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"Cover " -- "Title Page " -- "Copyright " -- "Contents" -- "Preface" -- "Acknowledgments" -- "Chapter 1. Intellectual Disability and How It Is Diagnosed" -- "Chapter 2. A Brief History of and Introduction to the Modern American Death Penalty" -- "Chapter 3. The Supreme Court and the Categorical Exemption from Capital Punishment for Persons with Intellectual Disability: Atkins v. Virginia" -- "Chapter 4. Atkins on the Ground: Post-Atkins Lower Court Decisions" -- "Chapter 5. Assessing Intellectual Functioning" -- "Chapter 6. Assessing Adaptive Behavior" -- "Chapter 7. Assessing the Age of Onset" -- "Chapter 8. Expert Witnesses" -- "Chapter 9. The Future of Atkins

AbstractBackgroundStudies have reported unmet health needs in individuals with intellectual disability (ID). This study illustrated and analysed patterns of healthcare services utilization among people with intellectual disability and compared their use to that of the general population.MethodParticipants (N = 791, aged 15–82) were mainly recruited through government‐financed agencies specializing in services for people with intellectual disabilities in Québec, Canada. Comparisons were possible by using health administrative data.ResultsSome services were more used by people with intellectual disability than the general population (general medicine, psychiatry, PSA blood tests), and others were accessed at significantly lower frequencies (optometry, physiotherapy, Pap tests). Similar rates were found for mammography, dentistry and psychology. Inequities were more salient for individuals who had more severe levels of intellectual disability.ConclusionsOur findings support that the population with intellectual disability would benefit from policies and practices aimed at enhancing the access to healthcare services.

AbstractIn this national survey of departments of developmental disabilities services across the United States, we attempted to establish the number of the states that made remote support services available as an authorized service in some state Medicaid funded developmental disabilities waiver programs. Remote support services were defined as a service that uses technology to support an individual with developmental disabilities and is provided from a location outside of the person's home. Remote support services involve the use of technology to provide real‐time assistance from a direct support professional from a remote location. We found that 18 of the 49 states (37%) that responded to our telephone survey reported offering some form of remote support services. This survey was conducted pre‐COVID‐19 and the implications of the availability of remote support services are discussed especially in light of COVID‐19.

AbstractBackgroundThe use of remote support technologies is a newer form of service that can contribute to increased independence while giving adults with intellectual and developmental disabilities a sense of home safety. This research reviewed the use of remote support services, which is a waiver service that includes smart home technologies and remote support staff that can be called upon, when needed.MethodUsing focus groups and telephone interviews, the present authors asked users of remote support services about their experience, including what they liked most and least about their experience with these technologies.ResultsOverall, increased independence and a sense of security and home safety were identified as the two principal benefits. Remote support technologies may be a part of the solution to addressing the lack of direct support professionals available to provide in‐home care.ConclusionsThe present authors discuss the benefits of remote support technologies and offer recommendations for future research regarding remote support technologies and the potential benefits of this newer form of support service.

AbstractThis qualitative study was carried out in Spain with the aim of identifying the changes that the health system should make to improve healthcare access for older adults with intellectual disability. Three hundred and sixty‐nine family members and professionals expressed their opinion on how healthcare access could be improved. Participants responded to two open‐ended questions included in a general survey about the health status of older individuals with intellectual disability. Most informants were women and professionals who had known the person with intellectual disability for more than 12 months. A system of categories, which showed good inter‐rater agreement, was developed to analyse participants' written responses. Both family members and professionals emphasized the need to improve disability training for healthcare practitioners and highlighted the urgent need for flexibility in the structure of a healthcare system that currently overlooks the specific needs of this vulnerable population.

"This comprehensive, interdisciplinary handbook presents the latest research in the study, assessment, treatment, and understanding of intellectual and developmental disabilities. The past five decades have resulted in dramatic breakthroughs in the understanding of intellectual and developmental disabilities (IDD). Editor-in-Chief Laraine Masters Glidden and her editorial team provide an overview of the historical foundations of the field of IDD as well as up-to-date material on clinical diagnosis, assessment, interventions, and treatments for such conditions. It goes on to address legal, ethical, and educational issues; and other social issues that affect the lives of people with IDD, including family impact and adjustment, relationships and parenting, spirituality, residential and caretaking services, maltreatment and criminal justice issues, stigma and ableism, health, and aging. Chapters address the etiology and treatment of specific conditions (including Down syndrome, fragile X syndrome, other genetic and chromosomal conditions, autism spectrum disorder, acquired brain injury, cerebral palsy, and fetal alcohol spectrum disorders) as well as functioning in multiple domains and throughout the lifespan. Contributing causes to IDD are explored within various contexts such as culture, race, ethnicity, and socioeconomic status."

"This comprehensive, interdisciplinary handbook presents the latest research in the study, assessment, treatment, and understanding of intellectual and developmental disabilities. The past five decades have resulted in dramatic breakthroughs in the understanding of intellectual and developmental disabilities (IDD). Editor-in-Chief Laraine Masters Glidden and her editorial team provide an overview of the historical foundations of the field of IDD as well as up-to-date material on clinical diagnosis, assessment, interventions, and treatments for such conditions. It goes on to address legal, ethical, and educational issues; and other social issues that affect the lives of people with IDD, including family impact and adjustment, relationships and parenting, spirituality, residential and caretaking services, maltreatment and criminal justice issues, stigma and ableism, health, and aging. Chapters address the etiology and treatment of specific conditions (including Down syndrome, fragile X syndrome, other genetic and chromosomal conditions, autism spectrum disorder, acquired brain injury, cerebral palsy, and fetal alcohol spectrum disorders) as well as functioning in multiple domains and throughout the lifespan. Contributing causes to IDD are explored within various contexts such as culture, race, ethnicity, and socioeconomic status"--

"A personal support plan provides a system of supports that is tailored to the strengths and needs of the individual and facilitates the attainment of their personal goals and the enhancement of their well-being. A personal support plan follows that assessment of the individual's support needs and the intensity of those needs, as with the Supports Intensity Scale--Adult Version (SIS-A) and the Supports Intensity Scale-Children's Version (SIS-C). This guide describes in detail the steps involved in the systematic approach to the development of personal support plans."--Cover

AbstractThe authors assessed available prevalence information regarding neuropsychiatric conditions among adults with Down syndrome (DS) and compared these findings among adults with other intellectual disability (non‐DS). The study entailed a survey of 291 adults with DS living in Ohio (USA). Twenty‐three percent of adults with DS reported having a co‐occurring psychiatric disorder, a smaller than the reported occurrence of such conditions in the general adult intellectual disability population. Depression, anxiety disorders, and dementia or Alzheimer's disease were the most frequently reported neuropsychiatric disorders by adults with DS. The likelihood of experiencing a psychiatric disorder increased with age but did not vary by sex among adults with DS. Lower rates of problem behavior were reported in adults with DS compared to adults with intellectual disability (non‐DS). The authors' findings indicate that adults with DS may present different rates and types of co‐occurring psychiatric disorders than the larger population of adults with other intellectual disability. These findings warrant additional research and could provide critical information for planning and intervention.

AbstractBackgroundMental health conditions are common among individuals with intellectual disability. Under recognition of mental health disorders leading to unmet treatment needs is common in this population. This article addresses one major contributing factor, the lack of cognitively accessible self‐report measures for individuals with intellectual disability.MethodIn this literature‐informed overview of the state of the field, we discuss the need for, and complexities of, including individuals with intellectual disability in mental health assessments.ResultsWith appropriate supports, many individuals with intellectual disability can respond to mental health questions. We discuss evidence‐based strategies to make mental health assessments more accessible.ConclusionWe highlight the need to engage individuals with intellectual disability to provide first‐hand information about their health and well‐being. New instruments and research procedures should be developed in partnership with individuals with intellectual disability. Self‐report may be essential to advancing the science of mental health research.