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The care of patients with advanced and terminal illness can be extremely rewarding but often causes professionals a considerable amount of discomfort. This is especially so when you feel under confident in your abilities to provide a high quality of symptom management and relief from distress and to communicate appropriately with patients. Patients with advanced disease present some of the most challenging ethical, physical, psychological and social issues toclinicians and indeed to society.Patients need us to be knowledgeable, skilful and understanding. The fully revised and updated new editi

Die (allgemeine) Palliative Care befindet sich in einem tiefgreifenden hospizlich-palliativen Transformationsprozess der Mitarbeitende, Leitungspersonen und Trägerschaften sowie die Gesellschaft und die Politik zugleich erfasst. Dabei ist von der "konzeptionellen Verschiebung" der Palliative Care die Rede. Eine Schlüsselposition für das Gelingen der Entwicklung von Palliative Care-Prozessen nehmen die Leitungen der Einrichtungen ein. Sie müssen sich konzeptionell zu Fragen und Ansprüchen der letzten Lebensphase verhalten und Projekte und Initiativen zur Integration von Palliative Care unterstützen, wenn diese gelingen sollen.In der vorliegenden Masterthesis wurden erstmalig Einstellungen und Erfahrungen von Pflegefachpersonen zu Palliative Care mittels Fragebogen erkundet, die in Institutionen der Langzeitpflege arbeiten, die mit dem Label "Qualität in Palliative Care" ausgezeichnet sind. Dazu wurde eine Online-Befragung durchgeführt, die sich an alle Pfle- gepersonen von fünf Pflegeheimen richtete. Dabei wurden grundlegende Einstellungen und Erfahrungen der Mitarbeitenden entlang der sechs Kernleistungen der Pallia- tive Care erfragt. Die Ergebnisse zeigen beispielsweise, dass die Bedeutung von Palliative Care im beruflichen Alltag sehr hoch ist und die zukünftige Bedeutung der Palliative Care im beruflichen Kontext steigen wird. Für beinahe alle Mitarbeitenden ist Palliative Care persönlich wichtig und gibt ihrer Tätigkeit mehr Sinn. Palliative Care wirkt sich eindeutig positiv auf die Betriebskultur und die Arbeitszufriedenheit aus. Die Ergebnisse stellen managementrelevante Erkenntnisse dar, die wertvoll für die Nachhaltigkeit sowie die weitere Organisationsentwicklung von bereits zertifizierten Institutionen sein können. Zudem kann es für Institutionen, die sich im Bereich Palliative Care weiterentwickeln möchten, eine wertvolle Orientierungs- und Entscheidungshilfe sein. ; The (general) palliative care is currently in a profound hospice- and palliative-based process of transformation, that catches staff, management, organisations and politics at the same time. This is the so called conceptual transition in palliative care.A key position for the success of the development of palliative care processes takes the management. They have to behave concept-based to questions and demands in end of life. They also have to support projects and initiatives for the integration of palliative care. Especially when they should succeed.This research investigates experiences and attitudes of caregivers towards palliative care in nursing homes with the Swiss Label "Quality in Palliative Care". To reach the goal, an online-survey for caregivers in five nursing homes was realised. The findings show that the meaning of palliative care in the daily work is highly important and will increase in future. For the caregivers palliative care is very important and it gives their function and engagement more sense. Palliative care has a positive impact on the culture of the nursing home and the job satisfaction as well. The results are important for the management. The findings can be very important for the further sustainability and or- ganisational development of certified nursing homes. Furthermore it could be of high interest for nursing homes who are interested in developing along palliative care. ; Mag. Michael Rogner ; Zusammenfassungen in Deutsch und Englisch ; Abweichender Titel laut Übersetzung des Verfassers/der Verfasserin ; Karl-Franzens-Universität Graz, Masterarbeit, 2019 ; (VLID)4480478

Cover -- Series -- Oxford American Handbook of Hospice and Palliative Medicine and Supportive Care -- Copyright -- Contents -- Contributors -- 1 Definitions and Key Elements in Palliative and Supportive Care -- 2 Symptom Assessment -- 3 Clinical Decision-​Making -- 4 Pain Assessment and Management -- 5 Fatigue -- 6 Cachexia -- 7 Dehydration -- 8 Anxiety and Depression -- 9 Sleep Disturbance -- 10 Chronic Nausea and Vomiting -- 11 Constipation and Bowel Obstruction -- 12 Delirium -- 13 Clinical Issues Related to Palliative Sedation -- 14 Breathlessness -- 15 Emergencies in Palliative Care

This book describes the history and development of palliative care services in the Republic of Ireland. Written from a multi-professional perspective the book appeals to anyone with an interest in hospice and palliative care in Ireland. In attempting to explore what is different about Irish palliative care, this book delves into the cultural, religious and social factors particular to modern Ireland, from the historical roots of the Irish palliative care movement through to the publication of the Government's 'blueprint' for the future development of services. Palliative Care In Ireland explor

Around the world, there are millions of children who need palliative care from the moment they are diagnosed with life-threatening and life-limiting illnesses, yet very few children have access to palliative care services. In many African countries, where palliative care is still new, many children with chronic illnesses continue to experience needless pain and suffering. The World Health Assembly Resolution 67.19 made a clear call for governments around the world to implement palliative care policies. Such policies should support the "comprehensive strengthening of health systems to integrate evidence-based, costeffective and equitable palliative care services in the continuum of care, across all levels of care". However, despite these frequent calls, no specific policies target the provision of paediatric palliative care in Africa. This dissertation consists of three parts. Part A is the study protocol, which consists of the introduction and the study methodology. The study is qualitative in nature and it adopted the Walt and Gilson framework for extraction of data and analysis of palliative care policies in Africa. The study used publicly available policy documents, which were identified and obtained from government websites, international agencies' websites and through communication with palliative care experts. An excel spreadsheet was used to extract data, which was analysed thematically. Part B is a literature review of available published and unpublished work pertaining to paediatric palliative care in Africa. It provides the historical background of palliative care and defines palliative care and paediatric palliative care as well as exploring the general literature on paediatric palliative care, and the evidence on the existence of palliative care policies in Africa. Part C is a journal manuscript. It follows the structure and guidelines of the journal of the Health Policy and Planning. The manuscript begins with introduction and the study methods. Further, the study used publicly available policy documents on palliative care in Africa published from 2002 until 2018. An appropriate conceptual framework was chosen, and the results of the policy analysis are provided and followed by the discussion section and conclusions. The study findings indicate that few palliative care policies exist in Africa, and children's palliative care needs are not adequately included and addressed. The findings further show that there was no single policy targeting paediatric palliative care, and children were included among the larger population. As such, palliative care needs were not sufficiently addressed. Only three policies (South Africa, Zimbabwe, and Malawi) clearly address paediatric palliative care needs. The study, therefore, argues that for children with life threatening and life-limiting conditions to be free from pain, African governments need to formulate specific policies that will guide the provision of paediatric palliative care. This study is likely contribute to policy making processes, acts as a reference document for academics and students and provides an advocacy tool for activists, nongovernmental organizations (NGOs), and civil society organizations (CSOs) working on children's welfare and human rights issues more broadly. Further, the findings of the study may contribute to formulating specific palliative care policies for children, particularly in African countries that lack such policies.