In 1998, racial and ethnic minorities reached 27.5% of the United States (US) population, but remain severely underrepresented in the genetics community. Among minorities, Asian Americans and Pacific Islanders, almost two thirds of whom are foreign-born, have been the fastest growing but least understood population. This paper describes the recent dramatic growth of US minorities, and challenges the genetics community to become sensitive to issues that concern minority communities and to assure equity in all facets of genetics, including public policies, basic research, clinical studies, service programs, professional training, public education, epidemiological surveys, and debate over ethical, legal and psychosocial issues.
A World Ignited is about the surge of anger that has swept the world in the last decade, its myriad causes, its toll in lives and human misery. The authors conclude this important and timely book in an upbeat manner with a look at the politics of hope and what can be done to halt, and even reverse, this cacophony of hate
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In: Social work in health care: the journal of health care social work ; a quarterly journal adopted by the Society for Social Work Leadership in Health Care, Band 46, Heft 2, S. 1-14
This study compares the well-being of African American, Latina, and White grandmothers raising or helping to raise grandchildren in custodial and coparenting families. Grandmother caregivers ( N = 1,051) were recruited through schools and media for 1-hr interviews. Latina grandmothers had higher life satisfaction than African American or White grandmothers when they coparented with a parent in the household. Among African American grandmothers, higher life satisfaction was evident in custodial compared to coparenting arrangements. White grandmothers had higher negative mood and assumed care more frequently in response to serious parental substance-related reasons and less frequently because of the parent's financial need. In contrast, levels of depression were the same regardless of ethnicity. Results suggest that expectations regarding caregiving roles and socioeconomic resources may shape the grandmother's mood and sense of satisfaction with life in response to family circumstances but not affect her depression, an important aspect of mental health.
ImportanceThe COVID-19 pandemic has had disproportionate effects on racial and ethnic minority communities, where preexisting clinical and social conditions amplify health and social disparities. Many of these communities report lower vaccine confidence and lower receipt of the COVID-19 vaccine. Understanding factors that influence the multifaceted decision-making process for vaccine uptake is critical for narrowing COVID-19-related disparities.ObjectiveTo examine factors that members of multiethnic communities at high risk for COVID-19 infection and morbidity report as contributing to vaccine decision-making.Design, setting, and participantsThis qualitative study used community-engaged methods to conduct virtual focus groups from November 16, 2020, to January 28, 2021, with Los Angeles County residents. Potential participants were recruited through email, video, and telephone outreach to community partner networks. Focus groups were stratified by self-identified race and ethnicity as well as age. Transcripts were analyzed using reflexive thematic analysis.Main outcomes and measuresThemes were categorized by contextual, individual, and vaccine-specific influences using the World Health Organization's Vaccine Hesitancy Matrix categories.ResultsA total of 13 focus groups were conducted with 70 participants (50 [71.4%] female) who self-identified as American Indian (n = 17 [24.3%]), Black/African American (n = 17 [24.3%]), Filipino/Filipina (n = 11 [15.7%]), Latino/Latina (n = 15 [21.4%]), or Pacific Islander (n = 10 [14.3%]). A total of 39 participants (55.7%) were residents from high-poverty zip codes, and 34 (48.6%) were essential workers. The resulting themes included policy implications for equitable vaccine distribution: contextual influences (unclear and unreliable information, concern for inequitable access or differential treatment, references to mistrust from unethical research studies, accessibility and accommodation barriers, eligibility uncertainty, and fears of politicization or pharmaceutical industry influence); social and group influences (inadequate exposure to trusted messengers or information, altruistic motivations, medical mistrust, and desire for autonomy); and vaccination-specific influences (need for vaccine evidence by subpopulation, misconceptions on vaccine development, allocation ambiguity, vaccination safety preferences, the importance of perceiving vaccine equity, burden of vaccine scheduling, cost uncertainty, and desire for practitioner recommendation).Conclusions and relevanceIn this qualitative study, participants reported a number of factors that affected their vaccine decision-making, including concern for inequitable vaccine access. Participants endorsed policy recommendations and strategies to promote vaccine confidence. These results suggest that support of informed deliberation and attainment of vaccine equity will require multifaceted, multilevel policy approaches that improve COVID-19 vaccine knowledge, enhance trust, and address the complex interplay of sociocultural and structural barriers to vaccination.