Pharmacogenetics: A New – or not so New?—Concept in Healthcare
In: The Geneva papers on risk and insurance - issues and practice, Band 28, Heft 2, S. 316-330
ISSN: 1468-0440
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In: The Geneva papers on risk and insurance - issues and practice, Band 28, Heft 2, S. 316-330
ISSN: 1468-0440
Cover -- Contents -- Introduction -- Beyond Playing God: Critical Religious GenEthics for Pluralistic Societies -- Playing God? -- Foundations: Hermeneutic and Conceptional Reflections -- The Function of Religion in GenEthical Debates: Critical Analyses -- Examining Constructive Efforts of Religious Genethics -- Beyond Playing God -- Context, Acknowledgments, and Dedication -- Foundations: Hermeneutic and Conceptional Reflections -- Genes - Cells - Interpretations -- Prologue -- Hermeneutics -- Political Texts -- Metaphysical Texts -- Who Is the Author of the Genetic Text? -- We Do Our Genes -- References -- Controversies about Human Dignity: Implications for Biotechnology -- Introduction -- Conception I: HD as a Standard of Duties or Rights -- Conception II: HD as a Standard of Virtue -- Conflicting Appeals to HD in Public Bioethics: The Example of Human Genetic Enhancement -- A Public Precautionary Process -- References -- The Function of Religion in GenEthical Debates: Critical Analyses -- Global Bioethics, Theology, and Human Genetic Engineering: The Challenge of Refashioning Human Nature in the Face of Moral and Religious Pluralism -- There Is No Substantive Secular Global Bioethics to Guide Human Genetic Engineering -- The Plurality of Moralities -- The Illusion of Consensus -- Separated by Heresy and Disbelief -- Always a View from Somewhere -- References -- Eschewing Images of Man: Against Anthropological Reductionism in Bioethics -- Religious Language: Radical Openness to Interpretation -- The Dignity of God Seems Not to Be Inviolable: The Abuse of Religious Language in Ethics -- Eschewing Images of Man: Against Anthropological Reductionism in Bioethics -- References -- Children, Bodies, Life: Ethics as the Churches' Biopolitics -- Power of the Churches -- Human Life as a Biological Entity -- Bioethicization of the Churches' Positions.
Biobanks can have a pivotal role in elucidating disease etiology, translation, and advancing public health. However, meeting these challenges hinges on a critical shift in the way science is conducted and requires biobank harmonization. There is growing recognition that a common strategy is imperative to develop biobanking globally and effectively. To help guide this strategy, we articulate key principles, goals, and priorities underpinning a roadmap for global biobanking to accelerate health science, patient care, and public health. The need to manage and share very large amounts of data has driven innovations on many fronts. Although technological solutions are allowing biobanks to reach new levels of integration, increasingly powerful data-collection tools, analytical techniques, and the results they generate raise new ethical and legal issues and challenges, necessitating a reconsideration of previous policies, practices, and ethical norms. These manifold advances and the investments that support them are also fueling opportunities for biobanks to ultimately become integral parts of health-care systems in many countries. International harmonization to increase interoperability and sustainability are two strategic priorities for biobanking. Tackling these issues requires an environment favorably inclined toward scientific funding and equipped to address socio-ethical challenges. Cooperation and collaboration must extend beyond systems to enable the exchange of data and samples to strategic alliances between many organizations, including governmental bodies, funding agencies, public and private science enterprises, and other stakeholders, including patients. A common vision is required and we articulate the essential basis of such a vision herein.
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