Authenticity in end-of-life care: Life reflections of an end-of-life guide
In: SSM - Mental health, Band 2, S. 100067
ISSN: 2666-5603
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In: SSM - Mental health, Band 2, S. 100067
ISSN: 2666-5603
In: American behavioral scientist: ABS, Band 46, Heft 2, S. 284-298
ISSN: 0002-7642
In: American behavioral scientist: ABS, Band 46, Heft 2, S. 284-298
ISSN: 1552-3381
Family members are involved in every aspect of end-of-life decision making and care. The present article reviews family involvement in providing care during chronic and terminal illness, in discussions and plans for advance directives, in decision making during chronic illness, in executing advance directives and making critical decisions near the end of life, and the long-lasting effects of caregiving and difficult decisions on the family member during bereavement. Although legal standards and much of the research on end of life emphasize individual decision making and the value of autonomy, end-of-life care and decisions should be increasingly understood within a family context. There is also increasing need to study how issues of race, ethnicity, and culture affect end-of-life care and decisions within families.
In: Health & social work: a journal of the National Association of Social Workers, Band 29, Heft 1, S. 3-5
ISSN: 1545-6854
In: Social work: a journal of the National Association of Social Workers, Band 52, Heft 2, S. 190-191
ISSN: 1545-6846
In: The journal of adult protection, Band 7, Heft 1, S. 46-47
ISSN: 2042-8669
In: The public opinion quarterly: POQ, Band 63, Heft 2, S. 263-277
ISSN: 1537-5331
In: Public opinion quarterly: journal of the American Association for Public Opinion Research, Band 63, Heft 2, S. 263
ISSN: 0033-362X
In: Public policy & aging report, Band 13, Heft 1, S. 13-16
ISSN: 2053-4892
In: Spiritual care: Zeitschrift für Spiritualität in den Gesundheitsberufen, Band 6, Heft 3, S. 357-357
ISSN: 2365-8185
In: American behavioral scientist: ABS, Band 46, Heft 2, S. 195-315
ISSN: 0002-7642
In: American behavioral scientist: ABS, Band 46, Heft 3
ISSN: 0002-7642
In: American behavioral scientist: ABS, Band 46, Heft 2, S. 252-267
ISSN: 0002-7642
In: Care management journals, Band 13, Heft 4, S. 180-183
ISSN: 1938-9019
How do we prepare our patients for decisions that will need to be made for end-of-life care? End-of-life care discussions should occur early on in the patient's disease process and often requires a great deal of coordination between multiple caregivers. There are also ethical, cultural, social, and spiritual considerations during this very important time in the disease process. Research suggests that we are not doing an adequate job of addressing end-of-life care with our patients and that a great deal of money and resources are being spent in the last days of life when there may be no clinical indication to do so. Registered nurse case managers have a unique knowledge base to serve in the role of coordinating care and leading the multidisciplinary care team in an effort to use resources responsibly while providing patients and families with options for end-of-life care.
In: American behavioral scientist: ABS, Band 46, Heft 2, S. 252-267
ISSN: 1552-3381
Research suggests that communication near the end of life is problematic. A literature review was conducted to identify barriers to optimal communication near the end of life and strategies to overcome them. Barriers include clinician beliefs, patient characteristics, American popular and medical cultures, and the health care system. Clinician and patient barriers can be addressed through education, advance planning, the inclusion of patients' family members, and individualizing care. Cultural and systems problems can be addressed through public as well as professional education, alternative models of care, and coalition building. Combined, these approaches can help improve communication near the end of life and ultimately improve care for the dying.