Suchergebnisse

BackgroundThis study reports the experiences of developing and pre‐testing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) for self‐report by people with intellectual disabilities.MethodsThe study has combined survey development and pre‐testing methods with approaches to create accessible information for people with intellectual disabilities. A working group assisted researchers in identifying appropriate question formats, pictures and wording. Focus groups and cognitive interviews were conducted to test various iterations of the instrument.ResultsSubstantial changes were made to the questionnaire, which included changes to illustrations, the wording of question stems and response options.ConclusionsThe process demonstrated the benefits of involving people with intellectual disabilities in the design and testing of data collection instruments. Adequately adapted questionnaires can be useful tools to collect information from people with intellectual disabilities in survey research; however, its limitations must be recognized.

Objective: The aim of this study was to validate a new generic patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), among a diverse sample of health and social care users in England. Design: Cross-sectional validation survey. Data were collected through postal surveys (February 2016 - January 2017). The sample included a health care cohort of patients recruited through primary care practices, and a social care cohort recruited through local government bodies that provide social care services. Participants: 1,211 participants (24% confirmed social care recipients) took part in the study. Health care participants were recruited on the basis of having one of eleven specified LTCs, and social care participants were recruited on the basis of receiving social care support for at least one LTC. The sample exhibited high multi-morbidity, with 93% reporting two or more LTCs and 43% reporting a mental health condition. Outcome measures: The LTCQ's construct validity was tested with reference to the EQ-5D (5-level version), the Self-efficacy for Managing Chronic Disease scale, an Activities of Daily Living scale, and the Bayliss burden of morbidity scale. Results: Low levels of missing data for each item indicate acceptability of the LTCQ across the sample. The LTCQ exhibits high internal consistency (Cronbach's α = 0.95) across the scale's 20 items and excellent test-retest reliability (ICC = 0.94, 95% CI 0.93 to 0.95). Associations between the LTCQ and all reference measures were moderate to strong and in the expected directions, indicating convergent construct validity. Conclusions: This study provides evidence for the reliability and validity of the Long-Term Conditions Questionnaire, which has potential for use in both health and social care settings. The LTCQ could meet a need for holistic outcome measurement that goes beyond symptoms and physical function, complementing existing measures to fully capture what it means to live well with LTCs.

This unique book brings together, for the first time, advocates and critics of the personalisation agenda in English social care services to debate key issues relating to personalisation. Perspectives from service users, practitioners, academics and policy commentators come together to give an account of the practicalities and controversies associated with the implementation of personalised approaches. The conclusion examines how to make sense of the divergent accounts presented, asking if there is a value-based approach to person-centred care that all sides share. Written in a lively and accessible way, practitioners, students, policy makers and academics in health and social care, social work, public policy and social policy will appreciate the interplay of rival arguments and the way that ambiguities in the care debate play out as policy ideas take programmatic form

Drawing together a mix of internationally renown contributors, Social Policy Review 28 provides an up-to-date and diverse review of the best in social policy scholarship. With specially commissioned reviews of pensions, health care, conditionality and housing this book examines important debates in the field. A themed section on personalised budgets examines the introduction and consequences of personalisation of funding from the perspectives of the UK, Australia and Norway and considers the impact of such funding on vulnerable groups such as the elderly and the homeless. Published in association with the SPA this comprehensive discussion and analysis of the current state of social policy will be of keen interest to academics and students

The second edition of The Nonprofit Sector provides a novel, comprehensive, cross-disciplinary perspective on nonprofit organizations and their role and function in society. This new, updated edition keeps pace with industry trends and advances as well as with the changing interests and needs of students, practitioners, and researchers. As before, every chapter has been written to stand on its own, providing sufficient background for the reader to follow the argument without referring to other chapters-allowing readers to selectively choose those chapters that are most relevant to a particular course, interest, or issue. The Nonprofit Sector: A Research Handbook includes twenty-seven new or updated chapters. Relevant chapters from the previous edition have been refined, and new chapters have been added to fill in gaps, making this the authoritative reference for all who want an accessible, perceptive, and all-inclusive rendering of the nonprofit sector. The contributors-prominent scholars in their respective fields-carefully reflect upon the variety of changes in the rapidly growing world of nonprofits, examining a wide array of organizations, international issues, social science theories, and philanthropic traditions and covering a broad range of topics including the history and scope of nonprofit activities in the United States and abroad, the relation of nonprofits to the marketplace, government-nonprofit issues, key activities of nonprofits, aspects of giving to and joining nonprofits, and nonprofit mission and governance. For anyone who wishes to have a deeper understanding of the nonprofit sector, this remains the essential guide.From reviews of the first edition:"[This book] is the closest thing to a 'bible' of nonprofit sector research and state-of-the-art social science knowledge as currently exists."-Dennis R. Young, Public Administration Review"Invaluable to anyone currently engaged in research or policy decisions involving nonprofit organizations or, for that matter, considering becoming involved."-Jerald Schiff, Journal of Policy Analysis and Management"An exceptionally useful resource."-Mark D. Hughes, The Philanthropist