Linking census data with electronic medical records for clinical research: A systematic review
In: Journal of economic and social measurement, Band 43, Heft 1-2, S. 105-118
ISSN: 1875-8932
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In: Journal of economic and social measurement, Band 43, Heft 1-2, S. 105-118
ISSN: 1875-8932
In: Journal of empirical research on human research ethics: JERHRE ; an international journal, Band 10, Heft 5, S. 488-495
ISSN: 1556-2654
Community-based participatory research (CBPR) is challenging to research ethics committees (RECs). We reviewed the REC preparedness when reviewing CBPR projects. We searched the MEDLINE database and included qualitative studies of CBPR researchers or REC members about their experiences with RECs. The search yielded 107 studies, of which 10 met our criteria. Barriers were that the community is not prepared to conduct research, the reluctance of RECs to work outside the university, the difficulty RECs have understanding CBPR, and that REC forms evaluate individual rather than community risk. Facilitators were having a CBPR expert as an REC member and educating RECs. Therefore, RECs are not prepared to evaluate CBPR projects leading to unnecessary delays in the approval process.