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Betroffenen-kontrollierte Forschung kann als weiteste Entwicklung des partizipativen Ansatzes im psychiatrischen Bereich betrachtet werden: nicht nur, weil sie mit der Rolle der "Forschungssubjekte" abschließt, sondern auch, weil das Erfahrungswissen (im Gegensatz zum klinischen) eine zentrale Stellung einnimmt – angefangen vom Forschungsdesign bis zu den Phasen der Analyse und Interpretation der Ergebnisse. Der erste Teil dieses Beitrags bietet einige Hintergrundinformationen über den Entstehungskontext und die Entwicklung der betroffenen-kontrollierten Forschung in Großbritannien Im zweiten Teil werden die beiden ersten deutschen Studien dargestellt, die mit diesem Ansatz gearbeitet haben. Beide Studien sind Beispiele für einen methodischen Zugang, in dem die Nähe zum Forschungsthema dem der "wissenschaftlichen Distanz" bevorzugt wird. Das Anliegen meines Beitrags ist es, einen Einblick in die Erfolge sowie die Herausforderungen des betroffenen-kontrollierten Forschungsansatzes zu eröffnen. Für seinen Wert argumentierend möchte ich aufzeigen, wie dieser Ansatz konventionelle Wissensproduktion auf fundamentale Weise hinterfragt und das, was als Evidenz in der Psychiatrie gilt, anzweifelt.

"By drawing broadly on international thinking and experience, this book offers a critical exploration of Mad Studies and advances its theory and practice. Comprised of 34 chapters written by international leading experts, activists and academics, this handbook introduces and advances Mad Studies, as well as exploring resistance to and criticism, and clarifying its history, ideas, what it is, and what it can offer. It presents examples of Mad Studies in action, covering initiatives that have been taken, their achievements and what can be learned from them. In addition to sharing research findings and evidence, the book offers examples and insights for advancing understandings of experiences of madness and distress from the perspectives of those who have (had) those experiences, and also explores ways of supporting people oppressed by conventional understandings and systems. This book will be of interest to all scholars and students of Mad Studies, Disability Studies, Sociology, Socio-Legal Studies, Mental Health and Medicine more generally"

This book explores the challenges of applying disability theory and policy, including the social model of disability, to madness and distress. It brings together leading scholars and activists from Europe, North America, Australia and India, to explore the relationship between madness, distress and disability. Whether mental health problems should be viewed as disabilities is a pressing concern, especially since the inclusion of psychosocial disability in the UN Convention on the Rights of Persons with Disabilities. This book will appeal to policy makers, practitioners, activists and academics

Social policy is often constructed and implemented by people who have little experience of its impact as a service user, but there has been a growing interest in greater public, patient and service user involvement in social policy as both political activity and academic discipline. Social Policy First Hand is the first comprehensive international social policy text from a participatory perspective and presents a new service user-led social policy that addresses the current challenges in welfare provision. A companion volume to Peter Beresford's bestselling All our welfare, it introduces the voices of different groups of service users, starting from their lived experience. With an impressive list of contributors, this important volume fills a gap in looking at social policy using participatory and inclusive approaches and the use of experiential knowledge in its construction. It will challenge traditional state and market-led approaches to welfare