In: Journal of policy and practice in intellectual disabilities: official journal of the International Association for the Scientific Study of Intellectual Disabilities, Band 9, Heft 4, S. 307-307
In: Journal of policy and practice in intellectual disabilities: official journal of the International Association for the Scientific Study of Intellectual Disabilities, Band 3, Heft 4, S. 246-252
Abstract This paper highlights the circumstances of older families of adults with an intellectual disability (ID) using scenarios drawn from current research, the practice literature pertaining to older families, and basic tenets of family quality of life as a field of study. Specific issues discussed include the propensity in the literature to emphasize negative aspects of prolonged coresidence of older parents and adults with an ID; evidence‐based practice often dominated by a focus on future planning, particularly in regard to transitions from home, financial issues, and guardianship; and little research or practice identifying a planning process that considers the older family as a whole, taking into account and addressing the needs and concerns of all family members affected by ageing circumstances. Additionally, scant literature on the involvement of family in the lives of middle‐aged and older adults already living in residential services is available to guide practice to successfully maintain family involvement under these circumstances. The author concludes that there is a need to expand evidence‐based practice beyond work with older parents cohabiting with a son or daughter with an ID and future planning, and that a family quality of life approach has the potential to identify proactive strategies that strengthen family relations and actively engage older families in the development of policy and practice.
In: Journal of policy and practice in intellectual disabilities: official journal of the International Association for the Scientific Study of Intellectual Disabilities, Band 7, Heft 1, S. 26-33
AbstractAuthors conducted a systematic review of the available Dutch, English, and German language literature for the period 1997–2008 on the current knowledge on social‐psychological and pharmacological caregiving with respect to older adults with intellectual disabilities (ID) affected by dementia. Authors note that caregiving occurs on a personal level between the person and their carer and organizational and interorganizational supports have an impact on the quality of care provided. However, the lack of robust evidence to meet the needs of adults with ID affected by dementia means that service organizations often have to extrapolate from the evidence base of dementia care practices in the general population. The review showed that concerns over staff burden, behavioral interventions, and staff training, and applications of models of care were emerging, but were not systematically studied. Authors noted that pharmacological agents and nonpharmacological, psychosocial techniques were being used to assist carers manage behavior, but the evidence base of both nonpharmacological and pharmacological interventions that can help people with ID and dementia and their carers is insufficient because of the absence of systematic and robust studies. The authors note a need for an international research agenda that begins to address gaps in knowledge. With more adults projected to be affected by dementia, a robust evidence‐based body of literature on dementia care in people with ID can help with planning for and providing quality dementia‐capable services.
5 pages, 2 tables, 3 figures.--PACS nrs.: 23.40.Hc; 27.20.+n. ; The beta decay of O-13 has been studied at the IGISOL facility of the Jyvaskyla accelerator centre (Finland). By developing a low-energy isotope-separated beam of O-13 and using a modern segmented charged-particle detector array an improved measurement of the delayed proton spectrum was possible. Protons with energy up to more than 12 MeV are measured and the corresponding log(ft) values extracted. A revised decay scheme is constructed. The connection to molecular states and the shell model is discussed. ; This work was supported by the Academy of Finland under the Finnish Centre of Excellence Programme 2000–2005 (Project No. 44875, Nuclear and Condensed Matter Physics Programme at JYFL), by the European Union Fifth Framework Programme "Improving Human Potential - Access to Research Infrastructure" contract no. HPRI-CT-1999-00044, by the Spanish CICYT Agency under Project number FPA2002-04181-C04-02, and by the EU-RI3 (Integrated Infrastructure Initiative) under contract no 506065. ; Peer reviewed