased consensus process involved health care workers from countries in all income levels. In Phase 1, 38 PC experts evaluated the components of the World Health Organization definition and suggested new/revised ones. In Phase 2, 412 International Association for Hospice and Palliative Care members in 88 countries expressed their level of agreement with the suggested components. In Phase 3, using results from Phase 2, the expert panel developed the definition. The consensus-based definition is as follows: Palliative care is the active holistic care of individuals across all ages with serious health-related suffering due to severe illness and especially of those near the end of life. It aims to improve the quality of life of patients, their families and their caregivers. The definition includes a number of bullet points with additional details as well as recommendations for governments to reduce barriers to PC. Participants had significantly different perceptions and interpretations of PC. The greatest challenge faced by the core group was trying to find a middle ground between those who think that PC is the relief of all suffering and those who believe that PC describes the care of those with a very limited remaining life span.

Das Ziel der Herausgeber, ein Standardwerk zur ersten Orientierung wie auch zur Vertiefung zum Thema Sterbegleitung zu schaffen, wurde hier erreicht. Geordnet nach 8 Oberkapiteln werden in 43 längeren Beiträgen von Fachleuten - darunter Mediziner, Krankenschwestern, Juristen - tatsächlich alle relevanten Aspekte behandelt, neben Grundlagen der Sterbegleitung und Hospizarbeit auch die rechtliche Diskussion zur Sterbehilfe, Tod und Sterben in den Weltreligionen, der plötzliche Todesfall. Schmerztherapie, Trauer, der Tod von Kindern u.v.a. Mit Literaturangaben bei vielen Beiträgen, erschlossen durch ein Sachregister. Laut Vorwort konnten sich die Herausgeber nicht zu einer Vereinheitlichung der Texte entschließen, entsprechend inhomogen ist der Band: Neben persönlich gehaltenen Berichten aus der Begleitung mit zum Teil erschütternden Fallgeschichten stehen fachmedizinische Beiträge, z.B. zur Schmerztherapie. Entsprechend ist der Band aber auch vielfältig einsetzbar, neben Fachleuten können alle, die sich mit dem Thema auseinander setzen, hier fündig werden.

Long-term care insurance (LTCI) is emerging as the benefit of the 21st century as an aging population looks for ways to finance quality health care in the later years and protect their savings. LTCI reimburses costs associated with nursing facility care, assisted living, adult day care, personal services needed in the home, and hospice care. Millions of working Americans are primary caregivers for aging or ill loved ones. Working caregivers often have to come in late, leave early, take time off, decline promotions, choose early retirement, or leave work altogether. Such workplace accommodations cost employers $11 billion to $29 billion annually in lost productivity. LTCI enables employees to better care for their families. Employers, in turn, benefit in increased employee retention, well-being, morale, and productivity. LTCI is available for employees, their families, and retirees and is a no-cost way for employers to enhance benefits, with tax advantages for employers and employees.

Intro -- Foreword -- References -- Preface -- Contents -- Notes on Contributors -- List of Figures -- List of Tables -- Chapter 1: Introduction to Public Policy of ALS/MND -- Introduction -- What Is ALS/MND? -- Making the Diagnosis of ALS/MND: A Diagnosis of Exclusion -- Epidemiology of ALS/MND -- Genetics of ALS/MND -- Environmental Risk Factors -- Management of Symptoms -- Palliative Care, Hospice and End-of-Life Care -- Ethical Issues in ALS/MND Care -- Clinical Trials -- Genetic Testing -- Withholding and Withdrawal of Care -- Palliative Sedation and Assisted Dying -- Right to Try -- Public Policy Context -- Cross-cultural Studies -- Countries Selected -- Summary of Individual Chapter Objectives -- References -- Chapter 2: Public Policy in MND Care: The Australian Perspective -- Incidence, Prevalence and Deaths of MND in Australia -- Governmental Agencies Involved in Care -- Active MND Associations and Advocacy Groups -- Funding for Research and Care -- Proportion of Patients Who Live at Home vs. Institutional Care -- Composition and Support for Caregivers -- Access to Assistive Technologies -- Status of Multidisciplinary Team Care and Clinics -- "Right to Try" Legislation for ALS/MND Patients -- Genetic Testing of Patients with MND -- Place of Death: At Home, in Nursing Facility, Hospital or Hospice -- Access to Palliative and Hospice Care -- Legal Status of Advance Directives and Withholding or Withdrawing Life-Extending Interventions and Mechanical Support -- Legal Status of Euthanasia and Physician-Assisted Suicide -- Critical Factors for Understanding Policy Making in Australia -- Healthcare Structure and Funding Arrangements -- Geography -- Cultural Diversity -- Policy Changes Needed to Improve MND Care and Advance Research Support -- Government and the Bureaucracy -- Government and the Workforce -- Team-Based, Multidisciplinary Care.

Rachel specialises in palliative care and this book maps her journey into that particular specialism. Her extraordinary powers of empathy are part of what makes her the sort of doctor we would all want on hand for anyone we love, but also give her the ability to write sensitively and beautifully about painful subjects. Here Rachel tells her story - of how death was so conspicuously absent during her medical training, which was focused entirely on learning to save lives and was entirely wanting when it came to helping patients and their families to face death. She came to specialise in palliative medicine because it is the one speciality in which what matters is quality, not quantity of life. Dear Life is about how Rachel came to understand - as a child, as a doctor, as a human being - how best to help patients in the final stages of life, and what that might mean in practice. In the same year she started to work in a hospice, her own beloved father was diagnosed with terminal cancer. Always close to her father, it was largely his inspiration that had led her from journalism into re-training as a doctor, and it was stories he had told her as a child that were to prove formative when it came to be deciding what sort of medicine she would practice. But for all her professional exposure to dying, she remained a grieving daughter

Use your social work skills to advocate for more effective health care! Social Work in the Health Field: A Care Perspective, Second Edition updates this comprehensive guide to social work practice and policy issues in the health field. An easy-to-use textbook for graduate and undergraduate courses and a practical guide for social work practitioners, the book will help you meet the demands of the growing population of clients in nursing homes or hospice care and for the decline of traditional hospital-based social work. Complete with an instructor's manual to help you facilitate lectures, class

This case study traces the creation and evolution of Medicare hospice policy. The Medicare hospice benefit, created in 1982, emphasizes palliative rather than curative care. It focuses on quality of life for the dying patient and family and encompasses medical, psychological, and spiritual care. Because no standard hospice care practices existed before this benefit was implemented, Medicare rules almost exclusively dictated the structure and delivery of services. Despite initial concerns about low use, spending averaged 17 percent per year between 1991 and 2001, largely driven by increased enrollment, covered days, services provided, and inflation. A rich accumulation of research studies and analyses of specific aspects of the hospice program provides an opportunity for a retrospective analysis of the program's genesis, impact on health care delivery, and implications for future policy decisions.

The term "palliative care" has a negative connotation and may act as a barrier to early patient referrals. Rebranding has thus been proposed as a strategy to reduce the negative perceptions associated with palliative care. For example, using the term "supportive care" instead of "palliative care" in naming palliative care units has been proposed in several studies. In Taiwan, terms other than "palliative" and "hospice" are already widely used in the names of palliative care units. With this in mind, this study investigated the characteristics of palliative care unit names in order to better understand the role of naming in palliative care. Relevant data were collected from the Taiwan Academy of Hospice Palliative Medicine, the National Health Insurance Administration of the Ministry of Health and Welfare, and the open database maintained by the government of Taiwan. We found a clear phenomenon of avoiding use of the terms "palliative" and "hospice" in the naming of palliative care units, a phenomenon that reflects the stigma attached to the terms "palliative" and "hospice" in Taiwan. At the time of the study (September, 2016), there were 55 palliative care units in Taiwan. Only 20.0% (n = 11) of the palliative care unit names included the term "palliative," while 25.2% (n = 14) included the term "hospice." Religiously affiliated hospitals were less likely to use the terms "palliative" and "hospice" (χ2 = 11.461, P = .001). There was also a lower prevalence of use of the terms "palliative" and "hospice" for naming palliative care units in private hospitals than in public hospitals (χ2 = 4.61, P = .032). This finding highlights the strong stigma attached to the terms "palliative" and "hospice" in Taiwan. It is hypothesized that sociocultural and religious factors may partially account for this phenomenon.

This practicum report is a summary and reflection upon a Master of Social Work practicum completed at Victoria Hospice, supporting my desire to understand the role of a social worker within an interdisciplinary hospice palliative healthcare team. Several aspects of my practicum experience are explored through a literature review, embracing a biopsychosocial-spiritual model of practice. Included is a brief examination of Medical Assistance in Dying (MAiD) and its legislation in Canada. The knowledge gained from this practicum will guide my hospice palliative social work practice in northern BC, which in turn will provide a learning environment for future social work students wanting to specialize in this area of practice. ; Palliative Care

This practicum report is a summary and reflection upon a Master of Social Work practicum completed at Victoria Hospice, supporting my desire to understand the role of a social worker within an interdisciplinary hospice palliative healthcare team. Several aspects of my practicum experience are explored through a literature review, embracing a biopsychosocial-spiritual model of practice. Included is a brief examination of Medical Assistance in Dying (MAiD) and its legislation in Canada. The knowledge gained from this practicum will guide my hospice palliative social work practice in northern BC, which in turn will provide a learning environment for future social work students wanting to specialize in this area of practice. ; Palliative Care

This article examines the intersection between masculinity, military culture, and hospice and palliative care (HPC). The authors conducted a narrative literature review, supplemented with clinical annotations, to identify the impact of masculinity and military culture on the following topics salient to end-of-life care with older male veterans: pain management, mental health, coping, communication, autonomy and respect, and family roles. Findings suggest that traits associated with masculinity and military culture have an influence on the end-of-life process and HPC for older male veterans. Specifically, results suggest that older male veterans may deny or minimize physical pain, decline mental health treatment, utilize maladaptive coping strategies, avoid emotional conversations, struggle to manage perceived shifts in autonomy, and experience challenges negotiating changing family roles. The authors provide clinical recommendations for providers across various disciplines to address the aforementioned concerns with older male veterans in HPC. Overall, information presented in this article may be an important contribution to the literature for building cultural competencies with older male veterans and has the potential to improve the delivery of HPC for veterans and their families.