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Autism, Through a Social Lens
In: Contexts / American Sociological Association: understanding people in their social worlds, Band 8, Heft 2, S. 40-45
ISSN: 1537-6052
Since the early 1990s the United States has seen a 10-fold increase in autism diagnoses. In 2007, 1 in 150 children were diagnosed with it, according to the Centers for Disease Control.
Autism, Advocacy Organizations, and Past Injustice
Fruitful connections can be made between Disability Studies and post-conflict transitional justice, two areas of scholarship concerned with human rights and the impacts of violence that have rarely been brought into critical dialogue with one another. For over a decade, one of the world's largest and best-known autism organizations, the US-based Autism Speaks, has been subject to criticisms and boycotts by autistic self-advocates and their allies. This article describes the forms of harm attributed to the organization, arguing that these harms can be viewed through the lens of what transitional justice scholar Jill Stauffer calls "ethical loneliness": "the experience of being abandoned by humanity compounded by the experience of not being heard" (2015b, 1). I argue that Autism Speaks's recent reforms and responses to criticism, in focusing largely on present-day organizational policies and structures, fail to grasp the full temporal dimensions of ethical loneliness or the importance of addressing past injustice.
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Beyond the Spectrum: Rethinking Autism
The "spectrum" has become the dominant metaphor for conceptualizing autism, with fundamental consequences for notions of disability, diversity, and normality. In this article, we draw on ethnographic research with autistic communities to explore how the notion of the autism spectrum has become a focus of explicit identification, reflection, and contestation. To further this inquiry, we place these debates into conversation with earlier debates regarding another spectrum—the Kinsey Scale, a "spectrum" for conceptualizing sexual orientation that first appeared in 1948 but has been critiqued since the 1970s. How might responses to the Kinsey Scale (like the Klein Grid) contribute to rethinking the autism spectrum? This is a question about the cultural and political implications of metaphors and conceptual models. It is of broad importance because the spectrum metaphor is being extended to a range of conditions beyond autism itself. Our goal is thus to build on insights from sexuality studies as well as the insights of autistic persons, advocates, and researchers who wish to forestall the naturalization of "the spectrum." In doing so, we seek to contribute to a discussion of what alternative frameworks might bring to questions of social justice, ability, and human flourishing.
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Behavioral Treatment for Children with Autism
Autism is a complex neurodevelopmental disorder representing a heterogeneous group of individuals with similar symptomatologies and multiple biologic etiologies. More children will be diagnosed with autism this year than with AIDS, diabetes & cancer combined. Government statistics suggest the prevalence rate of Autism is increasing, around 10-17 percent annually. Autism costs the nation over $35 billion per year, a figure that is expected to increase significantly in the next decade. In efforts to remedy this devastating epidemic, many treatments and interventions are being developed. Among these interventions, Applied Behavioral Analysis (ABA) is probably the best-known and best-researched treatment available for autism spectrum disorders. This article will very briefly describe the ABA behavioral treatment process for children with autism, and review several key studies on its effectiveness. Due to the complexity of ABA principles, techniques, and their application, this article is not intended to be a detailed or definitive explanation on the subject.
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Autism Children's App using PECS
In: Annals of Emerging Technologies in Computing (AETiC), Print ISSN: 2516-0281, Online ISSN: 2516-029X, pp. 7-16, Vol. 2, No. 1, 1st January 2018, Published by International Association of Educators and Researchers (IAER)
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Autism Spectrum Disorders and Hate Crime
It is estimated 15% of adults worldwide have a disability (Hughes et al, 2012), with Autism Spectrum Disorders (ASD), affecting an estimated 1.1% of the adult population in England (Brugha et al, 2012). This article offers a perspective from the United Kingdom (UK), where there is significant legislation in place relating to ASD and other disabilities that are aimed age equality, inclusion and protection of rights as citizens. This article is to be published in Advances in Autism http://www.emeraldinsight.com/loi/aia
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The Changing Epidemiology of Autism
In: Journal of applied research in intellectual disabilities: JARID, Band 18, Heft 4, S. 281-294
ISSN: 1468-3148
This article reviews epidemiological studies of autism and related disorders. Study designs and sample characteristics are summarized. Currently, conservative prevalence estimates are: 13/10000 for autistic disorder, 21/10000 for pervasive developmental disorders not otherwise specified, 2.6/10000 for Asperger disorder, and 2/100000 for childhood disintegrative disorder. Newer surveys suggest that the best estimate for the prevalence of all autistic spectrum disorders is close to 0.6%. A detailed analysis of time trends in rates of pervasive developmental disorders in then provided. It is concluded that most of the increase is accounted for by changes in diagnostic concepts and criteria, and by improved identification. Whether or not there is, in addition to these factors, a true increase in the incidence of the disorder cannot be examined from available data.
Staff training in autism: The one-eyed wo/man…
In: Dillenburger , K , McKerr , L , Jordan , J-A & Keenan , M 2016 , ' Staff training in autism: The one-eyed wo/man…. ' , International Journal of Environmental Research and Public Health , vol. 13 , no. 7 , 716 . https://doi.org/10.3390/ijerph13070716
Having well-trained staff is key to ensuring good quality autism services, especially since people affected with autism generally tend to have higher support needs than other populations in terms of daily living as well as their mental and physical health. Poorly-trained staff can have detrimental effects on service provision and staff morale and can lead to staff burn-out as well as increased service user anxiety and stress. This paper reports on a survey with health, social care, and education staff who work within the statutory autism services sector in the UK that explored their knowledge and training with regards to autism. Interview data obtained from staff and service users offer qualitative illustrations of survey findings. Overall, the findings expose an acute lack of autism specific training that has detrimental impacts. At best this training was based on brief and very basic awareness raising rather than on in-depth understanding of issues related to autism or skills for evidence-based practice. Service users were concerned with the effects that lack of staff training had on the services they received. The paper concludes with a discussion of policy routes to achieving quality staff training based on international best practice. The focus is on improving the quality of life and mental health for services users and staff as well as making potentially significant cost-savings for governments.
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Housing Options — developing autism services
In: Housing, care and support, Band 5, Heft 3, S. 10-17
ISSN: 2042-8375
Housing Options is an independent advisory service for people with learning disabilities, their relatives and housing and care providers. Housing Options wanted to promote the development of opportunities for those with autism, to help those growing up and wanting their own home. A two‐year project has begun with help from the Shirley Foundation, to review need, demand and the range of existing services, look at what services local authorities, providers and families want and provide information and guidance to help with service development.
Anticipatory concern: a study in autism
In: Developmental science, Band 12, Heft 2, S. 249-263
ISSN: 1467-7687
AbstractThere has been substantial research on children's empathic responsiveness towards distressed people, and on the limited responsiveness of children with autism. To date, however, there have not been experimental studies to test how far children show concern towards someone who might beexpectedto feel badly, when that person hasnot(yet) expressed any negative feelings. We tested matched groups of children with autism and learning disability, and typically developing children of similar verbal mental age (approximately 6 years), with a novel procedure in which participants witnessed one person (E1) tearing the drawing of another (E2). In a comparison condition, a blank card was torn. In the torn‐drawing condition, as predicted, fewer participants with autism orientated towards E2 with an immediate look, and as a group, they were rated as showing less concern for, and fewer concerned looks towards, E2. We discuss possible implications for theoretical perspectives on the early development of empathy in typically as well as atypically developing children.
How 'fake news' affects autism policy
In: Keenan , M & Dillenburger , K 2018 , ' How 'fake news' affects autism policy ' , Societies , vol. 8 , no. 2 , 29 . https://doi.org/10.3390/soc8020029
Since autism was first recognised, prevalence has increased rapidly. The growing economic as well as social cost to families and society can only be mitigated by effective interventions and supports. It is, therefore, not surprising that there is much heated debate and most governments have developed public policies to address the management of autism. This paper describes how well-known 'propaganda' techniques, that have become prevalent in the helping professions have been used to influence autism policies by spreading 'fake news' about the scientific discipline of Applied Behaviour Analysis (ABA). Over the past 40–50 years, meaningful evidence has accrued showing that interventions based on ABA can help people with autism reach their potential. In view of this, nearly all of North America has laws to mandate that ABA-based interventions are available through their health care systems. In contrast, across Europe there are no such laws. In fact, the National Institute for Health and Care Excellence (NICE), the body guiding health and social policy in the UK, concluded that it could not find any evidence to support ABA, and therefore could not recommend it. This paper addresses the reasons for these diametrically opposed perspectives.
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Autism: perspectives from Africa. Volume 1
In: Routledge/UNISA Press series
"This book is written at a time of a paradigm shift in the African continent where dependence on western epistemologies and ontologies are giving way to African indigenous knowledge systems. Africa has been an importer of knowledge from the west since time immemorial and this book contributes to the body of knowledge on autism spectrum disorder (ASD) from the African perspective. As a result, decoloniality and Inclusive Education have gained traction within the academic discourse, with University of South Africa (UNISA) hosting decoloniality annual conference and a summer school to stimulate academic discussions and debates with a focus on African indigenous knowledge systems and theoretical lenses as opposed to the western epistemologies. The book also demystifies some of the misconceptions that children with ASD are a curse and punishment from God or gods. Among others, Ubuntu seems to be the dominant theoretical framework underpinning some of the research studies reported in this book."--
Autism awareness and criminal justice
In: Probation journal: the journal of community and criminal justice, Band 65, Heft 4, S. 447-449
ISSN: 1741-3079
Of People, Curves, and Autism
In: Science & society: a journal of Marxist thought and analysis, Band 65, Heft 3, S. 277-285
ISSN: 0036-8237