Adult Siblings' Perceptions of Family Life and Loss: A Pilot Case Study
In: Journal of developmental and physical disabilities, Band 16, Heft 1, S. 53-71
ISSN: 1573-3580
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In: Journal of developmental and physical disabilities, Band 16, Heft 1, S. 53-71
ISSN: 1573-3580
In: International journal of population data science: (IJPDS), Band 5, Heft 5
ISSN: 2399-4908
IntroductionLinked health record collections, when combined with large longitudinal surveys, are a rich research resource to inform policy development and clinical practice across multiple sectors.
Objectives and ApproachThe Australian Longitudinal Study on Women's Health (ALSWH) is a national study of over 57,000 women in four cohorts. Survey data collection commenced in 1996. Over the past 20 years, ALSWH has also established an extensive data linkage program.
The aim of this poster is to provide an overview of ALSWH's program of regularly up-dated linked data collections for use in parallel with on-going surveys, and to demonstrate how data are made widely available to research collaborators.
ResultsALSWH surveys collect information on health conditions, ageing, reproductive characteristics, access to health services, lifestyle, and socio-demographic factors. Regularly updated linked national and state administrative data collections add information on health events, health outcomes, diagnoses, treatments, and patterns of service use.
ALSWH's national linked data collections, include Medicare Benefits Schedule, Pharmaceutical Benefits Scheme, the National Death Index, the Australian Cancer Database, and the National Aged Care Data Collection. State and Territory hospital collections include Admitted Patients, Emergency Department and Perinatal Data. There are also substudies, such as the Mothers and their Children's Health Study (MatCH), which involves linkage to children's educational records.
ALSWH has an internal Data Access Committee along with systems and protocols to facilitate collaborative multi-sectoral research using de-identified linked data.
Conclusion / ImplicationsAs a large scale Australian longitudinal multi-jurisdictional data linkage and sharing program, ALSWH is a useful model for anyone planning similar research.
In: Australian journal of social issues: AJSI, Band 54, Heft 3, S. 305-322
ISSN: 1839-4655
AbstractPast research has identified the salience of the notion of "good motherhood" in countries such as Australia, where women are expected to invest significant time and energy, often through self‐sacrifice, to raise their children. We analysed free‐text comments provided in response to an open‐ended question from the Australian Longitudinal Study on Women's Health (ALSWH) to examine whether the discourse of "good motherhood" played any role in how women articulate their experiences of juggling paid employment with motherhood. Eighty women from the cohort born 1973–78 were included, providing 223 comments. "Good motherhood" underpinned many of the accounts about combining motherhood with paid employment. Women reported life as stressful and hectic as they attempted to juggle the demands of childcare with paid employment and domestic chores. Although some identified "good motherhood" as an unachievable ideal, most were largely unable to disengage with this discourse. Broader social structures, such as inflexible working conditions, were found to reinforce and support this ideal, contributing to the strength of the discourse.
In: Disability and rehabilitation. Assistive technology : special issue, Band 1, Heft 1-2, S. 29-40
ISSN: 1748-3115
In: http://www.biomedcentral.com/1472-6963/12/179
Abstract Background In Australia, Medicare, the national health insurance system which includes the Medical Benefits Scheme (MBS) and Pharmaceutical Benefits Scheme (PBS), provides partial coverage for most medical services and pharmaceuticals. For war widows, the Department of Veterans' Affairs (DVA) covers almost the entire cost of their health care. The objective of this study was to test whether war widows have higher usage of medical services and pharmaceuticals. Methods Data were from 730 women aged 70–84 years (mostly World War II widows) participating in the Australian Longitudinal Study on Women's Health who consented to data linkage to Medicare Australia. The main outcome measures were PBS costs, claims, co-payments and scripts presented, and MBS total costs, claims and gap payments for medical services in 2005. Results There was no difference between the war widows and similarly aged widows in the Australian population without DVA support on use of medical services. While war widows had more pharmaceutical prescriptions filled they generated equivalent total costs, number of claims and co-payments for pharmaceuticals than widows without DVA support. Conclusions Older war widows are not using more medical services and pharmaceuticals than other older Australian women despite having financial incentives to do so.
BASE
In: Ageing and society: the journal of the Centre for Policy on Ageing and the British Society of Gerontology, Band 34, Heft 2, S. 310-329
ISSN: 1469-1779
ABSTRACTThis paper examines how the relationships between the factors (predisposing, enabling and illness) of the 1973 Andersen framework and service use are influenced by changes in the caring role in older women of the 1921–26 cohort of the Australian Longitudinal Study on Women's Health. Outcome variables were the use of three formal community support services: (a) nursing or community health services, (b) home-making services and (c) home maintenance services. Predictor variables were survey wave and the following carer characteristics: level of education, country of birth, age, area of residence, ability to manage on income, need for care, sleep difficulty and changes in caring role. Carer changes were a significant predictor of formal service use. Their inclusion did not attenuate the relationship between the Andersen framework factors and service use, but instead provided a more complete representation of carers' situations. Women were more likely to have used support services if they had changed into or out of co-resident caring or continued to provide co-resident care for a frail, ill or disabled person, needed care themselves, and reported sleep difficulties compared with women who did not provide care. These findings are important because they indicate that support services are particularly relevant to women who are changing their caring role and who are themselves in need of care.