Suchergebnisse

Drawing on a small-scale qualitative study of the life experiences of adults with cystic fibrosis (CF) in the UK, this paper explores the formal and informal supports used by the adults to achieve and maintain a lifestyle of their choice. Many adults with CF do not have visible impairments and are faced with deciding to disclose CF so they can claim the formal supports of independent living, or presenting as 'normal' and forfeiting the formal supports which may accompany disclosure. At an individual level, both strategies can offer a route to a 'normal life'. However, wider analysis of independent living and formal and informal supports in the lives of adults with CF is overdue; this paper presents an initial such analysis in the context of the UK coalition government's vision for adult social care and the voluntarism of 'Big Society'.

Systematic mapping of literature creates searchable datasets and conceptual maps of available evidence and helps to identify gaps in the evidence base. It provides a rigorous and transparent method to develop comprehensive data sets of the complex literature. In this paper we share our experiences of developing a systematic map to locate and describe the available literature to inform further the empirical stage of a research project which explored the experiences and meaning of pain with older people across these five different faith groups, namely: Christianity, Judaism, Islam, Hinduism and Sikhism. The six stages of the development of the map are described and the complexity involved in developing the map in this area where intersectionality is a major issue. This refers to the overlap between ethnicity, faith and culture as well as other key variables such as gender and socio-economic status.