Suchergebnisse

Ziel dieser Studie war es zu erläutern, wie die Lebensgeschichten von Frauen mit chronischer Polyarthritis eingebettet sind und geformt werden von für als selbstverständlich angenommenen Praktiken innerhalb des Gesundheitssystems. Eine Sekundäranalyse der Lebensgeschichten von sechs Frauen mit chronischer Polyarthritis wurde durchgeführt. Die Lebensgeschichten der sechs Frauen waren in der Primärstudie (STAMM et al. 2008) einer Typologie mit dem Namen "chronische Polyarthritis als Quelle für neue Herausforderungen" zugeordnet worden. Die feministische Standpunkttheorie und ausgewählte feministische Philosophien dienten als theoretischer Bezugsrahmen für diese Sekundäranalyse.
In der Analyse wurde deutlich, dass jede der sechs Frauen zumindest an einem Punkt in ihrer Lebensgeschichte begann, die Praktiken innerhalb des Gesundheitssystems und die kognitive Autorität der Medizin zu hinterfragen. Dieses Bewusstsein befähigte die Frauen, dem eigenen Wissen zu vertrauen und selbst Entscheidungen für die eigene Gesundheit zu treffen. Die Ergebnisse der Analyse eröffnen für Professionelle aus dem Gesundheitssystem die Möglichkeit, ihre für selbstverständlich genommenen Praktiken kritisch zu hinterfragen. Durch eine solche kritische Auseinandersetzung und das Bewusstsein, wie diese Praktiken in einem breiteren System eingebettet sind, können möglicherweise zukünftige Rahmenbedingungen initiiert werden, die den Dialog zwischen Patient/innen und Professionellen im Gesundheitssystem fördern.

AbstractMaking one's own choices is an important part of leading a fulfilling life within society. However, people with IDs often face significant obstacles when making their own decisions. Article 12 (Equal recognition before the law) of the United Nations Convention on the Rights of Persons with Disabilities (CRPD) aims to ensure firstly that people with IDs and others with compromised capacity are nonetheless recognized as legal individuals, and secondly that assistance is provided in the form of supported decision‐making in order to exercise this resulting legal capacity. It is unclear whether current national legislation in any country satisfies these requirements in practice. This study utilizes institutional ethnography to reveal how decision‐making is coordinated in practice for people with mild to moderate IDs living in supported residential environments in England, and to determine whether these processes are compliant with Article 12 of the CRPD. Data collection was based on observations, semi‐structured interviews, and documentary analysis, involving 29 participants including people with mild to moderate IDs. The results point to the complexity of supported decision‐making and identify three main categories of decision‐making: spontaneous decisions, mid‐term decisions, and strategic decisions. The data also show that people with mild to moderate IDs are able to exercise their legal capacity through support decision‐making in their everyday life. Immediate and informal supported decision‐making exists in daily practice for people with mild to moderate IDs living in supported residential environments. Although there are structures in place for implementing supported decision‐making, various barriers persist that limit the overall efficacy and consistency of the realization of supported decision‐making, for example, multiple use of mental capacity assessments. Such practices move away from the supported decision‐making model toward substituted decision‐making.

Context: Environmental factors play a key role in the lives of individuals with a spinal cord injury (SCI). This study identifies environmental barriers and their impacts on daily lives as perceived by individuals living with SCI in Mongolia. Design: A qualitative study with semi-structured interviews was conducted. A topic guide for the interviews was structured around the components of the International Classification of Functioning, Disability, and Health. Setting: Urban and rural areas of Mongolia. Participants: A purposive sample of 16 persons with traumatic SCI. Interventions: Not applicable. Outcome Measures: Not applicable. Results: Seven categories of environmental barriers were mentioned, such as poor access to the physical environment, absence of wheelchair-friendly transportation, negative societal attitudes, inadequate health and rehabilitation services, lack of access to assistive devices and medicines, limited financial resources for healthcare, and inaccurate categorization of disabilities in laws. These barriers were claimed to have an impact on physical and psychological health, limit activities, and restrict participation in almost all areas of life. Conclusion: This study contributes to the identification of targets for interventions aimed at improving the lived experience of persons with SCI in a low-resource context. The findings reveal that while the Mongolian government already has laws and policies in place to improve access to the physical environment, transportation, assistive devices and employment, much more has to be done in terms of enforcement. Specialized SCI care and rehabilitation services are highly demanded in Mongolia.