Suchergebnisse

Although there are many possible ways of understanding menopause, it is the notion of menopause as hormone deficiency that currently dominates. How is it that this account remains prevalent rather than some alternative understanding of menopause? This question is explored through the employment of a framework informed by both actor network theory and symbolic interactionist studies. The author exploits the common ground shared by these two conceptual approaches to analyze how practices generate and reify particular kinds of knowledge about menopause. The analysis is situated within Australian menopause clinics and explores several key contemporary practices of these clinics to show how the particular understanding of menopause as hormone deficiency is generated and stabilized. The study stresses the knowledge/practice nexus and emphasizes that meanings are not given in advance but are generated through practices. In particular, the focus is on the interactions of the social and the material entities of menopause clinics and how through these interactions the understanding of menopause as hormone deficiency is produced.

This article considers how Marilyn Strathern's work on Western knowledge conventions can usefully contribute to debates at the intersection of the social and neurosciences: first, to understanding the nature of work at this intersection; and second, to providing new avenues for interdisciplinary engagement. The neuroscience explosion in the 1990s and the early twenty-first century held out the promise of understanding increasingly complex phenomena in terms of the brain. As the neurosciences ventured into questions of human sociality, social scientists found it difficult to make meaningful contributions within the confines of conventional models of neuroscientific work. This highlighted the need for conceptual and methodological innovation. In this article, we illustrate how Strathern's concept of the merographic connection, which conceptualizes the link between overlapping parts belonging to separate wholes, is a useful frame for thinking about the shared objects of the social and neurosciences. We show how her consideration of analogy as an apparatus bringing different domains together assists in understanding work in this area. With social science experiments in working with neuroscientists ongoing, Strathern's work encourages precision about what is being brought into relationship in interdisciplinary encounters and prompts innovative thinking about what might productively be brought into association.

There has been increasing awareness and interest in the role of the senses in qualitative research. We build on this work by focusing on the use of material objects in research. Using material objects in qualitative research, particularly those selected by research participants, offers a different kind of engagement that can add richness and complexity to the knowledge generated. Material objects can either be participant-selected or researcher-selected, each having its own benefits and challenges. Using examples, we explore how participants sensorially engage with these objects, using visual, auditory, olfactory, and tactile means. This engagement with material objects, particularly those that are personally meaningful to participants, is useful when examining research topics that may be sensitive or abstract; it offers the potential for participants to identify salient associations and/or express what may be otherwise unsayable. We discuss practical strategies in using material objects as well as the ethical challenges and possible products of such research.

This edited collection provides a comprehensive overview of ethical issues associated with visual research methods. Considering the work of researchers across a range of disciplines using visual methods in research, it offers practical and thoughtful discussions of emerging methodological and ethical dilemmas in innovative projects using visual methods, either in combination with other methods or as a stand-alone method to answer new kinds of research questions. Both synthesizing central themes and addressing ethical issues particularly relevant to specific research topics, in various settings and from various disciplinary perspectives, it considers how researchers navigate and conceptualise ethical issues. With contributions discussing research conducted in Australia, Argentina, Canada, India, Korea, Norway and the United Kingdom, the book's international scope, disciplinary breadth and the range of methods and research contexts addressed will notably appeal to those seeking to understand the value, and potential ethical risks, of visual methodologies for social research

Considerable time and resources are invested in the ethics review process. We present qualitative data on how human research ethics committee members and health researchers perceive the role and function of the committee. The findings are based on interviews with 34 Australian ethics committee members and 54 health researchers. Although all participants agreed that the primary role of the ethics committee was to protect participants, there was disagreement regarding the additional roles undertaken by committees. Of particular concern were the perceptions from some ethics committee members and researchers that ethics committees were working to protect the institution's interests, as well as being over-protective toward research participants. This has the potential to lead to poor relations and mistrust between ethics committees and researchers.

There is little empirical evidence about what resources health researchers use in order to make decisions about the ethical conduct of human research. Undertaking an empirical examination of how researchers understand research ethics and how they address ethical issues in research practice can lead to a richer understanding of how researchers approach research ethics. Our findings are based on interviews with 54 Australian health researchers. We conclude that, despite the considerable time devoted to ethics review, ethics committees and research guidelines were not seen as valuable resources for researchers undertaking research in the field. Although researchers did not perceive ethics committees as a resource when faced with ethical issues in the field, they nevertheless perceived the process of ethics review as beneficial to them; this allowed them to clarify their research, make decisions about the ethical conduct of the research, as well as offering them a sense of protection when undertaking research. In the actual undertaking of research practice, it was their past professional experience and personal values that researchers considered most useful resources when encountering ethical problems.

Identity and decision-making are interrelated concepts, but the relationship between them is complex particularly when an unwell person's ability to make decisions is compromised. In this article we discuss how moral self-definition (Nelson, 2001;Walker, 1987) can be used within a Listening Guide (LG) analysis to extend analysis of the temporal relationship between identity and decisions. In this project, the LG was used to analyze interviews exploring older people's understanding of medical decision-making when the unwell person's capacity is diminished. The second step of the LG drew attention to the participants' expression of decision-making voices and health-related identities, but the iterative and temporal relationship between identity and decisions was less well illuminated. Therefore, we applied the theoretical framework of moral self-definition within the third listening. The focus of this article is on how moral self-definition can be integrated as a theoretical framework within the contrapuntal listening to extend the LG analysis.

Trust in research is important but not well understood. We examine the ways that researchers understand and practice trust in research. Using a qualitative research design, we interviewed 19 researchers, including eight researchers involved in Australian Indigenous research. The project design focused on sensitive research including research involving vulnerable participants and sensitive research topics. Thematic analysis was used to analyze the data. We found that researchers' understanding of trust integrates both the conceptual and concrete; researchers understand trust in terms of how it relates to other similar concepts and how they practice trust in research. This provides a sound basis to better understand trust in research, as well as identifying mechanisms to regain trust when it is lost in research.

This study explored participants' experiences of randomized controlled trial (RCT) participation to examine their understanding of the trial design and whether their consent was indeed informed. A nested qualitative interview study was conducted with 38 participants from a sample of 282 who participated in a complex RCT evaluating the effectiveness of laser compared with needle acupuncture for chronic knee pain. Overall participants had a good understanding of the RCT, and concepts such as randomization and placebo. Their experiences of being in the trial were largely positive, even if they did not experience any knee pain improvement. Their responses to unblinding at the end of the study were accepting. Participants had a good functional understanding of the RCT, sufficient for valid informed consent.

Relationships of trust between research participants and researchers are often considered paramount to successful research; however, we know little about participants' perspectives. We examined whom research participants trusted when taking part in research. Using a qualitative approach, we interviewed 36 research participants, including eight Indigenous participants. Thematic analysis was used to analyze the data. This article focuses on findings related to non-Indigenous participants. In contrast to Indigenous participants, non-Indigenous participants placed their trust in research institutions because of their systems of research ethics, their reputation and prestige. Researchers working in non-Indigenous contexts need to be cognizant that the trust that participants place in them is closely connected with the trust that participants have in the institution.