Suchergebnisse

Health equality is the goal of global health policymakers (Weiss & Pollack, 2017).In the current political scenario, global health policy Development is facing significant challenges across the globe. Addressing these barriers is a complex task and requires coordination between global organizations across various healthcare domains. Our paper identifies barriers to the development of cohesive global health policy, and offer a few potential remedies in the development process of the same.

International government organizations with a global outreach are working on global health issues to achieve the objective of Health for All. The key actors in global health working on global health problems are the United Nations Educational, Scientific and Cultural Organization (UNESCO) and the Joint United Nations Program on HIV/AIDS (UNAIDS) (Johnson, Stotskopt, & Shi, 2018). These international organizations participate in generating and sharing knowledge, engage in advocacy,provide global funds for health efforts. Our paper will analyze the structure, goals, and processes of global health organizations, UNESCO and UNAIDS.

Rare diseases are defined, as any condition or disease having a low prevalence in the United States and the European Union. There is a scarcity of relevant knowledge and experience with rare diseases due to an incomplete understanding of the underlying disease mechanisms, relevant clinical endpoints, lack of correct diagnosis in the population. These challenges create a unique need for cooperation and infrastructure. Data registry is a critical tool in building a comprehensive knowledge base for these rare diseases. Our paper will provide the overview of patient registries for rare diseases, current use, limitations, challenges and proposed plan for improvement.