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Cover -- Title Page -- Copyright -- Contents -- Foreword -- Preface -- 1. What Makes New Science and Technology Meaningful to Society? -- 1.1. Motivation and objectives -- 1.2. The need for orientation in NEST fields -- 1.3. Short propaedeutic -- 1.3.1. The meaning of "sociotechnical meaning" -- 1.3.2. NEST: new and emerging science and technologies -- 1.3.3. Techno-visionary futures -- 1.4. A brief guide to this book -- 1.4.1. The flow of argumentation -- 1.4.2. The chapters -- 1.4.3. The achievements -- 2. Extending the Object of Responsibility Assessments in RRI -- 2.1. Motivation and overview -- 2.2. Some impressions of RRI debates so far -- 2.3. A pragmatic view on the notion of responsibility -- 2.3.1. The concept of responsibility -- 2.3.2. The EEE approach to responsibility -- 2.3.3. Responsibility assessment -- 2.4. The object of responsibility debates in RRI so far -- 2.5. The object of responsibility debates in RRI: an extension -- 2.6. Concluding remarks -- 3. Assessing Responsibility by Considering Techno-Futures -- 3.1. Responsibility assessments: introduction and overview -- 3.2. Brief remarks on the epistemology of prospective knowledge -- 3.2.1. The epistemologically precarious character of prospective knowledge -- 3.2.2. Futures as social constructs -- 3.3. Responsibility for NEST: the orientation dilemma -- 3.3.1. Challenges to providing orientation in NEST fields -- 3.3.2. The orientation dilemma -- 3.4. Three modes of orientation -- 3.4.1. Prediction and prognostication: mode 1 orientation -- 3.4.2. Scenarios and the value of diversity: mode 2 orientation -- 3.4.3. The value of divergence: mode 3 orientation -- 3.5. The hermeneutic approach to techno-visionary futures -- 4. Definitions and Characterizations of NEST as Construction of Meaning -- 4.1. Motivation and point of departure -- 4.2. Some observations from NEST debates

It's important that research with indigenous peoples is ethically and methodologically relevant. This volume looks at challenges involved in this research and offers best practice guidelines to research communities, exploring how adherence to ethical research principles acknowledges and maintains the integrity of indigenous people and knowledge.

Research participants who have cognitive disabilities and differences may be considered a vulnerable population. This volume provides multidisciplinary insights into the ethical aspects of research that includes these populations, including conditions such as intellectual disability, autism, mild cognitive impairment, and psychiatric diagnoses.

Research Ethics in the Real World highlights the links between research ethics and individual, social, professional, institutional, and political ethics. Helen Kara considers all stages of the research process and provides guidance for quantitative, qualitative, and mixed-methods researchers about how to act ethically throughout.

This book examines the ethical and methodological issues that researchers working in conflict and other insecure environments regularly face. Based on in-depth research carried throughout Africa, the contributors discuss how they adapt to working in volatile and often dangerous fieldsites.

FrontMatter -- Acknowledgments -- Contents -- Boxes, Figures, and Tables -- Preface -- Executive Summary -- 1 Introduction -- 2 Housing and Health -- 3 Grimes v. Kennedy Krieger Institute: Revisiting the Ethical Issues -- 4 Characteristics of Housing Health Hazards Research -- 5 Community Involvement -- 6 Parental Permission, Consent, and Payment -- 7 Researchers' Responsibilities -- 8 Research Oversight -- References and Bibliography -- Appendix Biographical Sketches of Committee Members and Staff.

This international and multi-disciplinary edited collection unpacks some of the ethical complexities of conducting research with children and young people. The chapters in the volume offer an applied perspective to navigating contemporary and complicated ethical issues that can arise in the field of childhood and youth-centred research.

This is the first book published that specifically examines questions of ethics and advocacy that arise in conducting research on homelessness, exploring the issues through the deeply personal experiences of some of the field's leading scholars. By examining the central queries from a broad range of perspectives, the authors presented here draw upon years of rich investigations to generate a framework that will be instructive for researchers across a wide spectrum of areas of inquiry

Prestudy Planning -- The Evolution of Protections for Research Participants -- Governing Principles -- Clinical Trials -- Recruitment -- Issues Arising during the Study -- Confidentiality -- Potential Conflicts -- Scientific Misconduct -- Following the Study -- Participants and Records -- Publication and Dissemination of Research Results -- New Roles for the HIV Researcher -- An Overview of the Legal System -- The HIV Researcher as an Expert Witness -- The HIV Researcher and Legislative Advocacy -- The HIV Researcher in the Regulatory Arena Conclusion.

Intro -- Dedication -- Acknowledgements -- Contents -- Abbreviations -- Chapter 1: Introduction -- 1.1 Perinatal HIV Prevention Trials -- 1.2 The SUPPORT Study -- 1.3 Hospital Quality Improvement Research -- 1.4 Henrietta Lacks -- 1.5 The Facebook Study -- 1.6 Overview of This Book -- Chapter 2: Historical Background -- 2.1 Research with Human Subjects Before World War II -- 2.2 Research with Human Subjects During World War II -- 2.3 Research with Human Subjects After World War II -- 2.4 The Belmont Report -- 2.5 The U.S. Federal Regulations -- 2.6 Continuing Scandals and Controversies -- 2.7 Concerns About Integrity in Biomedical Research -- 2.8 Jesse Gelsinger's Death -- 2.9 Concerns About Research on Human Biosamples -- 2.10 Conclusion: Human Research Regulations and Guidelines in Historical Context -- Chapter 3: Moral Theory -- 3.1 What Is a Moral Theory? -- 3.2 Moral Subjectivism and Relativism -- 3.3 Classifying Moral Theories -- 3.4 Divine Command Theory -- 3.5 Virtue Ethics -- 3.6 Natural Law Theory -- 3.7 Utilitarianism -- 3.8 Kantianism -- 3.9 Natural Rights Theories -- 3.10 Pluralistic Theories -- 3.11 Conclusion: Toward a Decision-Making Framework -- Chapter 4: Trust as a Foundation for Research with Human Subjects -- 4.1 What Is Trust? -- 4.2 Trust in Research Involving Research with Human Subjects -- 4.3 Trust as a Foundation for the Ethics of Research with Human Subjects: Some Alternative Views -- 4.4 Trust as a Foundation for the Ethics of Research with Human Subjects: My View -- 4.5 Promoting Trust in Research with Human Subjects -- 4.6 The Relationship Between Moral Principles and Research Regulations and Guidelines -- 4.7 The Role of Trust in Resolving Ethical Dilemmas in Research with Human Subjects -- 4.8 Objections to My View -- 4.9 Conclusion -- Chapter 5: Informed Consent -- 5.1 Trust and Informed Consent

Front Matter -- Preface -- Contents -- Introduction: Privacy Issues in Research -- The Potential-and the Threat-of Genetic Information -- Can We-and Should We-Ensure Genetic Privacy? -- Handling Genetic Data in the Laboratory -- Institutional Safeguards -- What, If Anything, Should the Federal Government Do? -- APPENDIX A Program and Discussion Questions -- APPENDIX B Agenda -- APPENDIX C A Comment by Frederick R. Anderson -- APPENDIX D Participant Biographies.

Cover -- Contents -- 1 Introduction -- Self-study aids -- Part one: the ethics proposal and research methods -- Part two: ethical issues by theme -- Part three: ethical issues once the research has been completed -- Part One: The Ethics Proposal and Research Methods -- 2 Ethical Theories -- Introduction -- 3 Ethical Issues at the Proposal Stage -- Introduction -- Identifying ethical issues -- Research in other countries -- 4 Ethical Issues in Participant Observation and Ethnographic Research -- Introduction -- Disadvantages of using participant observation -- Limitations of using participant observation -- Areas of ethical concern -- Reciprocity and collaboration with the community -- Consent in ethnographic research -- Retaining anonymity -- Building and managing relationships with participants -- Disclosure of information -- Advantages of participatory research methods -- Disadvantages of participatory research methods -- Issues of ownership -- 5 Ethical Issues in Interviews and Focus Groups -- Introduction -- Interviews as a research method -- Ethical issues when conducting the interview or focus group -- The interview relationship -- Focus groups -- Maintaining confidentiality -- Anonymity -- Awareness of libel and defamation -- Interviewing relatives -- Interview data -- Ethical issues after the interviews and focus groups -- 6 Ethical Issues in Questionnaires -- Introduction -- Choosing questionnaires as a research method -- Using the Web in longitudinal surveys -- Ethical aspects of the design and process of questionnaires -- Anonymity and confidentiality in questionnaire-based research -- Anonymisation -- Data withdrawal -- Once the research has been completed: analysing and disseminating results -- Part Two: Ethical Issues by Theme -- 7 Ethical Issues in Online Research -- Introduction.

This book is for anyone interested in research involving humans, such as researchers, potential participants, ethics committees and institutional review boards, university educators and students, and policy makers. It analyses the limitations of respect for autonomy that lead to under-research of vulnerable groups, and explores new ethical approaches