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Working paper
Banking on the Human Genome Project*
In: Canadian Review of Sociology/Revue canadienne de sociologie, Band 44, Heft 2, S. 175-200
ISSN: 1755-618X
The Human Genome Project and eugenic concerns
The U.S. Human Genome project is the largest scientific project funded by the federal government since the Apollo Moon Project. The overall effect from this project should be of great benefit to humankind because it will provide a better understanding both of single gene defects and multifactorial or familial diseases such as diabetes, arteriosclerosis, and cancer. At first this will lead to more exact ways of screening and diagnosing genetic disease, and later it will lead, in many if not most instances, to specific genetic cures. However, in the past, in both the U.S. and German eugenic movements genetic information has been misused. Hopefully, by remembering and understanding the past injustices and inhumanity of negative eugenics, further misuse of scientific information can be avoided.
BASE
The Human Genome Project, Genetics and Health
In: Public Health Genomics, Band 4, Heft 2, S. 77-80
ISSN: 1662-8063
Three main reasons why a genetic approach is unlikely to be a solution to common diseases in the foreseeable future are discussed. The first is the great importance of environmental circumstances in determining health, the second reason is the great complexity of gene/gene, gene/environment interactions, and the third reason is human behavior with regard to compliance with medical recommendations. Since particular interests are likely to push for a genetic approach to disease, there will be a need to protect the public interest so that premature and inappropriate use of genetics is not made, and so that a balanced opportunity to better the health of all is not missed.
Role of Human Genome Project in Medical Science
In: Asian Journal of Applied Science and Technology (AJAST), (Quarterly International Journal) Volume 4, Issue 2, Pages 06-10, April-June 2020
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Understanding the Human Genome Project: A Biographical Approach
In: New Genetics & Society, 27 (4), 353-376 (2008)
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Human Genome Project and Sickle Cell Disease
In: Social work in public health, Band 26, Heft 4, S. 405-416
ISSN: 1937-190X
The Human Genome Project: Implications for Families
In: Health & social work: a journal of the National Association of Social Workers, Band 33, Heft 1, S. 73-76
ISSN: 1545-6854
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Telling Stories: Metaphors of the Human Genome Project
In: Hypatia: a journal of feminist philosophy, Band 10, Heft 4, S. 104-129
ISSN: 1527-2001
Scientists of the Human Genome Project tend to rely on three metaphors to describe their work, each of which implicitly tells much the same story. Whether they claim to interpret the ultimate "book," to fix a flawed "machine," or to map a mysterious "wilderness," they invariably cast the researcher as one who dominates and exploits the Other. This essay, which explores the ways such a story conflicts with feminist values, proposes an alternative.
The Human Genome Project: ethical and social implications
This article explores some of the potential moral and social ramifications of the Human Genome Project. Research on the human genome is generating important ethical and social questions of at least three distinct kinds. First, what genetic information should be generated, and who should control its dissemination and use? Improved diagnostic techniques such as presymptomatic testing, carrier screening, and prenatal screening can provide information that poses significant ethical problems for individuals, employers and insurance companies, and the medical and counseling professions. Second, what genetic procedures should be employed? The burgeoning ability to manipulate human genotypes and phenotypes through procedures such as gene therapy and enzyme therapy are leading to difficult questions about which manipulations should be permitted and which should be prohibited. Third, how will this new information change lives? Increasing claims about the relationship of genetics to ethically and politically significant traits and behaviors are challenging human self-understanding and the capacity of social institutions to respond adequately.
BASE
The Human Genome Project: Social Policy Research Priorities
In: Politics and the life sciences: PLS ; a journal of political behavior, ethics, and policy, Band 11, Heft 2, S. 245-249
ISSN: 1471-5457
Will the Human Genome Project'S (HGP) social policy research program function as an "enhancer" and "promoter" for the entire "sequence," or will it result in missense and nonsense mutations? The jury, of course, is still out, but we believe it is more properly viewed as a key promoter that is integral to the proper functioning of the HGP itself.
The Human Genome Project and Advances in Anthropological Genetics
In: Human biology: the international journal of population genetics and anthropology ; the official publication of the American Association of Anthropological Genetics, Band 76, Heft 6, S. 801-804
ISSN: 1534-6617