Authenticity in end-of-life care: Life reflections of an end-of-life guide
In: SSM - Mental health, Band 2, S. 100067
ISSN: 2666-5603
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In: SSM - Mental health, Band 2, S. 100067
ISSN: 2666-5603
In: Social work: a journal of the National Association of Social Workers, Band 52, Heft 2, S. 190-191
ISSN: 1545-6846
In: The journal of adult protection, Band 7, Heft 1, S. 46-47
ISSN: 2042-8669
In: Spiritual care: Zeitschrift für Spiritualität in den Gesundheitsberufen, Band 6, Heft 3, S. 357-357
ISSN: 2365-8185
In: Care management journals, Band 13, Heft 4, S. 180-183
ISSN: 1938-9019
How do we prepare our patients for decisions that will need to be made for end-of-life care? End-of-life care discussions should occur early on in the patient's disease process and often requires a great deal of coordination between multiple caregivers. There are also ethical, cultural, social, and spiritual considerations during this very important time in the disease process. Research suggests that we are not doing an adequate job of addressing end-of-life care with our patients and that a great deal of money and resources are being spent in the last days of life when there may be no clinical indication to do so. Registered nurse case managers have a unique knowledge base to serve in the role of coordinating care and leading the multidisciplinary care team in an effort to use resources responsibly while providing patients and families with options for end-of-life care.
In: Annual review of sociology, Band 45, Heft 1, S. 515-534
ISSN: 1545-2115
This review proposes that the end of life is a uniquely contemporary life course stage. Epidemiologic, technological, and cultural shifts over the past two centuries have created a context in which dying has shifted from a sudden and unexpected event to a protracted, anticipated transition following an incurable chronic illness. The emergence of an end-of-life stage lasting for months or even years has heightened public interest in enhancing patient well-being, autonomy, and the receipt of medical care that accords with patient and family members' wishes. We describe key components of end-of-life well-being and highlight socioeconomic and race disparities therein, drawing on fundamental cause theory. We describe two practices that are critical to end-of-life well-being (advance care planning and hospice) and identify limitations that may undermine their effectiveness. We conclude with recommendations for future sociological research that could inform practices to enhance patient and family well-being at the end of life.
In: IEEE technology and society magazine: publication of the IEEE Society on Social Implications of Technology, Band 24, Heft 1, S. 45-53
ISSN: 0278-0097
In: Ageing international, Band 31, Heft 3, S. 241-252
ISSN: 1936-606X
In: Journal of policy and practice in intellectual disabilities: official journal of the International Association for the Scientific Study of Intellectual Disabilities, Band 5, Heft 1, S. 56-64
ISSN: 1741-1130
Abstract Staff carers in pediatric skilled nursing facilities (PSNF) deal directly with dying residents, and are on the forefront of communication with families. These providers have expressed misunderstandings regarding the meaning of resuscitation status and redirection of care. This descriptive study evaluated perceptions and understanding of end of life issues by the staff in a PSNF who provide care for individuals with severe developmental disabilities and complex medical problems. A 16‐item pre‐intervention survey was administered to the staff prior to an informational presentation explaining issues related to end of life care. An 8‐item post‐intervention survey assessed any change in understanding of these issues. A total of 55 persons completed either a pre‐ or post‐intervention survey; 47 staff completed both surveys. While most staff carers were comfortable with providing care for patients with serious illnesses or needing comfort measures (narcotics, oxygen) when they are dying, they are significantly less comfortable with discontinuation of feeds or routine medications at the end of life. Observed was a significant increase in those who indicated it is acceptable to stop feedings for a dying patient in the post‐intervention survey, but there no significant difference in understanding of definition of DNR before or after the intervention. Authors note the need to provide more comprehensive information and support to assist staff carers to understand aspects of end of life care in a PSNF setting.
In: Environmental science and pollution research: ESPR, Band 28, Heft 48, S. 68053-68070
ISSN: 1614-7499
AbstractEnvironmental and social awareness are the key elements of the sustainable tire industry. End-of-life tire (ELT) waste flow is an important environmental problem worldwide since it produces severe air, water, and soil pollution issues. Significant advancements have been made in ELT management in the last few years. As a result, ELTs should not only be regarded as waste but also as a source of environmentally friendly materials. Besides, sound ELT management has vital importance for circular economy and sustainable development. Over the last decade, ELT management has attracted many researchers and practitioners. Unfortunately, a comprehensive review of the ELT management area is still missing. This study presents the first critical review of the whole ELT management area. It aims to present an extensive content analysis overview of state-of-the-art research, provide its critical analysis, highlight major gaps, and propose the most significant research directions. A total of 151 peer-reviewed studies published in the journals between 2010–2020 are collected, analyzed, categorized, and critically reviewed. This review study redounds comprehensive insights, a valuable source of references, and major opportunities for researchers and practitioners interested in not only ELT material flow but also the whole waste management area.
Graphical abstract
In: Development and society, Band 45, Heft 2, S. 231-254
ISSN: 2586-6079
In: Social work in health care: the journal of health care social work ; a quarterly journal adopted by the Society for Social Work Leadership in Health Care, Band 41, Heft 1, S. 53-72
ISSN: 1541-034X
In: Journal of applied research in intellectual disabilities: JARID, Band 30, Heft 6, S. 977-981
ISSN: 1468-3148
In: The Journal of social, political and economic studies, Band 30, Heft 2, S. 193-202
ISSN: 0278-839X, 0193-5941
The authors argue that allowing patients more say in deciding their own time of death could result in a greater overall length of life. In support of this they cite evidence that the last month of life can consume 40% of the total spent on healthcare during the lifetime of an individual. The paper reasons that the same resources invested in healthcare at earlier stages in life would yield much greater extensions in life length. Adapted from the source document.
In: Special care in dentistry: SCD, Band 38, Heft 5, S. 291-298
ISSN: 1754-4505
AbstractIntroductionMaintaining oral health is vital for every individual's quality of life. Little consideration, however, has been given to the oral health of patients approaching end‐of‐life, perhaps due to sensitivities over research ethics. The aim of this rapid review is to synthesize existing evidence on oral health in this population.Methods and resultsA rapid review of the literature was conducted using the key words: "Oral/Dental Health" in "End‐of‐life" or "Palliative care" patients. Nineteen articles met the inclusion criteria: five retrospective cohort studies, ten cross sectional studies, two experimental studies, one systematic review, and one audit. Quality was medium to low.The prevalence of oral/dental conditions was high in the end‐of‐life population, as were self‐reported symptoms, and poor OHRQOL. Staff placed value on oral health but identified several barriers to providing both routine daily and professional dental care. Professional oral care was beneficial in relieving palliative specific conditions and providing guidance/training for daily care.ConclusionThere is a paucity of high quality research in relation to oral health at end‐of‐life. The existing literature suggests that oral health and oral health related quality of life are poor and professional support and care for this population is needed.