"A groundbreaking account of what it was like to live in a Victorian body from one of our best historians ... brings the Victorians back to life and helps us understand how they lived their lives"--Publisher's description
This article explores an alternative autoethnographic methodological approach, using embodied praxis and sound, for critically re-thinking contemporary subjective health practices of digital 'self-tracking'; popularized in recent years through the rise in wearable biometric fitness devices, and online socio-cultural movements such as the Quantified Self and Strava platforms, which enable subjects to "share" their quantifiable body-data metrics. Through a performative praxis case study titled Speaking the Data (2017), the author renegotiates the "voice" of subjective agency within the quantitative data-discourse, "speaking the data" that her body is producing in "real-time" on a digital smart-bike machine. This embodied renegotiation, recorded using a sound "data-stream," produces an alternative subjective data-set which is extended to the reader, who is invited to become "listener" in the theoretical/experiential praxis space. The sound "data-stream" thus proffers an affective expansion to our perceptions of what "body-data" can be, extending the possibilities for the digitally mediated body beyond biometric forms of quantification, through other sensorial registers of embodiment, using sound, rhythmic affect and lived experience.
This article examines the campaign against sexual harassment conducted at Ontario universities between 1979 and 1994, looking closely at four universities: York, Queen's, Toronto, and Carleton. Sources examined included campus newspapers, national media, and theCAUT Bulletin. The term "sexual harassment" was only coined in 1975, but it was quickly taken up by campus feminists in Ontario who successfully fought to have universities adopt policies and procedures to combat sexual harassment.By the late 1980s, they had broadened their campaign to look beyond predatory instructors, focusing on actions and behaviours that created a sexist climate that hindered women's learning and their full participation in campus life.The arguments of both the supporters and the opponents of the campaign are examined. The article concludes with the failure of the Ontario government to impose a "zero tolerance" policy on sexual harassment at universities. While sexual harassment continues to exist at Ontario universities, campus feminists made significant progress during these years. ; Cet article analyse la campagne contre le harcèlement sexuel menée dans les universités ontariennes entre 1979 et 1994, examinant de près quatre universités: York, Queen's, Toronto et Carleton. Les sources étudiées comprenaient les journaux des campus, les médias nationaux et le Bulletin de l'ACPPU. L'expression «harcèlement sexuel» n'a été inventée qu'en 1975, mais elle a rapidement été reprise par les féministes des campus de l'Ontario qui se sont battues avec succès pour que les universités adoptent des politiques et des procédures pour lutter contre le harcèlement sexuel. À la fin des années 80, elles avaient élargi leur campagne; elles allaient au-delà de la dénonciation des instructeurs prédateurs, se concentrant sur les actions et les comportements à l'origine du climat sexiste qui empêchait l'apprentissage des femmes et leur pleine participation à la vie du campus. Les arguments des partisans et des opposants à la campagne sont tous deux pris en considération. L'article conclut à l'échec du gouvernement ontarien d'imposer une politique de «tolérance zéro» sur le harcèlement sexuel dans les universités. Toutefois, bien que ce dernier persiste au sein des universités ontariennes, les féministes des campus ont réalisé d'importants progrès au cours de ces années.
IntroductionThe method used to define a GP-consultation using routine data will vary depending on the data source and research question. However, without consensus the approach will be tackled by numerous researchers and invariably result in different definitions. The LUCI study is assessing outcomes of childhood UTI using routine data sources.
Objectives and ApproachWe are interested in GP urine sampling rate and re-consultation rate. The GP dataset includes multiple clinical (acute, routine monitoring, prescribing, results) and administrative codes. A GP consultation therefore needed to be defined. GP read code frequencies for our study cohort of children were produced. One researcher reviewed the codes that represented 80% of the data and classified them as a consultation or not. Where there was uncertainty this was independently reviewed by two clinicians and discrepancies agreed by the management team.
ResultsWe will present the decisions and assumptions made for this study in defining a GP consultation. 25,623 Read Codes represented the consultations for our study cohort of which 460 codes represented 80% of the consultations. The remaining 20% of codes represented <0.032% of records each. The 460 Read Codes were reviewed and following independent review and agreement from the management group 149 Read Codes were excluded. These were grouped into the following categories Administrative (e.g. Incoming Mail Processing, Ethnicity codes), Vaccinations, Child Health (e.g. First Smiled), Asthma and Medication Review. The GP consultations to be included in the analysis were then restricted to exclude these codes. This has been an important step in cleaning and understanding the data prior to analysis.
Conclusion/ImplicationsA consultation was defined for this study however there will be pros and cons to this method. In lieu of a consensus approach to the method this work is the first step to sharing approaches to help researchers with the same challenge.
IntroductionResearchers are increasingly using routinely collected data in addition to, or instead of, other data collection methods. The UK government continues to invest in research centres to encourage use of these data, and trials and cohort studies utilise data linkage methods in the follow-up of participants. This does not come without its limitations and challenges, such as data access delays.
ObjectiveThis paper outlines the challenges faced by three projects utilising individual-level routinely-collected linked data for the longer-term follow-up of participants.
MethodsThese studies are varied in design, study population and data providers. One researcher was common to the three studies and collated relevant study correspondence, formal documentary evidence such as data sharing agreements and, where relevant, meeting records to review. Key themes were identified and reviewed by other members of the research teams. Mitigating strategies were identified and discussed with a data provider representative and a broader group of researchers to finalise the recommendations presented.
ResultsThe challenges discussed are grouped into five themes: Data application process; Project timelines; Dependencies and considerations related to consent; Information Governance; Contractual. In presenting our results descriptively we summarise each case study, identify the main cross-cutting themes and consider the potential for mitigation of challenges.
ConclusionsWe make recommendations that identify responsibilities for both researchers and data providers for mitigating and managing data access challenges. A continued conversation within the research community and with data providers is needed to continue to enable researchers to access and utilise the wealth of routinely-collected data available. The suggestions made in this paper will help researchers be better prepared to deal with the challenges of applying for data from multiple data providers.
Background Guidelines recommend the prompt diagnosis and treatment of UTI in young children to reduce the risk of renal scarring and possible long-term complications. However, the evidence for this association is weak and has been questioned. There is an urgent need to clarify this as the correct approach to urine sampling and diagnosis of UTI in children hinges on this association.
Main Aim Determine outcomes following UTI in childhood (<5years)
Approach We used the Secure Anonymised Information Linkage (SAIL) Databank to access demographic, hospital, GP and microbiology data from children in Wales. Children with >1 microbiologically confirmed UTI (mcUTI) aged <5, were compared to those with no mcUTI. The primary outcome was renal scarring and secondary outcomes included hypertension, chronic kidney disease and renal failure. The primary analysis used multinomial regression and time to event models.
Results A cohort of 159,201 children was defined. 11,099 (7.0%) had >1 mcUTI.
The overall prevalence of renal scarring in the cohort by age 7 was 0.16%; 1.26% in those with >1 mcUTI; 0.08% in those with no mcUTI. The unadjusted odds ratio (OR) was 16.62 (12.91-21.39) and adjusted 3.64 (2.57-5.14). Among the group with >1 mcUTI, predictors of renal scarring were VUR, younger age of first UTI, and greater number of UTIs <5
Conclusion UTI was associated with renal scarring even after adjusting for covariates.
The prevalence of renal scarring in children with >1 mcUTI was lower than expected. Possible explanations include poor coding in routine data, different patient populations or missed renal scarring diagnoses. We are currently validating our results using radiology data. If renal scarring diagnoses are being missed, a more proactive urine sampling and imaging strategy may be indicated. However, if renal scarring rates are low following UTI, this may not be necessary.
Funding This project has been funded by the Welsh Government through Health and Care Research Wales (project number 1068). Acknowledgments We acknowledge the support and input from Sarah Jones, our parent representative for the study. We are also grateful to the DUTY and EURICA participants for their agreement for continued use of their data for this study. The Centre for Trials Research receives funding from Health and Care Research Wales and Cancer Research UK. Wales Centre for Primary and Emergency Care Research (PRIME Centre Wales) receives funding from Health and Care Research Wales. The authors are supported by the Farr Institute CIPHER, funded by Arthritis Research UK, the British Heart Foundation, Cancer Research UK, the Economic and Social Research Council, the Engineering and Physical Sciences Research Council, the Medical Research Council, the National Institute of Health Research, the National Institute for Social Care and Health Research (Welsh Assembly Government), the Chief Scientist Office (Scottish Government Health Directorates), and the Wellcome Trust (MRC grant number MR/K006525/1) and the National Centre for Population Health and Wellbeing Research (NCPHWR). Ethics approval Ethics approval of the study has been given by the Research Ethics Committee for Wales (16/WA/0166) and the transfer and use of identifiable data has been approved by the Health Research Authority's (HRA) Confidentiality Advisory Group (CAG) (16/CAG/0114). ; Peer reviewed ; Publisher PDF