Suchergebnisse

Historical background, methodological aspects, and results of centralized planning.

This issue examines three topics: How to conduct community-engaged research ethically, how to examine problematic areas in research ethics by surveying perceptions of those areas, and how to build research ethics capacity. Educational activities are provided in each area.

This issue of JERHRE examines topics relevant to managing media coverage of one's research, finding ethical guidance in research, and participants' readiness to participate in sensitive research. Educational activities are presented that will enable readers to consolidate their knowledge and understanding of these topics.

This issue examines topics relevant to the effects of communicating disclosure risk to participants in survey research, managing genetic data, paying research participants, and evaluating institutional research ethics. Educational activities are presented that will enable readers to consolidate their knowledge and understanding of these topics.

This issue of JERHRE examines topics relevant to a variety of issues connected with evaluation of the protection of human subjects. Educational activities are presented that will enable readers to consolidate their knowledge and understanding of these topics. The following assignments are best conducted in small groups.

This issue of JERHRE examines topics relevant to community-engaged research, including new methodologies, research with Aboriginal communities, community members as researchers, and research with urban minority populations. Educational activities are presented that will enable readers to consolidate their knowledge and understanding of these topics.

Six articles in this issue of JERHRE focus on special communication issues that are outside of the formulaic model of informed consent required by ethics committees. In another article, Swartling et al. focus on children's understanding of their role in giving assent to participate in research. Educational activities are presented that enable readers to better digest and use the ideas presented in those seven articles.

This issue of JERHRE examines two kinds of forums for public or community voice on issues of bioethical relevance: Community advisory boards in biobanking and democratic deliberation as a tool for bioethics. Two other articles examine attitudes of research participants about receiving the genetic results of their own contributions of tissue to research. Educational activities are presented that enable readers to better digest and use the complex ideas presented in those four articles. The following activities are best conducted in small groups.

In addition to the specific educational implications accompanying each article in this issue, there are overarching issues worthy of your examination concerning (a) ethical controversies for which we have no data, (b) the broader role of numeracy and comprehension in discussions with potential and actual research participants, and (c) understanding the ethical obligations of caring qualitative researchers, especially ethnographers, who learn about potential and actual harms to at-risk persons they observe, and (d) when culture clashes with Western ideas of high ethical standards.