Suchergebnisse

Abstract.In the last decade, autism has become one of the most hotly contested health policy issues in North America and beyond. From debates about the role of vaccines to the efficacy of therapeutic interventions, a range of civil society actors has been advocating for policy and societal change in the field, with mixed success. In Canada, this culminated in 2004 with a much-publicized Supreme Court decision—Auton v. British Columbia—that pitted parents of autistic children against the BC government, which was unwilling to cover the costs of behavioural treatment for autistic children. In contrast to parent-led advocacy groups, there has been a flurry of civil society activity waged by autistic self-advocates who decry the focus on curing autistic people and press instead for the recognition of neurological difference. Drawing on interviews with advocates in Canada and the US, this article highlights these contending perspectives and argues that both pose fundamental challenges to how we view the redistributive aims of the welfare state in Canada and beyond.Résumé.Au cours de la dernière décennie, l'autisme est devenu l'un des enjeux les plus controversés dans le domaine de la santé au Canada et à l'étranger. Que ce soit lors de débats sur le rôle des vaccins ou encore sur l'efficacité des interventions thérapeutiques, plusieurs acteurs de la société civile ont milité, avec un succès mitigé, en faveur de changements dans politiques et sociaux par rapport à l'autisme. Au Canada, cet activisme résultera en une décision fort controversée de la Cour Suprême en 2004,Auton v. Colombie-Brittanique, portant sur un conflit entre les parents d'enfants autistes et le gouvernement de la Colombie-Britannique, qui refusait de payer le coût des traitements pour les enfants autistes. En parallèle au militantisme des parents d'enfants autistes, des individus autistes se sont aussi mobilisés pour dénoncer cette fois l'objectif même de guérir les personnes autistes. Ces derniers exigent plutôt que soient reconnues leurs différences et, de manière plus large, le principe de la diversité neurologique. Se basant sur des entrevues avec des militants et des militantes, cet article présente ces différentes perspectives et démontre qu'elles remettent en question la façon dont nous conceptualisons le modèle de redistribution associé à l'État-providence.

There is a burgeoning literature in the social sciences on the politics of reparations for historical injustices. Using a case study of Canada, this article asks whether people with hemophilia who contracted HIV and/or hepatitis C through the blood system should be viewed as victims of cultural injustice. The dominant approach to understanding the claims made on behalf of tainted-blood recipients is the narrow frame of compensation for medical injury. Tainted-blood recipients are cast as the unwitting victims of a system that placed a premium on cost savings over patient safety. Giving contaminated blood to members of a community who were presumed to be already infected made sound economic sense at the time. As members of a tight-knit community, people with hemophilia have been stigmatized and subjected to school-yard taunts from classmates who viewed them as sissies because they had special medical needs and because of their association with a `gay disease'. Weaving elements of social movement theory and the reparations literature, I argue that the inarticulation of recognition claims to remedy cultural injustice simplified the state's response to the redistributive claims made on behalf of tainted-blood victims.

The term ''blood activism'' describes the range of collective challenges that arose among victims of Canada's tainted-blood scandal in the 1990s. This article examines the emergence of blood activism in Canada from the perspective of social movement theory, paying particular attention to the tensions between victims who contracted HIV through tainted blood and those who contracted Hepatitis C, the so-called ''forgotten victims'' of the tragedy. This study discusses how changes in the ''political opportunity structure''—loosely defined in the literature as aspects of the movement's external environment—influenced the nature of political action pursued by victims of tainted blood, the negotiation of the movement's collective identity and policy outcomes.

"Mobilizing Metaphor illustrates how artistic and radical efforts are reshaping disability activism in Canada and, in the process, challenging dominant perceptions of disability. Recent changes to Canadian disability policy have seen disability programs hampered by funding cuts and other austerity measures. But this oppression has also given new life to an already vibrant Canadian tradition of disability activism. Until now, research has focused on the legal and policy spheres and overlooked disability activism that expresses itself alongside and outside conventional policy reform, often through a variety of art forms. Here, contributions by disability artists, activists, and academics show how disability art is distinctive as both art and social action. Richly illustrated with photographs and other images, and including an insightful concluding chapter by renowned disability scholar Tanya Titchkoksy, this array of artistic, cultural, and radical approaches to disability politics demonstrates that disability activism is as varied as the populations it represents. As the contributors sketch the shifting contours of disability politics in Canada and show how disability oppression is not isolated from other prejudices, they challenge us to re-examine how we enact social and political change."--

AbstractThis article examines the emotional terrain and discursive frames that govern the constitution of those subject to the "dangerous offender" (DO) designation in Canada. Focusing on the emotion of remorse, we discuss four narratives involving individuals who went through the DO hearing process, gaining significant media attention. Asking what role Indigeneity and other factors play in how the media discuss the emotional comportment of DOs, we examine the persistence of particular discursive frames in these narratives, and the counter-frames that challenge or disrupt dominant understandings of what it is appropriate to feel. The expression of emotion, and its interpretation, can be critical to the outcome of cases, criminalized people/survivor stigmatization, and normalization of punishment and may also motivate community mobilization and prompt policy change. Yet, emotion, and how it may be performed and interpreted differently, is not well understood or discussed in these narratives.

Disability, mad and d/Deaf arts are motivated to transform the arts sector and beyond in ways that foreground differing embodiments. But how do we know if such arts-based interventions are actually disrupting conventional ways of experiencing and consuming art? This article presents three themes from a critical literature review relevant to curating and creating artwork meant to spur social change related to non-normative bodies. We highlight examples that push beyond standard survey measurement techniques, such as talk-back walls and guided tours by people with lived experiences. We also explore the myriad affective outcomes of art and how we might measure emotional reactions, recognizing that disability itself is imbricated in structures of feeling. We argue that such efforts must integrate concepts of access from the field of critical disability studies. Ultimately, tools for measuring audience response to politicized art must contribute to challenging and transforming these structures.

Disability, mad and d/Deaf arts are motivated to transform the arts sector and beyond in ways that foreground differing embodiments. But how do we know if such arts-based interventions are actually disrupting conventional ways of experiencing and consuming art?This article presents three themes from a critical literature review relevant to curating and creating artwork meant to spur social change related to non-normative bodies. We highlight examples that push beyond standard survey measurement techniques, such as talk-back walls and guided tours by people with lived experiences. We also explore the myriad affective outcomes of art and how we might measure emotional reactions, recognizing that disability itself is imbricated in structures of feeling. We argue that such efforts must integrate concepts of access from the field of critical disability studies. Ultimately, tools for measuring audience response to politicized art must contribute to challenging and transforming these structures.

AbstractIn Canada, as in other industrialized welfare states, definitions of health system sustainability reflect different goals and correspondingly diverse ways of understanding exactly what is to be sustained and how. In this article, we report on results from a survey of documents and groups involved in and/or concerned about sustainability of the healthcare system. We identify four broad narratives of sustainability in Canadian healthcare reform discourse, and explore what these different sustainability narratives tell us about the character and contours of these often‐fractious debates. We argue that sustainability itself may not be a paradigm shift, as has been suggested, but a plot device that helps to steer the story in a particular direction, 'black‐boxing' certain aspects of context and emphasizing others.

Senior Project submitted to The Division of Social Studies of Bard College.