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Building a sustainable, high-impact, and 'living' biobank infrastructure in Canada
A living biobank can generate new insights about our care; Francois Lamontagne, Paul Hebert, and Michelle Kho tell us more. A detailed examination of diseased tissues and other biological specimens has enabled a better understanding of heart diseases, tumors, and syndromes such as sepsis. Biobanking involves collecting, storing, cataloguing and eventually analyzing these specimens. (1, 2) Specimens are most valuable when they are systematically linked to accurate clinical information (i.e. data), including risk factors, disease trajectories and ultimately, outcomes that are important to patients. This is no small feat and requires a lot of planning and infrastructure. One of the most important and difficult aspects is working with clinical teams and services to obtain access to patients and their medical records.

Funding: BK has received a project specific grant from the University of Basel to realize this project. In addition, this study is supported by the Swiss National Science Foundation (grant 320030_149496/1) and the Gottfried and Julia Bangerter-Rhyner Foundation. The provided work by BG, JHL, CW, and JY has been supported by the National Cancer Institute Cancer Centre Support Grant P30 CA168524 and used BISR core. The Health Services Research Unit, University of Aberdeen, receives core funding from the Chief Scientist Office of the Scottish Government Health Directorates. DC is supported by a Research Chair from the Canadian Institute for Health Research. The mentioned funding sources have no role in the design and conduct of the study; the collection, management, analysis, and interpretation of the data; the preparation, review, or approval of the manuscript; or the decision to submit the manuscript for publication. ; Peer reviewed ; Publisher PDF