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For people with a learning disability, Inclusive Research is promoted as the right way to redress the hermeneutical injustice of their voices and theorising being excluded from the processes of knowledge production. This article describes the experiences and reflections of non-disabled researchers co-researching with people whose subjectivities were thought to lie beyond qualitative research. Through four stories, jointly told, we detail how those most at risk of exclusion from the academy first challenged and then took the research encounter beyond the linear, assimilative certainties of research 'on' or 'with' people with a learning disability towards the outer, cutting edges of qualitative research and an epistemology that might more authentically be said to be 'by' them.

BackgroundThe inclusion of people with intellectual disability in research is a common requirement of research funding. Little conceptual clarity is available to guide the conduct of inclusive research or judge its fidelity, there is minimal evidence of its impact, and questions remain about its feasibility and rigour.MethodA comprehensive review of the peer reviewed literature and key texts was undertaken to more clearly conceptualize inclusive research and identify the issues associated with ways of approaching it.FindingThree approaches to inclusive research were identified: advisory, leading and controlling, and collaborative group. Using the literature and the authors' own experience, each approach is illustrated and discussed.ConclusionsA clearer conceptual framework is developed to guide researchers and administrators as they consider inclusive research and its feasibility to particular research questions. A strong self‐advocacy movement is identified as one of the conditions necessary for inclusive research to flourish.Accessible AbstractBackgroundOrganisations including government that fund research about people with an intellectual disability in the UK and Australia say it is important that people with an intellectual disability are involved in planning and doing research that is about them; this is called inclusive research. Some people have written about what they have done but not enough has been written and shared about the different ways of doing inclusive research.MethodThe people who wrote this paper looked at all the literature about ways of doing inclusive research and reflected on the way they had worked with a group of self advocates in writing about their history.ResultsThere are three main ways of doing inclusive research; (i) Where people with an intellectual disability give advice about what to do; (ii) Where people with an intellectual disability lead and control research (iii) Where people with and without intellectual disability work together as a group with different jobs based on their different interests and skills.ConclusionsIn the past there has been an idea that there is only one way to do inclusive research. This paper talks about the advantages and disadvantages of different ways of doing inclusive research, and when you might choose one way rather than another.

BackgroundFunding bodies in Australia and the United Kingdom require research on issues that affect the lives of people with intellectual disability to be inclusive. Debate continues about the nature and benefits of inclusive research, which has become an umbrella term encompassing a broad spectrum of approaches.MethodThis study proposes one method of inclusive research, the 'collaborative group' approach. It examines the processes used to conduct a study involving academics and self‐advocates, presenting findings derived from an inductive analysis of field note data, interview and meeting transcripts.ResultsFive components are identified: shared and distinct purposes of participants equally valued, shared involvement and distinct contributions equally valued, flexible, adapted research methods, working as a group with trusting relationships and dispersed power, and scaffolding for inclusion.ConclusionsThis collaborative group method potentially results in better research than either academics or self‐advocates could achieve alone and has multiple knowledge outcomes with differing accessibility and complexity.Accessible AbstractBackgroundWhen people with an intellectual disability and researchers from universities or other organisations do research together it is called inclusive research. People have worked together on research for a long time but there are still some questions about why we should do it and the best way to do it.MethodThis paper talks about one way of doing inclusive research that the people who wrote the paper call 'collaborative group approach'. They did a big project with a group of people with an intellectual disability and talked and thought a lot about what they were doing. What they found out. There are five parts to working this way; (i) Having some of the same and some different reasons for doing the research (ii) Doing some things together and doing some things apart (iii) Being able to change things as you go so people can do what they want to do and are good at. (iv) Knowing each other well and being able to work together equally. (v) Thinking about the way you work all the time to make sure people are doing what they are good at and what they want to do.ConclusionIf people work this way it might lead to better research and understanding about the lives of people with an intellectual disability.

Wide-ranging, authoritative and grounded in the expertise of people with intellectual disabilities, this book offers an authentic account of the challenges those with intellectual disabilities face in their relationships and sex lives across the globe and explores what society needs to do to respect their rights