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The need for comprehensive core curricula in medical education regarding the health of persons with disabilities has been identified by disability scholars for many years and was recently reinforced by our research indicating Canadian physicians lack knowledge of the social model of disability, and their legal duty to ensure accommodation for persons with disabilities to have equal access to health. The purpose of the current research is to investigate the existence of core medical education curricula devoted to the health of persons with disabilities and determine whether persons with disabilities were involved as curricular designers and educators. A comprehensive literature search of all academic sites found few papers reporting on such curricula, and the time devoted to these curricula was small. Only one medical school internationally was found to have persons with disabilities playing a major role as curricular designers. Further problematic was that "disability" tended to be portrayed by non-disabled professional actors hired as standardized patients (SPs), and only occasionally by actors with disabilities but in scripted SP roles distant from their lived experience. We contend that if persons with disabilities designed medical curricula, non-disabled SPs would be replaced by persons with disabilities as medical educators, sharing their own lived experiences. Another alternative in replacing professional able-bodied actor SPs is the novel education method of digital storytelling, with disabled persons sharing their lived experiences. Another immediate opportunity exists in Canada in the newly developing competency-based curricula for prominent core competencies to be designed and taught by persons with disabilities.

In Canada, 15% of women report having a disability, most frequently mobility-related. Research with women with disabilities has for decades brought attention to barriers to reproductive health promotion. Research with physicians regarding why these barriers exist and how they can be dissolved has not occurred. Physicians were recruited through email and pamphlets to participate in 30-45 minute in-person interviews, audiotaped and transcribed verbatim. Charmaz-based qualitative analysis was supported by NVivo10TM software. Twenty-five interviews were conducted before theoretical sufficiency. Six themes were co-constructed: I-Physicians' Perceptions of Barriers; II-Physicians' Perceptions of Consequences of Barriers; III-Resolving Barriers; IV-Physicians' Sub-Understanding of Legal Right to Accommodation; V-Obligation of Physicians to Advocate for Accommodation; and VI-Language Suggesting Physicians' Lack of Understanding of How Persons with Disabilities See Themselves and Want to be Seen. Physicians identified physical access barriers previously identified in critical disability studies literature, but did not identify the barriers of physician attitudes and lack of information provision as reported in this literature. Physicians perceived their additional time for pap smears and other surveillance strategies as barriers, particularly when not remunerated. Physicians were unaware of their legal obligation to accommodate under human rights codes, perceiving that taking extra time to provide accommodation was doing so out of the "goodness of your heart". Physicians used language illustrating many were unaware of how disabled persons see themselves and want to be seen. Education regarding disability rights and culture must be introduced immediately and prominently into all levels of medical education, with the educators being people with disabilities.

Abstract Background Current developments in science and the media have now placed pregnant women in a precarious situation as they are charged with the responsibility to navigate through information sources to make the best decisions for her pregnancy. Yet little is known regarding how pregnant women want to receive and use health information in general, let alone information regarding the uncertain risks to pregnancy in everyday household products such as phthalates found in cosmetics and canned food liners. Using phthalates as an example, this study investigated how pregnant women obtain, evaluate, and act on information regarding their pregnancy. Methods Pregnant women were recruited using pamphlets and posters distributed in prenatal clinics, prenatal fairs and physician offices in Southwestern Ontario Canada. Research participants were engaged in 20 to 40 min semi-structured interviews regarding their use of information sources in pregnancy, particularly regarding phthalates in cosmetics and canned food liners. Interviews were transcribed verbatim and analyzed using constructivist grounded theory techniques supported by NVivo 9™ software. Results Theoretical sufficiency was reached after 23 pregnant women were interviewed and their transcripts analyzed. Three overlapping themes resulted from the co-constructed analysis: I-Strength of Information Sources; II-Value Modifiers; and III-Deciding to Control Exposure. The research participants reported receiving information from a wide range of sources that they perceived varying in strength or believability. They then described the strategies employed to increase the validity of the message in order to avoid risk exposure. Pregnant women preferred a strong source of information such as physician, government but frequently used weak sources such as the internet or the opinions of friends. A model was developed from the relationship between themes that describes how pregnant women navigate the multiple sources of information available to them. Conclusion Our study provides insight into how pregnant women receive, appraise, and act on information regarding everyday household chemicals. Clinicians and their professional organizations should produce specific educational materials to assist women in understanding exposure to everyday products in pregnancy.

Since the advent of the Human Genome Project in 1989, the ethical. legal, and social implications inherent in future genetic science and its applications have worried researchers and scholars in law and ethics. Concern that the results of genetic testing might be used to discriminate against particular individuals and groups of individuals has been paramount, prompting calls for specific legislation to protect against genetic discrimination. Against this backdrop we sought to investigate instances of genetic discrimination in Canadian legal decisions. We searched Canadian court and administrative tribunal decisions, using the key words "genetic predisposition" and its cognates, and found none that took up the issue of genetic discrimination. However, in 468 decisions, "genetic predisposition" was used by courts and tribunals when describing the causal origins of health related conditions. Genetic predisposition was cited with respect to numerous health conditions, and in various areas of law, in particular criminal, family, workers' compensation, and tort. In several criminal law decisions, genetic predisposition served to explain the origin of a mental health condition in addressing the issue of criminal responsibility. The predominant use in family law was in describing a child's health condition in crown wardship and youth protection proceedings. In workers' compensation and tort, genetic predisposition was used to argue whether the claimant's condition was inherited rather than related to the workplace or the negligence of the defendant. Genetic predisposition, when used to argue the issue of disease causation on a balance of probabilities, reflects "geneticization": the tendency to describe the underlying basis of health and disease as genetic. Geneticization, like genetic discrimination, can be problematic. Specifically, both may exaggerate the extent to which genetic information is exceptional and determinative of health and disease outcomes. Also, geneticization. like genetic discrimination. may marginalize people on a perceived genetic basis.

Frontmatter -- Contents -- Foreword: Too Long Too Short / Vonnegut, Mark -- Acknowledgments -- Introduction: The Why, The What, And The How Of The Medical/Health Humanities / Friedman, Lester D. / Wear, Delese / Jones, Therese -- Part I. Disease And Illness -- Chapter 1. Being A Good Story: The Humanities As Therapeutic Practice / Frank, Arthur W. -- Chapter 2. Illuminating The It, Thee, And We Of Disease And Illness: The Metamorphosis And Related Works / Soricelli, Rhonda L. / Flood, David H. -- Chapter 3. "This Weird, Incurable Disease": Competing Diagnoses In The Rhetoric Of Morgellons / Keränen, Lisa -- Chapter 4. My Quest For Health / Wall, Shelley / Sappol, Michael -- Part II. Disability -- Chapter 5. Disability In Two Doctor Stories / Holmes, Martha Stoddard -- Chapter 6. Music And Disability / Straus, Joseph N. -- Chapter 7. American Narrative Films And Disability: An Uneasy History / Norden, Martin F. -- Chapter 8. Standout / Iezzoni, Lisa I. -- Part III. Death And Dying -- Chapter 9. When The Doctor Is Not God: The Impact Of Religion On Medical Decision Making At The End Of Life / Cohn, Felicia -- Chapter 10. Postmodern Death And Dying: A Literary Analysis / Lantos, John / Montello, Martha -- Chapter 11. Second Degree Block: Poem And Commentary / Haddad, Amy -- Part IV. Patient- Professional Relationships -- Chapter 12. Social Studies: The Humanities, Narrative, And The Social Context Of The Patient-Professional Relationship / Garden, Rebecca -- Chapter 13. Humanities And The Medical Home / Hester, Rebecca / Brody, Howard / Clark, Mark -- Chapter 14. Occupational Medicine / Coulehan, Jack -- Part V. The Body -- Chapter 15. The Virtues Of The Imperfect Body / Tong, Rosemarie -- Chapter 16. Seeing Bodies In Pain / Gilman, Sander L. -- Chapter 17. Public Fetuses / Hausman, Bernice L. -- Chapter 18. More Body: A Performance For Five (Or More) Bodies / Case, Gretchen A. -- Part VI. Gender And Sexuality -- Chapter 19. Adult Intake Form / Peterkin, Allan -- Chapter 20. What Is Sex For? Or, The Many Uses Of The Vag / Dreger, Alice -- Chapter 21. "I Always Prefer The Scissors": Isaac Baker Brown And Feminist Histories Of Medicine / Levine-Clark, Marjorie -- Chapter 22. Comics In The Health Humanities: A New Approach To Sex And Gender Education / Squier, Susan M. -- Chapter 23. I Am Gula, Hear Me Roar: On Gender And Medicine / Campo, Rafael -- Part VII. Race And Class -- Chapter 24. Listening As Freedom: Narrative, Health, And Social Justice / DasGupta, Sayantani -- Chapter 25. Race And Mental Health / Metzl, Jonathan M. -- Chapter 26. Law'S Hand In Race, Class, And Health Inequities: On The Humanities And The Social Determinants Of Health / Goldberg, Daniel -- Chapter 27. The Rooms Of Our Souls / Grainger-Monsen, Maren -- Part VIII. Aging -- Chapter 28. "Old Age Isn'T A Battle, It'S A Massacre": Reading Philip Roth'S Everyman / Saxton, Benjamin / Cole, Thomas R. -- Chapter 29. "Do You Remember Me?" Constructions Of Alzheimer'S Disease In Literature And Film / Kaplan, E. Ann -- Chapter 30. Love In The Time Of Dementia / Winakur, Jerald -- Part IX. Mental Illness -- Chapter 31. Narrating Our Sadness, With A Little Help From The Humanities / Lewis, Brad -- Chapter 32. Teaching Narratives Of Mental Illness / Jones, Anne Hudson -- Chapter 33. Community Psychiatry And The Medical Humanities / Rowe, Michael -- Chapter 34. Culpability / Williams, Ian -- Part X. Spirituality And Religion -- Chapter 35. Rites Of Bioethics / Chambers, Tod -- Chapter 36. Health And Humanities: Spirituality And Religion / Selman, Lucy / Barfield, Raymond C. -- Chapter 37. Scientia Mortis And The Ars Moriendi: To The Memory Of Norman / Bishop, Jeffrey P. -- Chapter 38. Meditations Of An Anesthesiologist: Poem And Commentary / Shafer, Audrey -- Part XI. Science And Technology -- Chapter 39. Andromeda'S Futures: A Story Of Humanities, Technology, Science, And Art / Belling, Catherine -- Chapter 40. Knowing And Seeing: Reconstructing Frankenstein / Wolpe, Paul Root -- Chapter 41. A Brief History Of Love: A Rationale For The History Of Epidemics / Kavey, Allison B. -- Chapter 42. Calcedonies / Nisker, Jeff -- Part XII. Health Professions Education -- Chapter 43. Teaching Autism Through Naturalized Narrative Ethics: Closing The Divide Between Bioethics And Medical Humanities / Aultman, Julie M. -- Chapter 44. Courting Discomfort In An Undergraduate Health Humanities Classroom / Lamb, Erin Gentry / Blackie, Michael -- Chapter 45. The Medical Humanities In Medical Education: Toward A Medical Aesthetics Of Resistance / Bleakley, Alan -- Chapter 46. In Defense Of Cheaper Stethoscopes / Baruch, Jay -- References -- Notes On Contributors -- Index