The information gained from pharmacogenomic testing is becoming increasingly recognized as an opportunity to improve our current dosing strategies for children. The identification of gene polymorphisms that influence drug disposition and effect can be used to help predict a child's susceptibility to toxicity and/or response to a particular drug or therapeutic regimen. However, the potential consequences of performing genomic ana lysis in children raise important ethical considerations. Although the level of risk introduced remains partially hypothetical, awareness of the ethical concerns and protective legislation will be an important part of fully informing patients, families, clinicians, and researchers about the risks and benefits of pharmacogenomic testing in children. Where it can be done without loss of benefit, risk reduction is a moral imperative, and so the ethical complexities related to pharmacogenomics must be addressed in an ongoing way as we continue to learn more about the value of the technology to children.
Frontmatter -- Contents -- Foreword: Too Long Too Short / Vonnegut, Mark -- Acknowledgments -- Introduction: The Why, The What, And The How Of The Medical/Health Humanities / Friedman, Lester D. / Wear, Delese / Jones, Therese -- Part I. Disease And Illness -- Chapter 1. Being A Good Story: The Humanities As Therapeutic Practice / Frank, Arthur W. -- Chapter 2. Illuminating The It, Thee, And We Of Disease And Illness: The Metamorphosis And Related Works / Soricelli, Rhonda L. / Flood, David H. -- Chapter 3. "This Weird, Incurable Disease": Competing Diagnoses In The Rhetoric Of Morgellons / Keränen, Lisa -- Chapter 4. My Quest For Health / Wall, Shelley / Sappol, Michael -- Part II. Disability -- Chapter 5. Disability In Two Doctor Stories / Holmes, Martha Stoddard -- Chapter 6. Music And Disability / Straus, Joseph N. -- Chapter 7. American Narrative Films And Disability: An Uneasy History / Norden, Martin F. -- Chapter 8. Standout / Iezzoni, Lisa I. -- Part III. Death And Dying -- Chapter 9. When The Doctor Is Not God: The Impact Of Religion On Medical Decision Making At The End Of Life / Cohn, Felicia -- Chapter 10. Postmodern Death And Dying: A Literary Analysis / Lantos, John / Montello, Martha -- Chapter 11. Second Degree Block: Poem And Commentary / Haddad, Amy -- Part IV. Patient- Professional Relationships -- Chapter 12. Social Studies: The Humanities, Narrative, And The Social Context Of The Patient-Professional Relationship / Garden, Rebecca -- Chapter 13. Humanities And The Medical Home / Hester, Rebecca / Brody, Howard / Clark, Mark -- Chapter 14. Occupational Medicine / Coulehan, Jack -- Part V. The Body -- Chapter 15. The Virtues Of The Imperfect Body / Tong, Rosemarie -- Chapter 16. Seeing Bodies In Pain / Gilman, Sander L. -- Chapter 17. Public Fetuses / Hausman, Bernice L. -- Chapter 18. More Body: A Performance For Five (Or More) Bodies / Case, Gretchen A. -- Part VI. Gender And Sexuality -- Chapter 19. Adult Intake Form / Peterkin, Allan -- Chapter 20. What Is Sex For? Or, The Many Uses Of The Vag / Dreger, Alice -- Chapter 21. "I Always Prefer The Scissors": Isaac Baker Brown And Feminist Histories Of Medicine / Levine-Clark, Marjorie -- Chapter 22. Comics In The Health Humanities: A New Approach To Sex And Gender Education / Squier, Susan M. -- Chapter 23. I Am Gula, Hear Me Roar: On Gender And Medicine / Campo, Rafael -- Part VII. Race And Class -- Chapter 24. Listening As Freedom: Narrative, Health, And Social Justice / DasGupta, Sayantani -- Chapter 25. Race And Mental Health / Metzl, Jonathan M. -- Chapter 26. Law'S Hand In Race, Class, And Health Inequities: On The Humanities And The Social Determinants Of Health / Goldberg, Daniel -- Chapter 27. The Rooms Of Our Souls / Grainger-Monsen, Maren -- Part VIII. Aging -- Chapter 28. "Old Age Isn'T A Battle, It'S A Massacre": Reading Philip Roth'S Everyman / Saxton, Benjamin / Cole, Thomas R. -- Chapter 29. "Do You Remember Me?" Constructions Of Alzheimer'S Disease In Literature And Film / Kaplan, E. Ann -- Chapter 30. Love In The Time Of Dementia / Winakur, Jerald -- Part IX. Mental Illness -- Chapter 31. Narrating Our Sadness, With A Little Help From The Humanities / Lewis, Brad -- Chapter 32. Teaching Narratives Of Mental Illness / Jones, Anne Hudson -- Chapter 33. Community Psychiatry And The Medical Humanities / Rowe, Michael -- Chapter 34. Culpability / Williams, Ian -- Part X. Spirituality And Religion -- Chapter 35. Rites Of Bioethics / Chambers, Tod -- Chapter 36. Health And Humanities: Spirituality And Religion / Selman, Lucy / Barfield, Raymond C. -- Chapter 37. Scientia Mortis And The Ars Moriendi: To The Memory Of Norman / Bishop, Jeffrey P. -- Chapter 38. Meditations Of An Anesthesiologist: Poem And Commentary / Shafer, Audrey -- Part XI. Science And Technology -- Chapter 39. Andromeda'S Futures: A Story Of Humanities, Technology, Science, And Art / Belling, Catherine -- Chapter 40. Knowing And Seeing: Reconstructing Frankenstein / Wolpe, Paul Root -- Chapter 41. A Brief History Of Love: A Rationale For The History Of Epidemics / Kavey, Allison B. -- Chapter 42. Calcedonies / Nisker, Jeff -- Part XII. Health Professions Education -- Chapter 43. Teaching Autism Through Naturalized Narrative Ethics: Closing The Divide Between Bioethics And Medical Humanities / Aultman, Julie M. -- Chapter 44. Courting Discomfort In An Undergraduate Health Humanities Classroom / Lamb, Erin Gentry / Blackie, Michael -- Chapter 45. The Medical Humanities In Medical Education: Toward A Medical Aesthetics Of Resistance / Bleakley, Alan -- Chapter 46. In Defense Of Cheaper Stethoscopes / Baruch, Jay -- References -- Notes On Contributors -- Index
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