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This book examines the nature of participatory research in the social sciences and its role in increasing participation among vulnerable or marginalised populations. Drawing on engaging in-depth case studies, it examines the ways in which inclusion and collaboration in research can be enhanced among vulnerable participants, such as those with profound learning difficulties, victims of abuse and trauma and multiply vulnerable children and young people, and shows how useful it can be with these groups. The book will be an invaluable resource for students, researchers and academics in many countries who want to put participatory research methods into practice
This book examines the nature of participatory research in the social sciences and its role in increasing participation among vulnerable or marginalised populations. It examines the ways in which inclusion and collaboration in research can be enhanced among vulnerable participants, and shows how useful it can be with these groups.
In: Critical social policy: a journal of theory and practice in social welfare, Band 38, Heft 1, S. 155-165
ISSN: 1461-703X
It is more than 25 years since the critical dialogue on young carers was played out in the pages of this journal (see Morris and Keith, 1995; Aldridge and Becker, 1996). Since that time, research evidence has given us a clearer picture of the extent of young caring in the UK and its consequences for children and families, including two new national studies that focus on the prevalence and impact of young caring in England. The introduction of the Care Act, 2014 and the Children and Families Act, 2014 also places new duties on professionals to identify and support young carers and their families. However, this increased focus, not only in policy and practice but also in terms of public awareness, has created a number of dilemmas and challenges for health and social care professionals, whose duty it is to identify and support young carers. These challenges, to a large extent, both mirror and advance issues raised in the original dialogue on young carers in the mid-1990s. They centre on the drive to generate data on the numbers of young carers to support policy directives and service delivery and, some have argued – in the current climate of serious fiscal retrenchment and cuts to youth services – on promoting the needs of one group of vulnerable children and young people over other groups of children in need. This article considers some of these challenges and dilemmas.
It is more than twenty years since the United Nations Convention on the Rights of the Child gave governments and states an international mandate to ensure the safety and wellbeing of children and young people and to promote their participation in decisions that affect their lives. Considerable advances have been made since that time that have, in some but not all instances, seen transformations in the status, roles and responsibilities of children and young people and in the ways in which they are perceived and treated. These advances have included greater inclusion of children's voices in research, policy and practice underpinned by children's rights to participation and 'best interests of the child' decision-making. Bringing together a unique collection of international articles from authors with considerable expertise in researching and working with children and young people, this thematic issue explores some of the ways in which facilitating constructive dialogues with children and young people, and engaging them more directly in consultation about their lives, has led to genuine improvements in the way they are treated and understood. It also considers some of the barriers that exist to prevent children and young people from full participation in public life, some of which occur as a result of structural or systemic factors, while others are the result of the decisions adults make on their behalf.
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This editorial is part of the issue "Promoting Children's Participation in Research, Policy and Practice", edited by Jo Aldridge (Loughborough University, UK). © 2017 by the author; licensee Cogitatio (Lisbon, Portugal). This article is licensed under a Creative Commons Attribution 4.0 International License (CC BY). ; It is more than twenty years since the United Nations Convention on the Rights of the Child gave governments and states an international mandate to ensure the safety and wellbeing of children and young people and to promote their participation in decisions that affect their lives. Considerable advances have been made since that time that have, in some but not all instances, seen transformations in the status, roles and responsibilities of children and young people and in the ways in which they are perceived and treated. These advances have included greater inclusion of children's voices in research, policy and practice underpinned by children's rights to participation and 'best interests of the child' decision-making. Bringing together a unique collection of international articles from authors with considerable expertise in researching and working with children and young people, this thematic issue explores some of the ways in which facilitating constructive dialogues with children and young people, and engaging them more directly in consultation about their lives, has led to genuine improvements in the way they are treated and understood. It also considers some of the barriers that exist to prevent children and young people from full participation in public life, some of which occur as a result of structural or systemic factors, while others are the result of the decisions adults make on their behalf.
BASE
In: Social Inclusion, Band 5, Heft 3, S. 89-92
ISSN: 2183-2803
It is more than twenty years since the United Nations Convention on the Rights of the Child gave governments and states an international mandate to ensure the safety and wellbeing of children and young people and to promote their participation in decisions that affect their lives. Considerable advances have been made since that time that have, in some but not all instances, seen transformations in the status, roles and responsibilities of children and young people and in the ways in which they are perceived and treated. These advances have included greater inclusion of children's voices in research, policy and practice underpinned by children's rights to participation and "best interests of the child" decision-making. Bringing together a unique collection of international articles from authors with considerable expertise in researching and working with children and young people, this thematic issue explores some of the ways in which facilitating constructive dialogues with children and young people, and engaging them more directly in consultation about their lives, has led to genuine improvements in the way they are treated and understood. It also considers some of the barriers that exist to prevent children and young people from full participation in public life, some of which occur as a result of structural or systemic factors, while others are the result of the decisions adults make on their behalf.
Closed access. ; For the past 20 years, I have conducted research with various participant groups, including children and young people and people with learning difficulties and mental health problems. There are a number of challenges of working with these groups of research participants, often defined as 'vulnerable'. One challenge, which has been contentious in academic discourses and research practice, is the issue, and definition, of vulnerability. Another challenge is identifying and adopting research methods that are appropriate and effective for research participants who are vulnerable in some way. This case study explores these issues drawing on my own research. I focus on two participatory visual projects I have been involved with that involve young carers and people with learning difficulties. When working with vulnerable or marginalised research participants, it is important that the chosen methods allow for their 'voices' and perspectives to be heard and are beneficial to them personally and/or within community settings so that personal, social or political transformations can be realised. In my experience, participatory research methods are essential in facilitating such transformations, as well as in enhancing and advancing the nature and effectiveness of relationships, and understanding, between researcher and research participant.
BASE
In: Social Inclusion, Band 1, Heft 1, S. 3-12
ISSN: 2183-2803
Despite advances in knowledge and understanding about the impacts of domestic violence on women's lives, global research on violence against women shows there is a need for research that not only places women centre stage in research praxis, but also that involves them more collaboratively in genuine dialogue about their experiences, including their agentic stances. This is especially the case for marginalised and socially excluded women victims of domestic violence, such as those who are not known or do not present to services and who survive abusive relationships alone or with little outside support. Evidence from two studies reported here-secondary analysis of women with severe and enduring mental health problems and a collaborative narrative project with unsupported women victims of domestic violence-suggest that women's capacity for agency are compromised by a number of critical factors, and that these are also reflected in the tensions between micro-macro analyses and understanding of the impact of domestic violence on women. This article considers the barriers to women's agency from the women's perspective and in the context of broader, systemic dynamics, including the denial or obscuring of abuse by governments and states and the consequences of stringent fiscal retrenchment that put women at increased risk of domestic violence.
In: Qualitative research, Band 14, Heft 1, S. 112-130
ISSN: 1741-3109
Tensions have been highlighted, particularly in disability rights research and activism discourses, between the demands of the academy, the needs of vulnerable research participants as active contributors in research and between researchers themselves who are often caught in multiple dilemmas regarding these conflicting demands. This is particularly the case in research governance and practice terms when 'top down' pressures (e.g. from the academy, from funders) are often at odds with the need for a 'bottom up' approach to vulnerable research participants who often require adaptive, more inclusive and sometimes individualistic (case-by-case) qualitative methodological approaches. These issues are the focus of this article, which draws specifically on evidence from participatory studies with vulnerable groups and participatory photographic studies, in particular, to demonstrate the need for more collaborative and democratic approaches to research praxis.
In: Visual studies, Band 27, Heft 1, S. 48-58
ISSN: 1472-5878
In: Children & society, Band 22, Heft 4, S. 253-264
ISSN: 1099-0860
This article draws on research with children who provide care for parents with serious mental health problems and signals ongoing research that uses photographic participation methods with these groups of vulnerable children. The intention of this article is to highlight the need to move away from popular and simplistic representations of children with caring responsibilities (young carers) as victims of their parents' illnesses, as 'little angels' whose caring work is condoned through rewards or as (exploited) informal domestic workers whose childhoods are inevitably compromised by the caring activity they undertake. Recommendations are made for generating deeper understanding about the lives and needs of children who are affected by parental impairment that is congruent with the thrust of current UK policy, Every Child Matters and the 2004 Children Act.
Little is known about the experiences of children living in families affected by severe and enduring mental illness. This is the first in-depth study of children and young people caring for parents affected in this way. Drawing on primary research data collected from 40 families, the book presents the perspectives of children (young carers), their parents and the key professionals in contact with them
This is the first in-depth study of children and young people caring for parents affected by severe and enduring mental illness. Drawing on primary research data collected from forty families, the book presents the perspectives of children (young carers), their parents and the key professionals in contact with them.