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In: End-Of-Life Care: a
In: End-of-Life Care: A Series
Many hospice social workers must address spiritual issues with their clients, but do not feel competent to do so effectively. This targeted volume draws upon multidisciplinary theory and research to advance a relational model of spiritually sensitive hospice care. The book will help readers elevate their spiritual competence and foster a relationship with their clients that will enrich the experience for all involved. Spirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client's spiritual needs and resources, as well as signs of spiritual suffering. It also discusses religious and spiritual practices that clients may use to enhance their spiritual coping. Spirituality and Hospice Social Work stresses the need for interdisciplinary collaboration with other members of the hospice team, along with the value of maintaining professional ethical standards when addressing spiritual issues. Throughout, the importance of spiritual sensitivity and its effect upon client well-being is emphasized
In: Practical theology, Volume 12, Issue 2, p. 158-174
ISSN: 1756-0748
In: Journal of family nursing, Volume 25, Issue 2, p. 190-218
ISSN: 1552-549X
End-of-life caregiving is a highly stressful experience often fraught with conflict and tension. However, little is known about the ways family conflict manifests for informal caregivers of home hospice patients (IHCs). Framed by relational dialectics theory, the purpose of this study was to provide nurses and other health care professionals with an empirical understanding of how IHCs experience family conflict and tensions associated with caregiving. A second aim was to determine what strategies IHCs use to manage these family conflicts. Data used in this qualitative secondary analysis were originally collected as part of a randomized clinical trial of an IHC support intervention. Based on thematic analysis of data from 25 IHCs who reported family conflict, a conceptual model of caregiver resilience was developed from the themes and categories that emerged during the coding stage. Autonomy was identified as a central tension. IHCs used several strategies to address family conflict including communication, formal support, and emotional self-care.
From rites to rights of passage : ideals, politics, and the evolution of the American hospice movement / Joy Buck -- Hospice care as a moral practice : exploring the philosophy and ethics of hospice care / Timothy W. Kirk -- The pharmacist as an integral member of the hospice interdisciplinary team / R. Timothy Tobin -- The continuingly evolving role of the hospice medical director / Joan Harrold -- The interdisciplinary team integrating moral reflection and deliberation / Terry Altilio and Nessa Coyle -- Ethical issues in the care of infants, children, and adolescents / Marcia Levetown and Stacy Orloff -- The patient-family dyad as interdependent unit of hospice care : toward an ethical justification / Patrick T. Smith -- Inpatient hospice care : organizational and ethical considerations / Tara Friedman -- Ethical issues associated with hospice in nursing homes and assisted living communities / Jean C. Munn and Sheryl Zimmerman -- Cardiopulmonary resuscitation in hospice : ethically justified or an oxymoron? / Muriel R. Gillick -- Moral meanings of physician-assisted death for hospice ethics / Courtney S. Campbell -- Ethics committees for hospice : moving beyond the acute care model / Jennifer Ballentine and Pamela Dalinis -- Design for dying : new directions for hospice and end-of-life care / Bruce Jennings.
This volume identifies and explores ethical themes in the structure and delivery of hospice care in the United States. As the fastest growing sector in the US health care system, in which over 40% of patients who die each year receive care in their final weeks of life, hospice care presents complex ethical opportunities and challenges for patients, families, clinicians, and administrators. Thirteen original chapters, written by 17 hospice experts, offer guidance and analysis that promotes best ethical practice for hospice organisations and professionals
The Hospice Companion is a guide to the processes of care during the intensive, interpersonal experiences of hospice work. This resource highlights the mission and values of modern-day hospice through the individual and combined efforts of the field's most valuable asset, the hospice professional.
The article considers and covers the approaches of the development of palliative and hospice care in Ukraine, namely the departments of palliative and hospice medical institutions have extremely limited resources and are not able to provide patients with even the most necessary . An important problem is the creation of a system of personnel training in Ukraine that is involved in providing the service of palliative and hospice care. The duty of the state to ensure access to palliative care for all patients, regardless of age, the nosological category of the disease, social status, nationality, religious and political beliefs, place of residence, etc. ; У статті розглянуто та висвітлено питання, повязані з розвитком паліативної та хоспісної допомоги в Україні, а саме, відділення паліативного та хоспісних лікувально-профілактичних закладів є вкрай обмежені ресурси та не мають можливості забезпечити хворих навіть найнеобхіднішим. Важливою проблемою є створення в Україні системи підготовки кадрів, які беруть участь у наданні послуг паліативної та хоспісної допомоги. Обов'язок держави забезпечити доступ до паліативної допомоги всім пацієнтам, незалежно від віку, нозологічної категорії захворювання, соціального статусу, національності, релігійних та політичних переконань, місця перебування тощо. Якщо суспільство вважає себе цивілізованим, то неодмінно зобов'язане подбати про те, щоб невиліковно хворі отримали якісний і належний догляд. Байдуже суспільство немає майбутнього!
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The article considers and covers the approaches of the development of palliative and hospice care in Ukraine, namely the departments of palliative and hospice medical institutions have extremely limited resources and are not able to provide patients with even the most necessary . An important problem is the creation of a system of personnel training in Ukraine that is involved in providing the service of palliative and hospice care. The duty of the state to ensure access to palliative care for all patients, regardless of age, the nosological category of the disease, social status, nationality, religious and political beliefs, place of residence, etc. ; У статті розглянуто та висвітлено питання, повязані з розвитком паліативної та хоспісної допомоги в Україні, а саме, відділення паліативного та хоспісних лікувально-профілактичних закладів є вкрай обмежені ресурси та не мають можливості забезпечити хворих навіть найнеобхіднішим. Важливою проблемою є створення в Україні системи підготовки кадрів, які беруть участь у наданні послуг паліативної та хоспісної допомоги. Обов'язок держави забезпечити доступ до паліативної допомоги всім пацієнтам, незалежно від віку, нозологічної категорії захворювання, соціального статусу, національності, релігійних та політичних переконань, місця перебування тощо. Якщо суспільство вважає себе цивілізованим, то неодмінно зобов'язане подбати про те, щоб невиліковно хворі отримали якісний і належний догляд. Байдуже суспільство немає майбутнього!
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In: Oxford American handbooks
Cover -- Series -- Oxford American Handbook of Hospice and Palliative Medicine and Supportive Care -- Copyright -- Contents -- Contributors -- 1 Definitions and Key Elements in Palliative and Supportive Care -- 2 Symptom Assessment -- 3 Clinical Decision-Making -- 4 Pain Assessment and Management -- 5 Fatigue -- 6 Cachexia -- 7 Dehydration -- 8 Anxiety and Depression -- 9 Sleep Disturbance -- 10 Chronic Nausea and Vomiting -- 11 Constipation and Bowel Obstruction -- 12 Delirium -- 13 Clinical Issues Related to Palliative Sedation -- 14 Breathlessness -- 15 Emergencies in Palliative Care
In: SUNY series in religious studies
Religious Understandings of a Good Death in Hospice Palliative Care -- Religious Understandings of a Good Death in Hospice Palliative Care -- Contents -- Acknowledgments -- Introduction -- Part I: Religious Understandings of a Good Death -- Chapter 1: Cicely Saunders and the Development of Hospice Palliative Care -- Chapter 2: "Like a Ripe Fruit Separating Effortlessly from Its Vine" Religious Understandings of a Good Death: Hinduism -- Chapter 3: Welcoming an Old Friend: Buddhist Perspectives on Good Death -- Chapter 4: Muslim Perspectives on a Good Death in Hospice and End‑of‑Life Care -- Chapter 5: Tradition and Change in Jewish Ideals Regarding a "Good" Death -- Chapter 6: Dying Well in Christianity -- Chapter 7: Chinese Religions and Hospice Care -- Part II: Case Studies -- Chapter 8: Buddhist Hospice Care in Thailand -- Chapter 9: The Ugandan Way of Living and Dying -- Chapter 10: Punjabi Extended Family Hospice Care -- Chapter 11: Seeking Physical, Cultural, Ethical, and Spiritual "Safe Space" for a Good Death: The Experience of Indigenous Peoples in Accessing Hospice Care -- Chapter 12: Caring for Children in Hospice and Palliative Care: The Spiritual/Religious Dimension -- Chapter 13: Interfaith Chaplaincy in Hospice Palliative Care -- Conclusion -- Glossary of Terms and Abbreviations -- Contributors -- Index.
Cover -- Half Title -- Title Page -- Copyright Page -- Dedication -- Table of Contents -- List of Image Credits -- Acknowledgements for Second Edition -- 1 A New World of Palliative and Social Care -- The Century of the Child and the Century of the Elderly -- A Duty of Care -- On Being at Home -- An Architecture that Rises to the Occasion -- Hospices -- Maggie's Centres -- Care Homes & -- Almshouses -- The New Almshouse Movement -- Retirement Villages -- Co-Housing in Europe -- 2 A House at the End of Life -- Life and Death on the Public Ward -- The Right to a Good Death -- The Rise of the Hospice Movement -- Care, Architecture, and the Passing of Time -- The Poetics of Space: Studied Neutrality or a Sense of Occasion? -- Evidence-Based Design -- 3 Be Kind Quickly: How the Modern Hospice Movement Changed (Nearly) Everything -- Beginnings and Endings -- A Darker Side to Architectural History -- A Pattern Book for Shelter and Care -- Hospitals (and Hospices) Learning From Hotels -- Physical, Emotional, Social, and Spiritual Care -- 4 The Brief is Everything -- Behind High Walls -- 'The Brief is Everything' -- The Cork Brief -- The Hospice Opens: Squeezing the Very Last Drop From Life -- New Hospice of St Francis, Berkhamsted, UK -- Other Design Guidelines -- Programme for The Good Hospice in Denmark -- Maggie's Architectural Brief -- Lessons for Hospitals -- 5 Public Faces and Private Places -- Fitting Into the Landscape -- Locating Hospices Close to Acute Hospitals -- Location Efficiency -- The Public Face of Hospice Architecture -- Car Parking -- First Impressions -- 6 Everything Gathered in One Room -- From the Cell to the Open Ward -- From the Open Ward to the Private Room -- Rooms: Coming, Going and Inhabiting -- The Flexible Room -- 7 Open to the World and to Life -- Case Study 1: St Wilfrid's Hospice, Eastbourne -- The Gardens.