A child's objection, refusal and dissent regarding participation in non-beneficial biomedical research must be respected, even when the parents or legal representatives have given their permission. There is, however, no consensus on the definition and criteria of a meaningful and valid child's objection. The aim of this article is to clarify this issue. In the first part we describe the problems of a child's assent in research. In the second part we distinguish and analyze two models of a child's objection to research: the capacity-based model and the distress-based model. In the last part we present arguments for a broader and unified understanding of a child's objection within regulations and practices. This will strengthen children's rights and facilitate the entire process of assessment of research protocols.
Designing bioethics curriculum for international postgraduate students is a challenging task. There are at least two main questions, which have to be resolved in advance: (1) what is a purpose of a particular teaching program and (2) how to respectfully arrange a classroom for students coming from different cultural and professional backgrounds. In our paper we analyze the case of the Erasmus Mundus Master of Bioethics program and provide recommendations for international bioethics education. In our opinion teaching bioethics to postgraduate international students goes beyond curriculum. It means that such a program requires not only well-defined goals, including equipping students with necessary skills and knowledge, but also it should first and foremost facilitate positive group dynamics among students and enables them to engage in dialogue to learn from one another.
The book Approaches to Death and Dying: Bioethical and Cultural Perspectives, edited by Marta Szabat and Jan Piasecki, is part of a still too narrow catalogue of works devoted to end-of-life themes. The volume consists of eleven articles arranged in four parts corresponding to a broad range of issues: law, ethics, philosophy, and cultural studies. The arrangement of the book is thus constructed around various perspectives upon which any reflection on death and dying must be based. This is perhaps indicative of how difficult it is to adopt an unambiguous attitude towards death-modernity, which introduces a multitude of possible choices and decisions regarding our own bodies, has enhanced individualism but at the same time done away with the order provided by old customs, cultural arrangements, strategies towards the inevitable and the power exerted by that order.
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We report a preregistered study that was designed to answer three questions about using transparent defaults to increase participation in a hypothetical learning health care system. Do default options influence consent to participate in learning activities within a learning health care system? Does transparency about default options decrease the effect of the defaults? Do people reconsider their choice of participation once they are informed about the defaults applied? In our study, application of the defaults did not have influence on rates of consent, nor did transparency about defaults have an effect on the rates of consent. Participants were also not likely to change their choice after being informed that defaults were applied to their previous choice. In general, our study raises doubts that defaults (both covert and transparent) can be used as an effective means in significantly increasing participation in learning health care systems.
Introduction Misinformation is a complex concept and its meaning can encompass several kinds of different phenomena. Liang Wu et el. consider a wide variety of online behavior as misinformation: 1 unintentionally spreading false information, intentionally spreading false information, disseminating urban legends, sharing fake news, unverified information, and rumors, as well as crowdturfing, spamming, trolling, and propagating hate speech, or being involved in cyberbullying. The aim of this review is to address the following question: "What psychological interventions countering misinformation can be deployed on popular social media platforms (e.g. Twitter, Facebook)?". In order to address this question, we have designed a systematic scoping review procedure in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. 2,3 Effective measures of countering misinformation on social media are instrumental for facilitating and fostering reliable public conversation about political and social problems. Moreover, countering misinformation on social media platforms can be also considered a public health intervention, especially in the time of health emergencies, such as the COVID-19 pandemic. Methods and analysis A scoping review is a modern, rigorous approach to synthesis science, developed among others by the Joanna Briggs Institute team. For data extractions, we plan to use the following databases: Embase, Scopus, and PubMed. For paper selection, eligibility criteria were defined.
Informed consent and debriefing of research participants in studies that use deception are ethical safeguards for which existing scholarly work on their implementation remains variable and insufficiently clear. A systematic review of research ethics guidelines was conducted to sketch a picture of whether, why and how informed consent and debriefing are recommended when using deception. Documents roughly agreed on several general principles, but varied significantly in the specifics of why and whether these safeguards are necessary, in which conditions and how they should be implemented. Various aspects that appear in the literature could not be found in the guidelines. In our review, guidance was integrated and showed a variation of implementation strategies that could help in contextualizing these safeguards.
Misinformation on social media poses a serious threat to democracy, sociopolitical stability, and mental health. Thus, it is crucial to investigate the nature of cognitive mechanisms and personality traits that contribute to the assessment of news items' veracity, failures in the discernment of their truthfulness, and behavioral engagement with the news, especially if one wants to devise any intervention to stop the spread of misinformation in social media. The current research aimed to develop and test a 4-fold taxonomy classifying people into four distinct phenotypes of susceptibility to (mis)information. In doing so, it aimed to establish differences in cognitive and psychological profiles between these phenotypes. The investigated cognitive processes included sensitivity to feedback, belief updating, and cognitive judgment bias. Psychological traits of interest included the Big Five model, grandiose narcissism, anxiety, and dispositional optimism. The participants completed online surveys that consisted of a new scale designed to classify people into one of four phenotypes of susceptibility to (mis)information, advanced cognitive tests, and reliable psychological instruments. The four identified phenotypes, Doubters, Knowers, Duffers, and Consumers, showed that believing in misinformation does not imply denying the truth. In contrast, the numerically largest phenotypes encompassed individuals who were either susceptible (Consumers) or resistant (Doubters), in terms of veracity judgment and behavioral engagement, to any news, regardless of its truthfulness. Significantly less frequent were the phenotypes characterized by excellent and poor discernment of the news' truthfulness (the Knowers and the Duffers, respectively). The phenotypes significantly differed in sensitivity to positive and negative feedback, cognitive judgment bias, extraversion, conscientiousness, agreeableness, emotional stability, grandiose narcissism, anxiety, and dispositional optimism. The obtained results constitute a basis for a new ...