Controlling the Future? – Human Rights and Biotechnology
In: Maastricht journal of European and comparative law: MJ, Band 6, Heft 3, S. 299-307
ISSN: 2399-5548
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In: Maastricht journal of European and comparative law: MJ, Band 6, Heft 3, S. 299-307
ISSN: 2399-5548
In: Giving Death a Helping Hand; International Library of Ethics, Law, and the New Medicine, S. 113-128
In: The International Library of Medicine, Ethics and Law
Cover -- Half Title -- Title Page -- Copyright Page -- Table of Contents -- Acknowledgements -- Series Preface -- Introduction -- Part I Genetics - General -- 1 Julian Kinderlerer and Diane Longley (1998), 'Human Genetics: The New Panacea?', Modern Law Review, 61, pp. 603-20 -- 2 Julia Black (1998), 'Regulation as Facilitation: Negotiating the Genetic Revolution', Modern Law Review, 61, pp. 621-60 -- 3 Darryl Macer (1991), 'Whose Genome Project?', Bioethics, 5, pp. 183-211 -- 4 Sheila A.M. McLean (2001), 'The Gene Genie: Good Fairy or Wicked Witch?', Studies in History and Philosophy of Biological and Biomedical Sciences, 32, pp.723-39 -- 5 John A. Robertson (2003), 'Procreative Liberty in the Era of Genomics', American Journal of Law and Medicine, 29, pp. 439-87 -- 6 Susan M. Wolf (1995), 'Beyond "Genetic Discrimination": Toward the Broader Harm of Geneticism', Journal of Law, Medicine and Ethics, 23, pp. 345-53 -- 7 Deborah Hellman (2003), 'What Makes Genetic Discrimination Exceptional?', American Journal of Law and Medicine, 29, pp. 77-116 -- 8 Dean Bell and Belinda Bennett (2001), 'Genetic Secrets and the Family', Medical Law Review, 9, pp. 130-61 -- 9 Lawrence O. Gostin (1995), 'Genetic Privacy', Journal of Law, Medicine and Ethics, 23, pp. 320-30 -- 10 Graeme T. Laurie (2001), 'Challenging Medical-Legal Norms: The Role of Autonomy, Confidentiality, and Privacy in Protecting Individual and Familial Group Rights in Genetic Information', Journal of Legal Medicine, 22, pp. 1-54 -- 11 Philippa Gannon and Charlotte Villiers (1999), 'Genetic Testing and Employee Protection', Medical Law International, 4, pp. 39-57 -- 12 Allen Buchanan, Andrea Califano, Jeffrey Kahn, Elizabeth McPherson, John Robertson and Baruch Brody (2002), 'Pharmacogenetics: Ethical Issues and Policy Options', Kennedy Institute of Ethics Journal, 12, pp. 1-15
The scandals surrounding organ removal and retention throughout the United Kingdom provoked several Inquiries and ultimately led to law reform. Although the medical professions were well represented at the Inquiries, little was heard of the voices of those at the 'coal face'. In this scoping study, funded by the Wellcome Trust, we interviewed a number of doctors and others engaged in the uses of human tissue and organs to explore their hopes, concerns and fears about the role of the law in their practices. We found that those involved in transplantation were more aware of, and more actively involve with, the law, whereas others, such as pathologists, had less direct engagement with the law. Most of those we interviewed expressed the hope that law reform would provide much-needed clarity. Although some expressed concern that the law might be over-intrusive, most felt that the placing of authority firmly in the hands of the person him or her self to decide what should happen to their bodies was to be welcomed.
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