Suchergebnisse

In diesem Beitrag wird der Frage nachgegangen, wie ein feministisches und postkoloniales Verständnis von informierten Einverständnisprozessen aussehen kann und welche konkreten Schlussfolgerungen für die Forschungspraxis daraus resultieren können. Dabei wird zunächst der historische Entstehungskontext in der medizinischen Forschung beleuchtet und die daraus hervorgehenden Dimensionen – Kompetenz, Verständnis, Information, Freiwilligkeit und Autorisierung – erläutert. Ausgehend von Perspektiven der feministischen Sozialforschung und der feministischen Ethik wird aufgezeigt, dass informiertes Einverständnis über den rechtlich-formalen Akt hinausgehen und als kollaborative und prozessorientierte Aushandlung zwischen Forscher_innen und Forschungsteilnehmer_innen konzipiert werden sollte. Es ist wichtig, soziale und gesellschaftliche Zusammenhänge in Einverständnisprozesse einzubeziehen, d.h. Subjekte im Sinne der intersektionalen Ethics of Care als relational zu begreifen und den Einfluss von sozialen Strukturen zu reflektieren. Auf Basis einer feministisch-postkolonialen Ethik wird hervorgehoben, dass es notwendig ist, bestehende Ungleichheiten anzuerkennen, um diese nicht zu reproduzieren. Flexible und wiederholbare Formate der Einverständniserklärung oder das Etablieren von gemeinsamen Diskussionen sowohl in den Einverständnisprozessen als auch in der Ergebnisdarstellung sind Beispiele für mögliche Umsetzungen in der Forschungspraxis.

DISCLAIMER: The present Project Deliverable has been submitted to the European Commission for review. The information and views set out in this report are those of the author(s) and do not necessarily reflect the official opinion of the European Union. Neither the European Union institutions and bodies nor any person acting on their behalf may be held responsible for the use which may be made of the information contained therein. _____ The R&I Action #2 "Youth Employment" of the Horizon 2020 project CoAct (Co-designing Citizen Social Science for Collective Action) is a Citizen Social Science project with young Early School Leavers (ESL) aged mainly between 15 and 18 years, who take part in educational measures to fulfil their legal obligation of remaining in education or training until the age of 18 ("Education and Training up to 18"). By employing a participatory research approach, R&I Action #2 aims to develop new and adapt existing measures organised under the "Education and Training Act" through the insights gained by doing collaborative research with young people affected by these measures. To communicate and implement research results, a Knowledge Coalition is organised concurrent to the research, with the aim to bring together young people and their ideas with those responsible for developing educational measures for ESL and NEET (Not in Education, Employment, or Training) youth. The present document constitutes Deliverable 4.1 "Report on Knowledge Coalition Building" (Work Package 4) and describes how the Knowledge Coalition was constituted as a platform of different stakeholders to stimulate knowledge sharing and eventually discuss the data and results of the research project conducted with young people. The Knowledge Coalition is an integral part of the R&I Action #2, combining a diverse range of representatives from the federal and regional level as well as social workers, people from the grassroots level and youth organisations. The members of the Knowledge Coalition assist the research ...

DISCLAIMER: The present Project Deliverable has been submitted to the European Commission for review. The information and views set out in this report are those of the author(s) and do not necessarily reflect the official opinion of the European Union. Neither the European Union institutions and bodies nor any person acting on their behalf may be held responsible for the use which may be made of the information contained therein. _____ The R&I Action #2 "Youth Employment" of the Horizon 2020 project CoAct (Co-designing Citizen Social Science for Collective Action) is a Citizen Social Science project with young Early School Leavers (ESL) aged mainly between 15 and 18 years, who take part in educational measures to fulfil their legal obligation of remaining in education or training until the age of 18 ("Education and Training up to 18"). By employing a participatory research approach, R&I Action #2 aims to develop new and adapt existing measures organised under the "Education and Training Act" through the insights gained by doing collaborative research with young people affected by these measures. To communicate and implement research results, a Knowledge Coalition is organised concurrent to the research, with the aim to bring together young people and their ideas with those responsible for developing educational measures for ESL and NEET (Not in Education, Employment, or Training) youth. The present document constitutes Deliverable 4.1 "Report on Knowledge Coalition Building" (Work Package 4) and describes how the Knowledge Coalition was constituted as a platform of different stakeholders to stimulate knowledge sharing and eventually discuss the data and results of the research project conducted with young people. The Knowledge Coalition is an integral part of the R&I Action #2, combining a diverse range of representatives from the federal and regional level as well as social workers, people from the grassroots level and youth organisations. The members of the Knowledge Coalition assist the research ...

DISCLAIMER: The information and views set out in this report are those of the author(s) and do not necessarily reflect the official opinion of the European Union. Neither the European Union institutions and bodies nor any person acting on their behalf may be held responsible for the use which may be made of the information contained therein. _____ The R&I Action #2 "Youth Employment" of the Horizon 2020 project CoAct (Co-designing Citizen Social Science for Collective Action) is a Citizen Social Science project with young Early School Leavers (ESL) aged mainly between 15 and 18 years, who take part in educational measures to fulfil their legal obligation of remaining in education or training until the age of 18 ("Education and Training up to 18"). By employing a participatory research approach, R&I Action #2 aims to develop new and adapt existing measures organised under the "Education and Training Act" through the insights gained by doing collaborative research with young people affected by these measures. To communicate and implement research results, a Knowledge Coalition is organised concurrent to the research, with the aim to bring together young people and their ideas with those responsible for developing educational measures for ESL and NEET (Not in Education, Employment, or Training) youth. The present document constitutes Deliverable 4.1 "Report on Knowledge Coalition Building" (Work Package 4) and describes how the Knowledge Coalition was constituted as a platform of different stakeholders to stimulate knowledge sharing and eventually discuss the data and results of the research project conducted with young people. The Knowledge Coalition is an integral part of the R&I Action #2, combining a diverse range of representatives from the federal and regional level as well as social workers, people from the grassroots level and youth organisations. The members of the Knowledge Coalition assist the research project with their expertise on how "Education and Training up to 18" is implemented in ...

This article presents how young people in educational measures experience and discuss tensions between structural and individualised challenges they face in the transition from school to work. The findings are based on an Austrian citizen social science research project that involved conducting participatory research in Vienna with 33 young people between the ages of 15 and 23 years who are in measures for early school leavers that are preparing for further education and training. These co‐researchers struggle with constant comparisons to "norm" biographies and their accompanying social pressure as they try to meet the high expectations of school, work, and family. Additionally, mental health was a prominent issue, as the young co‐researchers experience stigma and a lack of professional support, which can impede their access to the labour market. The results of our research indicate that young people in employment measures require a more inclusive school and work environment that supports them regardless of their origin, family background, appearance, or mental health status. They negotiate the tension between individual employability and structural disadvantage and demand a recognised place in society, a request that connects to current debates concerning the individualisation of transitions from school to work.

DISCLAIMER: The present Project Deliverable has been submitted to the European Commission for review. The information and views set out in this report are those of the author(s) and do not necessarily reflect the official opinion of the European Union. Neither the European Union institutions and bodies nor any person acting on their behalf may be held responsible for the use which may be made of the information contained therein. This deliverable describes the Beta Version of the Inclusive Toolbox for Citizen Social Science, developed by the CoAct research team at the University of Vienna. The Toolbox allows for young people to independently conduct a social science research project on the topic of education and employment. The Toolbox is developed in two formats – a digital version using the app "Actionbound" and a non-digital version in form of a card game. This report describes the theoretical and methodological foundations of the Toolbox, as well as its guiding principles. It outlines the development processes to date and presents the general concept of the Toolbox, including the digital and non-digital version. It also provides initial insights into the content and structure of the digital Toolbox. After the experiences from first trial rounds with young people are shared, the next steps for the upcoming months until the completion of the Toolbox are outlined.

DISCLAIMER: The present Project Deliverable has been submitted to the European Commission for review. The information and views set out in this report are those of the author(s) and do not necessarily reflect the official opinion of the European Union. Neither the European Union institutions and bodies nor any person acting on their behalf may be held responsible for the use which may be made of the information contained therein. In CoAct (Co-Designing Citizen Social Science for Collective Action), the Research and Innovation Actions (RIA) on mental health, youth employment, and environmental justice engage with co-researchers (CoRes) in the research process who are directly affected by social concerns. By employing a participatory approach, the project demonstrates the scientific relevance of co-designed knowledge production. CoAct not only contributes to the citizen social science (CSS) approach, but to ongoing discussions on how to implement informed consent (IC) in CSS projects by highlighting specific challenges and reflecting on innovative moments from the research practice. This report constitutes the Deliverable 2.3, Report on Informed Consent Procedure Requirements and Challenges. Innovative Moments of Informed Consent in Practice for Work Package 2 (WP2), and describes continuing discussions about how regulations like the General Data Protection Regulation 2016/679 (GDPR, European Commission, 2018b) and other research-guiding principles impact CSS and their IC practices. By recognising IC as a nexus of legal requirements, research ethics, and research practice, we go beyond 'formalised informed consent,' which is a legal agreement governed by the GDPR, among others, and acknowledge its ethical dimensions. This report uses relational understandings to depict ethical dimensions of IC, and alternative approaches as to how it can be conceptualised. This is closely linked to a processual understanding, which requires incorporating scientific responsibility and accountability into its social contexts and in ...

Abstract
Breast cancer is a public health threat in the State of Qatar. It is the most common cancer and the incidence rate is increasing. It has been found that women often present with breast cancer at advanced stages in Qatar. Early detection of breast cancer is an important prognostic factor and breast cancer screening has been found successful in decreasing mortality rates. The percentage of women in Qatar engaging in screening activities is alarmingly low. A study has been designed to examine barriers and facilitators that are potentially influencing women in participating in breast cancer screening activities. Understanding these barriers and facilitators is essential in order to create a culturally appropriate and effective intervention that can encourage women in Qatar to participate in screening activities. In this paper the background to the study is presented which highlights the magnitude of the breast cancer problem in Qatar and offers the rationale and information for this potentially groundbreaking study.

Abstract

Background: Breast cancer is the most common cancer among women in the State of Qatar, and the incidence rate is rising. Previous findings indicate women in Qatar are often diagnosed with breast cancer at advanced stages and their participation rates in screening activities are low.

Purpose: To investigate within the State of Qatar Arabic women's knowledge regarding breast cancer and breast cancer screening (BCS) methods and their participation rates in BCS. This paper reports on the results of a cross-sectional survey.

Methods: A quantitative, cross-sectional interview survey was conducted with 1,063 Arabic women (Qatari citizens and non-Qatari Arabic-speaking residents), 35 years of age or older, from March 2011 to July 2011.

Results: Of the 1,063 women interviewed (87.5% response rate), 90.7% were aware of breast cancer; 7.6% were assessed with having basic knowledge of BCS, 28.9% were aware of breast self-examination (BSE), 41.8% were aware of clinical breast exams (CBE), and 26.9% were aware of mammograms. Of the women interviewed, 13.8% performed BSE monthly, 31.3% had a CBE once a year or once every two years, and 26.9% of women 40 years of age or older had a mammogram once a year or once every two years. Participation rates in BCS activities were significantly related to awareness and knowledge of BCS, education levels, and receiving information about breast cancer, self-examination or mammography from any of a variety of sources, particularly physicians.

Conclusions: Study results demonstrate that despite the existent breast cancer screening recommendations, less than one-third of Arabic women living in Qatar participate in BCS activities. Public health campaigns encouraging more proactive roles for health care professionals regarding awareness and knowledge of breast cancer, BCS, and the benefits of early detection of breast cancer will help increase screening rates and reduce mortality rates among Arabic women living in the State of Qatar.

This presentation describes the work done in the frame of the CoAct (Co-designing Citizen Social Science for Collective Action) project from January 2020 until June 2021. The presentation was done by CoAct Partners during Project Review number one, in an online meeting attended by the Project Officer and the Project Reviewer (June, 15th 2021). DISCLAIMER: The information and views set out in this presentation are those of the author(s) and do not necessarily reflect the official opinion of the European Union. Neither the European Union institutions and bodies nor any person acting on their behalf may be held responsible for the use which may be made of the information contained therein.

DISCLAIMER: The information and views set out in this report are those of the author(s) and do not necessarily reflect the official opinion of the European Union. Neither the European Union institutions and bodies nor any person acting on their behalf may be held responsible for the use which may be made of the information contained therein. CoAct proposes a new approach to face social global concerns with Research and Innovation Actions (R&I Actions) related to mental health care, youth employment, environmental justice and gender equality by engaging citizens as co-researchers. Our approach represents a new understanding of Citizen Social Science (CSS), understood here as participatory research co-designed and directly driven by citizen groups sharing a social concern. The overall objective of CoAct is to develop and demonstrate the scientific relevance and social impact of CSS, which is to date an underexplored area of Citizen Science (CS). This document constitutes Deliverable 2.1 'Report on State of the Art of Citizen Social Science' of Work Package 2 (WP2), which is dedicated to the CSS foundations. It provides a starting point towards a common framework and a common arena to better elaborate the various characteristics of CSS. CoAct wants to contribute to the debate by catalysing the discussion and enlarging the CSS community. This effort is unprecedented in the CS and the Social Science worlds and it is expected to later result into new open materials (for citizens, policy makers, NGOs and academics) and new transdisciplinary methodologies to widen the impact of CS. This report discusses CSS as a component of CS, with its main characteristics that citizens act as co-researchers conducting research on social issues with the aim of achieving transformative and sustainable impact with the research. CSS is however emerging from at three streams: from the broader spectrum of a CS community; from a participatory research background in the social sciences and humanities and moreover directly from Citizen ...

DISCLAIMER: The present Project Deliverable has been submitted to the European Commission for review. The information and views set out in this report are those of the author(s) and do not necessarily reflect the official opinion of the European Union. Neither the European Union institutions and bodies nor any person acting on their behalf may be held responsible for the use which may be made of the information contained therein. CoAct proposes a new approach to face social global concerns with Research and Innovation Actions (R&I Actions) related to mental health care, youth employment, environmental justice and gender equality by engaging citizens as co-researchers. Our approach represents a new understanding of Citizen Social Science (CSS), understood here as participatory research co-designed and directly driven by citizen groups sharing a social concern. The overall objective of CoAct is to develop and demonstrate the scientific relevance and social impact of CSS, which is to date an underexplored area of Citizen Science (CS). This document constitutes Deliverable 2.1 'Report on State of the Art of Citizen Social Science' of Work Package 2 (WP2), which is dedicated to the CSS foundations. It provides a starting point towards a common framework and a common arena to better elaborate the various characteristics of CSS. CoAct wants to contribute to the debate by catalysing the discussion and enlarging the CSS community. This effort is unprecedented in the CS and the Social Science worlds and it is expected to later result into new open materials (for citizens, policy makers, NGOs and academics) and new transdisciplinary methodologies to widen the impact of CS. This report discusses CSS as a component of CS, with its main characteristics that citizens act as co-researchers conducting research on social issues with the aim of achieving transformative and sustainable impact with the research. CSS is however emerging from at three streams: from the broader spectrum of a CS community; from a participatory ...

This presentation describes the work done in the frame of the CoAct (Co-designing Citizen Social Science for Collective Action) project from January 2020 until June 2021. The presentation was done by CoAct Partners during Project Review number one, in an online meeting attended by the Project Officer and the Project Reviewer (June, 15th 2021). DISCLAIMER: The information and views set out in this presentation are those of the author(s) and do not necessarily reflect the official opinion of the European Union. Neither the European Union institutions and bodies nor any person acting on their behalf may be held responsible for the use which may be made of the information contained therein.