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AbstractDisabled people face obstacles to participation in epistemic communities that would be beneficial for making sense of our experiences and are susceptible to epistemic oppression. Knowledge and skills grounded in disabled people's experiences are treated as unintelligible within an ableist hermeneutic, specifically, the dominant conception of disability as lack. My discussion will focus on a few types of epistemic oppression—willful hermeneutical ignorance, epistemic exploitation, and epistemic imperialism—as they manifest in some bioethicists' claims about and interactions with disabled people. One of the problems with the epistemic phenomena with which I am concerned is that they direct our skepticism regarding claims and justifications in the wrong direction. When we ought to be asking dominantly situated epistemic agents to justify their knowledge claims, our attention is instead directed toward skepticism regarding the accounts of marginally situated agents who are actually in a better position to know. I conclude by discussing disabled knowers' responses to epistemic oppression, including articulating the epistemic harm they have undergone as well as ways of creating resistant ways of knowing.

Cover -- Half Title -- Title Page -- Copyright Page -- Table of Contents -- List of Tables -- List of Figures -- Notes on Contributors -- Disability Bioethics: Introduction to The Disability Bioethics Reader -- PART I: History, Medicine, and Disability -- 1 A Short History of Modern Medicine and Disability -- 2 Eugenics, Disability, and Bioethics -- 3 Theories of Disability -- PART II: Bioethics: Past and Present -- 4 A Critical History of Bioethics -- 5 Methods of Bioethics -- 6 Disability Bioethics: From Theory to Practice -- PART III: Philosophy of Medicine and Phenomenology -- 7 Disability and the Definition of Health -- 8 The Lived Experiences of Illness and Disability -- PART IV: Prenatal Testing and Abortion -- 9 Abortion, Disability Rights, and Reproductive Justice -- 10 A Fatal Attraction to Normalizing: Treating Disabilities as Deviations from "Species-Typical" Functioning -- 11 Being Disabled and Contemplating Disabled Children -- 12 The Wrongs of 'Wrongful Birth': Disability, Race, and Reproductive Justice -- PART V: Disability, the Life Course, and Well-Being -- 13 Disability, Ideology, and Quality of Life: A Bias in Biomedical Ethics -- 14 The Case of Chronic Pain -- 15 Chronic Illness, Well-Being, and Social Values -- 16 Disability and Age Studies: Obstacles and Opportunities -- PART VI: Issues at the Edge and End of Life -- 17 Death, Pandemic, and Intersectionality: What the Failures in an End-of-Life Case Can Teach about Structural Justice and COVID-19 -- 18 Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic: Even the Best of Intentions Can Lead to Bias -- 19 Bioethical Issues in Dementia and Alzheimer's Disease -- 20 Between "Aid in Dying" and "Assisted Suicide": Disability Bioethics and the Right to Die.

The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice. The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies--scholarship that spans the social sciences and humanities--and gives serious consideration to the history of disability activism.

This book explains the importance of embodiment in understanding the function of race. With chapters by expert contributors and coverage of the most recent thinking in philosophy of race, the book is ideal for upper-level students in Phenomenology, Philosophy of Race and Critical Race Theory.