Suchergebnisse

In dit rigoureuze en noodzakelijke boek brengt Kristien Hens bio-ethiek en filosofie van de biologie bij elkaar, met het argument dat het ethisch noodzakelijk is om in het wetenschappelijk onderzoek een plaatsje vrij te houden voor de filosofen. Hun rol is behalve ethisch ook conceptueel: zij kunnen de kwaliteit en de coherentie van het wetenschappelijk onderzoek verbeteren door erop toe te zien dat specifieke concepten op een consistente en doordachte manier worden gebruik binnen interdisciplinaire projecten. Hens argumenteert dat toeval en onzekerheid een centrale rol spelen in de bio-ethiek, maar dat die in een spanningsrelatie kunnen raken met de pogingen om bepaalde theorieën ingang te doen vinden als wetenschappelijke kennis: bij het beschrijven van organismen en praktijken creëren we op een bepaalde manier de wereld. Hens stelt dat dit noodzakelijk een ethische activiteit betreft.

Doorheen de verkenning van genetisch onderzoek, biomedische ethiek, autismeonderzoek en het concept 'risico' toont Hens aan dat er niet zoiets bestaat als 'universeel' of 'neutraal' wetenschappelijk of klinisch weten. Integendeel, uitgaan van de gesitueerdheid van individuele ervaringen is essentieel om de wereld rondom ons te begrijpen, om er de beperkingen van in te zien (en die van onszelf) en om een ethische toekomst vorm te geven.

Toevallige ontmoetingen is gericht op een breed publiek van geïnteresseerden in bio-ethiek, filosofie, antropologie en sociologie, en op onderzoekers in biomedische en milieuwetenschappen. Daarnaast is het ook relevant voor beleidsmakers. De artistieke bijdrage van Christina Stadlbauer en Bartaku zal inspirerend zijn voor kunstenaars en schrijvers die zich op het snijvlak bewegen van kunst en wetenschappen.

"What does it mean to say that someone is autistic?

Towards an Ethics of Autism is an exploration of this question and many more. In this thoughtful, wide-ranging book, Kristien Hens examines a number of perspectives on autism, including psychiatric, biological, and philosophical, to consider different ways of thinking about autism, as well as its meanings to those who experience it, those who diagnose it, and those who research it. Hens delves into the history of autism and its roots in the work of Leo Kanner and Hans Asperger to inform a contemporary ethical analysis of the models we use to understand autism today. She explores the various impacts of a diagnosis on autistic people and their families, the relevance of disability studies, the need to include autistic people fully in discussions about (and research on) autism, and the significance of epigenetics to future work on autism.

Hens weaves together a variety of perspectives that guide the reader in their own ethical reflections about autism. Rich, accessible, and multi-layered, this is essential reading for philosophers, educational scientists, and psychologists who are interested in philosophical-ethical questions related to autism, but it also has much to offer to teachers, allied health professionals, and autistic people themselves. "

Intro -- Acknowledgements -- About the Drawings -- Contents -- List of Tables -- Chapter 1: Introduction -- Methodology -- Bibliography -- Chapter 2: Being 'Different' -- Bibliography -- Chapter 3: Perspectives on Suffering -- Bibliography -- Chapter 4: The Experience of Being Tested -- Bibliography -- Chapter 5: Autism as a Way to Hold Your Own -- Bibliography -- Chapter 6: The (In)ability to Self-Reflect -- Bibliography -- Chapter 7: To Challenge or to Accept -- Bibliography -- Chapter 8: Perspectives on the Future -- Bibliography -- Chapter 9: Afterthoughts -- Bibliography -- Appendix: The Helping Thoughts of BartDelam -- Glossary -- Bibliography -- Index.

Should parents aim to make their children as normal as possible to increase their chances to "fit in"? Are neurological and mental health conditions a part of children's identity and if so, should parents aim to remove or treat these? Should they aim to instill self-control in their children? Should prospective parents take steps to insure that, of all the children they could have, they choose the ones with the best likely start in life? This volume explores all of these questions and more. Against the background of recent findings and expected advances in neuroscience and genetics, the extent and limits of parental responsibility are increasingly unclear. Awareness of the effects of parental choices on children's wellbeing, as well as evolving norms about the moral status of children, have further increased expectations from (prospective) parents to take up and act on their changing responsibilities. The contributors discuss conceptual issues such as the meaning and sources of moral responsibility, normality, treatment, and identity. They also explore more practical issues such as how responsibility for children is practiced in Yoruba culture in Nigeria or how parents and health professionals in Belgium perceive the dilemmas generated by prenatal diagnosis

In this rigorous and necessary book, Kristien Hens brings together bioethics and the philosophy of biology to argue that it is ethically necessary for scientific research to include a place for the philosopher. As well as ethical, their role is conceptual: they can improve the quality and coherence of scientific research by ensuring that particular concepts are used consistently and thoughtfully across interdisciplinary projects. Hens argues that chance and uncertainty play a central part in bioethics, but that these qualities can be in tension with the attempt to establish a given theory as scientific knowledge: in describing organisms and practices, in a sense we create the world. Hens contends that this is necessarily an ethical activity.

Examining genetic research, biomedical ethics, autism research and the concept of risk, Hens illustrates that there is no 'universal' or 'neutral' state of scientific and clinical knowledge, and that attending to the situatedness of individual experience is essential to understand the world around us, to know its (and our) limitations, and to forge an ethical future.

Chance Encounters is aimed at a broad audience of researchers in bioethics, philosophy, anthropology, sociology, as well as biomedical and environmental scientists. It will also be relevant to policymakers, and the artwork by Christina Stadlbauer and Bartaku will be of interest to artists and writers working at the intersection of art and science.

The increasing availability of high throughput proteomics data provides us with opportunities as well as posing new ethical challenges regarding data privacy and re-identifiability of participants. Moreover, the fact that proteomics represents a level between the genotype and the phenotype further exacerbates the situation, introducing dilemmas related to publicly available data, anonymization, ownership of information and incidental findings. In this paper, we try to differentiate proteomics from genomics data and cover the ethical challenges related to proteomics data sharing. Finally, we give an overview of the proposed solutions and the outlook for future studies. ; Kristien Hens has received funding from the European Research Council (ERC) under the European Union's Horizon 2020 research and innovation programme (grant agreement No. 804881).

DiGeSt 8(1) General Issue - COVID-19 Roundtable