Examining Tuskegee: the infamous syphilis study and its legacy
In: The John Hope Franklin series in African American history and culture
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In: The John Hope Franklin series in African American history and culture
In: Social history of medicine
ISSN: 1477-4666
In: Signs: journal of women in culture and society, Band 45, Heft 1, S. 251-252
ISSN: 1545-6943
In: Journal of policy history: JPH, Band 23, Heft 1, S. 6-28
ISSN: 1528-4190
In: Journal of policy history: JPH, Band 23, Heft 1
ISSN: 0898-0306
Policy is often made based on historical understandings of particular events, and the story of the "Tuskegee" study has, arguably more than any other medical research experiment, shaped policy surrounding human subjects. The forty-year study of "untreated syphilis in the male Negro" sparked outrage in 1972 after it became widely known, and it inspired the political push for requirements for informed consent, the protection of vulnerable subjects, and oversight by institutional review boards. Historians of the study have spent decades now trying to correct the misunderstandings in the public and the academy, and to make the facts as knowable as possible. The story is horrific enough, it is argued, without perpetuating misunderstanding over what really did happen and how many knew about it. Adapted from the source document.
In: Social history of medicine, Band 2, Heft 1, S. 106-107
ISSN: 1477-4666
In: Women's studies international forum, Band 28, Heft 5, S. 430-444
In: The women's review of books, Band 13, Heft 2, S. 22
In: Studies in social medicine
In: The women's review of books, Band 6, Heft 4, S. 12
For decades, the field of bioethics has shaped the way we think about ethical problems in science, technology, and medicine. But its traditional emphasis on individual interests such as doctor-patient relationships, informed consent, and personal autonomy is minimally helpful in confronting the social and political challenges posed by new human biotechnologies such as assisted reproduction, human genetic modification, and DNA forensics. Beyond Bioethics addresses these provocative issues from an emerging standpoint that is attentive to race, gender, class, disability, privacy, and notions of democracy—a ";new biopolitics."; This authoritative volume provides an overview for those grappling with the profound dilemmas posed by these developments. It brings together the work of cutting-edge thinkers from diverse fields of study and public engagement, all of them committed to this new perspective grounded in social justice and public interest values