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With its spread of chapters covering key issues across the life cycle this text has established itself as the foundational primer for those studying the lived experiences of people with learning disabilities and their families, and outcomes achieved through services and support systems

AbstractThis paper begins by tracing the development of policy and research interest in the idea of social networks as something which provides important clues about the social behaviour of individuals. An argument is made for closer consideration of dimensions of support networks as a way of understanding the lives and lifestyles of adults with a mental handicap and of those who support them. The paper draws on data from a longitudinal study which examines change and stability of informal support networks of adult persons with a mental handicap over an initial period of two years and raises questions about policy, practice and future research.

Abstract
With more individuals forcibly displaced than any time since the Second World War, forced displacement has emerged as one of the defining political and humanitarian issues of the twenty-first century. In response to the changing nature of displacement, shortcomings of the humanitarian sector, and several ideological shifts that have taken place over the past 20 years, innovation has been embraced as a method to generate new breakthrough solutions for forced displacement. This article takes stock of innovation in forced displacement and charts a path forward for innovation in the sector. We articulate a vision for what forced displacement response should look like in 20 years, detailing an innovation agenda at the individual level, country level, and sector level. Grounded in our lessons learned from leading innovation at the International Rescue Committee, a large humanitarian non-governmental organization (NGO), we outline a set of strategies the sector should adopt to increase the quantity and quality of new innovations, improve the mechanisms to identify cost-effective innovations, and enhance the paths to scale for these innovations.

The aim of the present paper is to distil findings from research into the views and experiences of families of people with intellectual disabilities (IDs). It draws from the authors' report on the views and experiences of users and carers, the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, which was commissioned by the Department of Health, and was intended to inform some of the thinking behind Valuing People and the associated research programme. The present paper traces the development and scope of research on family carers in relation to the personal and psychological experience of care as well as in relation to receipt of services. Theoretical and methodological gaps in the literature are outlined. Social systems theory is proposed as a means of addressing the requirements of a future research agenda about family care.

The present paper presents a descriptive summary of the views and experiences of people with intellectual disabilities (IDs) as they have been represented in research and other literature. The authors develop further the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, a review report commissioned by the Department of Health on the views and experiences of users and family carers focusing on the ways in which research might contribute to policy and practice. The literature review of user views and experiences produced three broad categories: (1) 'testaments of life', which are mainly ethnographies and life histories; (2) 'user movement media' produced in an accessible format for people with IDs or by people with IDs themselves; and (3) 'research based studies' in their varying forms. It is demonstrated that no single approach is able to encompass all the interests of knowledge production, policy planning, and action or practice on its own. Some of the methodological issues associated with these gaps are more fully discussed. A more coordinated and broad‐based research approach to user views and experiences is advocated.

Demonstrating the scope and diversity of 'caring', the contributors highlight the positive aspects of caring and the interdependence of many caring relationships but also broach the sensitive and complex subject of 'poor' care and the importance of identifying and meeting the needs of 'hidden carers'

Aim  This paper seeks to illumine how families with children and adult members with intellectual disabilities manage to manifest a buoyant and durable capacity over time. It is therefore concerned centrally with the idea of resilience.Method  Drawing from diverse theoretical literatures from child development and protection and gerontology, the paper begins with a review of constructions of resilience. In an attempt to assess where there seems to be support for resilience in families, the core of the paper tests empirical evidence about positive experiences of families supporting children and adults with intellectual disabilities against the theoretical literature on resilience.Result and Conclusions  The findings are used to suggest conditions under which resilience is produced and maintained, and to identify emergent elements of a psycho‐social model of resilience in families with children and adult members with intellectual disabilities.

Considers issues, challenges and rewards of user participation research. This text draws on the experience of doing research and working with users. It includes voices and contributions of users in reporting research. It is suitable for students, researchers, and practitioners wishing to undertake participative research involving service users