Szabolcs vármegye terhei a 17. század végén
In: A Szabolcs-Szatmár-Bereg Megyei Levéltár kiadványai
In: 3, Tanulmányok 17
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In: A Szabolcs-Szatmár-Bereg Megyei Levéltár kiadványai
In: 3, Tanulmányok 17
In: Regio: kisebbség, politika, társadalom. [Ungarische Ausgabe], Volume 31, Issue 4, p. 169-174
ISSN: 2415-959X
Kritika. Erdész Ádám (szerk.): Levelek a Kner család életéből 1938–1948. Budapest: Magvető Kiadó, 2023. 742 oldal
In: Politikatudományi szemle: az MTA Politikatudományi Bizottsága és az MTA Politikai Tudományok Intézete folyóirata, Volume 19, Issue 3, p. 121-134
ISSN: 1216-1438
In: Politikatudományi szemle: az MTA Politikatudományi Bizottsága és az MTA Politikai Tudományok Intézete folyóirata, Volume 19, Issue 1, p. 67-93
ISSN: 1216-1438
In: Archiv für Rechts- und Sozialphilosophie: ARSP = Archives for philosophy of law and social philosophy = Archives de philosophie du droit et de philosophie sociale = Archivo de filosofía jurídica y social, Volume 92, Issue 1, p. 28-58
ISSN: 2363-5614
In: Policy brief for the Middle East Conference on a WMD/DVs Free Zone, 4
World Affairs Online
In: Regio: kisebbség, politika, társadalom. [Ungarische Ausgabe], Volume 28, Issue 3, p. 39
ISSN: 2415-959X
Background: MetabERN is one of the 24 European Reference Networks created according to the European Union directive 2011/24/EU on patient's rights in cross border healthcare. MetabERN associates 69 centres in 18 countries, which provide care for patients with Hereditary Metabolic Diseases, and have the mission to reinforce research and provide training for health professionals in this field. MetabERN performed a survey in December 2017 with the aim to produce an overview documenting research activities and potentials within the network. As the centres are multidisciplinary, separated questionnaires were sent to the clinical, university and laboratory teams. Answers were received from 52 out of the 69 centres of the network, covering 16 countries. A descriptive analysis of the information collected is presented. Results: The answers indicate a marked interest of the respondents for research, who expressed high motivation and commitment, and estimated that the conditions to do research in their institution were mostly satisfactory. They are active in research, which according to several indicators, is competitive and satisfies standards of excellence, as well as the education programs offered in the respondent's universities. Research in the centres is primarily performed in genetics, pathophysiology, and epidemiology, and focuses on issues related to diagnosis. Few respondents declared having activity in human and social sciences, including research on patient's quality of life, patient's awareness, or methods for social support. Infrastructures offering services for medical research were rarely known and used by respondents, including national and international biobanking platforms. In contrast, respondents often participate to patient registries, even beyond their specific field of interest. Conclusions: Taken as a whole, these results provide an encouraging picture of the research capacities and activities in the MetabERN network, which, with respect to the number and representativeness of the investigated centres, gives a comprehensive picture of research on Hereditary Metabolic Diseases in Europe, as well as the priorities for future actions. Marginal activity in human and social sciences points out the limited multidisciplinary constitution of the responding teams with possible consequences on their current capability to participate to patient's empowerment programs and efficiently collaborate with patient's advocacy groups.
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In: Heard , J-M , Bellettato , C , van Lingen , C , Scarpa , M , Debray , F-G , Nassogne , M-C C , van Coster , R , de Meirleir , L , Eyskens , F , Morava , E , Baric , I , Kozich , V , Lund , A M , Germain , D , Belmatoug , N , Guffon , N , Labrune , P , Gouya , L , de Lonlay , P , Schiff , M , Dobbelaere , D , Chabrol , B , Das , A M , Spiekerkoetter , U , Rutsch , F , Ploeckinger , U , Mohnike , K , Hahn , A , Kölker , S , Ullrich , K , Balogh , I , Bembi , B , Donati , M A , Gasperini , S , Parenti , G , Salviati , A , Vici , C-D , di Rocco , M , Cefalo , G , Burlina , A , Ceccarini , G , Federico , A , van der Ploeg , A , Rubio-Gozalbo , M-E , van Spronsen , F , Visser , G , Bosch , A , Tangeraas , T , Sanderberg , S , Kieć-Wilk , B , Gaspar , A-M S M , Martins , E , Silva , E-M F R , de Abreu Freire Diogo Matos , L-M , Azevedo , O , Tansek , M-Z , Couce-Pico , M-L , Cazorla , A G , Azuara , L A-E , del Toro-Riera , M , Lajic , S , Darin , N , Deegan , P , Vijaym , S , Chronopoulou , E , Jones , S , Chakrapani , A & Hiwot , T 2019 , ' Research activity and capability in the European reference network MetabERN ' , Orphanet Journal of Rare Diseases , vol. 14 , no. 1 , 119 . https://doi.org/10.1186/s13023-019-1091-8
Background: MetabERN is one of the 24 European Reference Networks created according to the European Union directive 2011/24/EU on patient's rights in cross border healthcare. MetabERN associates 69 centres in 18 countries, which provide care for patients with Hereditary Metabolic Diseases, and have the mission to reinforce research and provide training for health professionals in this field. MetabERN performed a survey in December 2017 with the aim to produce an overview documenting research activities and potentials within the network. As the centres are multidisciplinary, separated questionnaires were sent to the clinical, university and laboratory teams. Answers were received from 52 out of the 69 centres of the network, covering 16 countries. A descriptive analysis of the information collected is presented. Results: The answers indicate a marked interest of the respondents for research, who expressed high motivation and commitment, and estimated that the conditions to do research in their institution were mostly satisfactory. They are active in research, which according to several indicators, is competitive and satisfies standards of excellence, as well as the education programs offered in the respondent's universities. Research in the centres is primarily performed in genetics, pathophysiology, and epidemiology, and focuses on issues related to diagnosis. Few respondents declared having activity in human and social sciences, including research on patient's quality of life, patient's awareness, or methods for social support. Infrastructures offering services for medical research were rarely known and used by respondents, including national and international biobanking platforms. In contrast, respondents often participate to patient registries, even beyond their specific field of interest. Conclusions: Taken as a whole, these results provide an encouraging picture of the research capacities and activities in the MetabERN network, which, with respect to the number and representativeness of the investigated centres, gives a comprehensive picture of research on Hereditary Metabolic Diseases in Europe, as well as the priorities for future actions. Marginal activity in human and social sciences points out the limited multidisciplinary constitution of the responding teams with possible consequences on their current capability to participate to patient's empowerment programs and efficiently collaborate with patient's advocacy groups.
BASE