Commentary 1: Informed Consent of Research Participants: The Gap between Regulations and Reality
In: Journal of empirical research on human research ethics: JERHRE ; an international journal, Band 14, Heft 5, S. 433-435
ISSN: 1556-2654
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In: Journal of empirical research on human research ethics: JERHRE ; an international journal, Band 14, Heft 5, S. 433-435
ISSN: 1556-2654
In: Bioethica Forum: Schweizer Zeitschrift für biomedizinische Ethik
ISSN: 1662-601X
In: Journal of empirical research on human research ethics: JERHRE ; an international journal, Band 14, Heft 5, S. 444-446
ISSN: 1556-2654
In: Bioethics, Band 33, Heft 9, S. 1012-1021
SSRN
In: Bioethica Forum: Schweizer Zeitschrift für biomedizinische Ethik
ISSN: 1662-601X
In: Studia Universitatis Babeş-Bolyai. Bioethica, Band 66, Heft Special Issue, S. 109-110
ISSN: 2065-9504
"Culture, religion, gender identity and sexual orientation play an important role in patients' and professionals' care preferences and communication. Population diversity leads to differing moral perspectives regarding health, wellbeing and care practices. This can generate value conflicts between patients and professionals concerning what good care is. Accordingly, increasing societal pluralism creates novel challenges for professionals regarding how they ought to deliver equitable and diversity-responsive care to minority populations. To support professionals in dealing with moral issues related to cultural, religious and sexual diversity in long-term-care organizations, we developed an ethics support instrument called the Diversity-Compass. The Diversity-Compass is a low-threshold instrument designed to help professionals in addressing and dealing with situations in which moral conflicts pertaining to diversity occur. We employed a participatory design and conducted seven focus groups (n=55), five expert interviews (n=5) and facilitated four meetings with a working group of various care professionals (n=18) who developed and tested preliminary versions of the instrument through iterative co-creation. Resulting from this process the Diversity-Compass emerged. Next to offering a question-based, reflection-invoking conversation method, the instrument includes seven specific tips to support professionals when engaging in conversations about diversity-related moral issues with patients or other professionals. Our study is an example of how bioethicists can provide clinical ethics support by using a participatory design and co-creatively developing an instrument to aid professionals in dealing with moral issues related to cultural, religious and sexual diversity in long-term care. The Diversity-Compass can be used by organizations and professionals to promote good, diversity-responsive care. "
In: Studia Universitatis Babeş-Bolyai. Bioethica, Band 66, Heft Special Issue, S. 107-108
ISSN: 2065-9504
"In increasingly pluralist societies, stakeholders in healthcare do not always share a common moral perspective on health, wellbeing or good care. Growing cultural, religious, and sexual diversity among both patients and healthcare professionals (HCPs) require healthcare organizations to address these differences and to engage in inclusive and equitable practices. Addressing diversity, however, comes with inherent moral challenges. For example, regarding how to deal with healthcare disparities between minoritized and majoritized patients. Additionally, increasing diversity in the workforce means that HCPs moral perspectives on 'good care' are diversifying. Developing diversity statements is an important strategy for healthcare organizations to define their normative ideas, values, and approaches to both care and diversity. To tackle concerns of exclusion and power differences, and to ensure that these statements reflect a common ground among HCPs, healthcare organizations ought to develop diversity statements in an inclusive and participatory way. Clinical ethics support (CES) services and interventions such as Socratic Dialogues can be employed to help healthcare organizations to do so. In this presentation, we (1) argue for taking a participatory approach when supporting healthcare organisations in developing diversity statements, (2) report both on the content and the process of developing a diversity statement through CES and Socratic Dialogues, and (3) maintain that CES that supports processes of joint reflection and learning among stakeholders can be used in such an approach. We will use a case example from practice to illustrate our point. We conclude with several recommendations regarding a participatory CES approach for developing diversity statements. "